OUR BEACH RAFFLE IS BACK! ☀️ Get your tickets today! (Link in bio) Winner will be drawn on October 5th at our 2026 Cindy Canning Memorial Drive Hope Home Tournament. You do NOT need to be present to win! drive-hope-home-golf-tournament.perfectgolfevent.com/registration... #HDReach #DriveHopeHome 💙
HD Reach
@hdreach.bsky.social
We are a nonprofit organization founded in North Carolina that is dedicated to providing access to healthcare, education, and social assistance for those affected by Huntington’s disease. https://linktr.ee/hdreach
WS & CLT: We hope to see you tonight. Walk-ins are welcome, however please register if you can. If there are no signups, the event will be cancelled. Check HEYLO for updates! Sign up here: www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd
WILMINGTON: We hope to see you tonight. Walk-ins are welcome, however please register if you can. If there are no signups, the event will be cancelled. Check HEYLO for updates! www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd
SPONSORSHIP OPPORTUNITIES ARE OPEN BUT NOT FOR LONG! 📅 Sponsorship commitments are due by August 29 to ensure inclusion in event materials and recognition opportunities. Learn more about sponsorship opportunities and registration at www.hdreachgolf.com. #HDReach #ReachForHope #DriveHopeHome
REMINDER: Next week meetups are happening in WLM, WS, and CLT. Are you connected on HEYLO yet? It is an app that will post updates/reminders for all of our events, as well as allow for chat groups so you can stay connected throughout the month! www.hdreach.org/community/ev... 💙💜 #HDreach
Join our Fantasy Football League and raise funds for HD! Sign up by entering your name, email, and paying a $25 entry fee! www.hdreach.org/community/fa... #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
HEYLO- Did you know, you can get connected with us for both our in person and virtual events on Heylo? Download the app today and search for HD REACH. Once we receive your request to join, we will get you added! Apple: apps.apple.com/us/app/heylo... Google Play: play.google.com/store/apps/d...
Are you thinking about genetic testing for HD but aren't sure where to start? Join our open chat room alongside HD Genetics. No need to sign up, just click the link to join during our meeting time, 12:30pm - 1pm ET. We are here to guide you and support you! 💙 🧬 Doxy.me/HDgenetics #HDreach
#LIVE with author Erin Paterson talking #huntingtonsdisease, her books, and interacting with chat! Come hang- oh and trying to play games! www.twitch.tv/hdreachgameoverhd (or Linktree in bio) #fyp #twitch #hdreachgameoverhd
Story Time Stream with Author Erin Paterson TONIGHT! 8pm ET! Fun casual games will be played and great conversation around her current books, future books, and honest conversation around her #huntingtonsdisease journey. Tune in on twitch.tv/hdreachgameoverhd #hdreachgameoverhd #live #fyp #twitch
REGISTRATION IS OPEN!! 💙⛳ We’re excited to announce the 2026 Cindy Canning Memorial Drive Hope Home Tournament, happening Monday, October 5th at 12 Oaks in Holly Springs for the 3rd year in a row! Register and learn more here: www.hdreachgolf.com #HDReach #ReachForHope #DriveHopeHome
See you TONIGHT for, “The Elsewhere Express.” If you're curious about joining book club and haven't started this book, please join us anyway! 📚📚📚 Any questions please reach out to Erika at eboulavsky@hdreach.org www.hdreach.org/community/ev... #HDReach #ReachForHope #ReachingForHope
Story Time Stream: with author Erin Paterson TOMORROW! Tuesday August 4th at 8pm ET Join in our chat to interact with her, ask questions, and get to know Erin live! Tune in on www.twitch.tv/hdreachgameo... #hdreachgameoverhd #stream #advocacy #storytime
Join us for our in person events and virtual events for the month of August. Our Winston Salem Lunch meetup is paused, and save the date for our Quarterly* AVL meetup. We can't wait to see you there. 💙 For more information, checkout www.hdreach.org/community/ev... #HDreach #ReachForHope
Our last big event for 2026 is coming up quickly! Registration is OPEN. You can also support by volunteering (sign ups out soon), soliciting sponsors/donors, and spreading the word about our Beach Condo Raffle. drive-hope-home-golf-tournament.perfectgolfevent.com #HDreach #ReachForHope
OUR BEACH RAFFLE IS BACK! ☀️ Online tickets are available now! Win a trip to stay in Myrtle Beach, SC. drive-hope-home-golf-tournament.perfectgolfevent.com/registration... Winner will be drawn on October 5th at our 2026 Cindy Canning Memorial Drive Hope Home Tournament.
SPONSORSHIP OPPORTUNITIES ARE OPEN BUT NOT FOR LONG! Join us for the 2026 Cindy Canning Memorial Drive Hope Home Tournament on Monday, October 5, at 12 Oaks in Holly Springs, NC, for the third year in a row. Learn more about sponsorship opportunities and registration at www.hdreachgolf.com.
ASHEVILLE! We are back and hosting a meetup TOMORROW in AVL. Erika will be ready to greet you with pizza! Spread the word, bring your family and friends. If you can, please RSVP via Heylo and get all the updates there. www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #raredisease
A legacy gift to HD Reach ensures that support, resources, and connection remain available for individuals and families facing Huntington’s disease. Planned gifts, of any size, help strengthen the future of our community and ensure no one walks the HD journey alone. www.hdreach.org/donate/month...
Let’s Celebrate Our #HDHeroes! 🙏🏼💙 Our HD Heroes are the heart of our community. Share your story to inspire and connect with others. Together, we #ReachForHope 💙 www.hdreach.org/community/hd... #HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd
RDU: See y'all at the Boot Room tonight! Check HEYLO for updates on all of our meetups! www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #raredisease #huntingtonsdisease
Join our Fantasy Football League and raise funds for HD! For just $25, you get to play all season long and connect with some amazing people. www.hdreach.org/community/fa... #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons
TOMORROW! Join us at the Vanderbilt HD Educational Community Support Group. The first hour will feature a speaker and will be followed by a breakout of two support groups: one is a casual catchup and the other is focused on the later stages of caregiving. www.hdreach.org/community/ev... #HDReach
WINSTON-SALEM: Tomorrow there's a *NEW* spot for Lunch! Walk-ins are welcome, however please register if you can. If there are no signups, the event will be cancelled. Check HEYLO for updates! www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd
OUR BEACH RAFFLE IS BACK! ☀️ Online tickets are available now! Win a trip to stay in Myrtle Beach, SC. drive-hope-home-golf-tournament.perfectgolfevent.com/registration... Winner will be drawn on October 5th at our 2026 Cindy Canning Memorial Drive Hope Home Tournament.
Tonight's Wilmington meetup is cancelled! See you at the next one on Tuesday, August 11th 6pm at The Mad Mole! Make sure to join our Heylo for easy notifications, upcoming events, and chat space for our meetups, Book Club, and Crafting Corner space! heylo.com/invite/icLea...
Skyhawk Therapeutics Announces Expansion of its Global Pivotal FALCON-HD Clinical Trial for SKY-0515 in Huntington’s Disease to the United States, Canada and the United Kingdom! Check out the full article at hdreach.org in our blog section at the bottom of our website.
WILMINGTON: We hope to see you tonight. Walk-ins are welcome, however please register if you can. If there are no signups, the event will be cancelled. Check HEYLO for updates! www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd
ASHEVILLE! We are back and hoping to maintain a meetup in your area, but we need your help! Spread the word, bring your friends and family on July 25th. Erika will be ready to greet you with pizza! Please RSVP via Heylo and get all the updates there. www.hdreach.org/community/ev... 💙💜 #HDreach