Eric Jonasch, our Chair, attended #KCRS26 where he presented a poster on the IKCC Global Patient Survey. (1/3)

Together with the Global Cancer Coalitions Network, we’re pleased to share the four guiding principles for better shared decision-making (SDM) between clinicians and patients: (1/3)

The 5th IKCC Global Patient Survey on Kidney Cancer launches on World Cancer Research Day, 24 September 2026! 🎗️ This launch marks an incredible milestone — 10 years of listening to and learning from the kidney cancer patient community through the collection of patient experience data. (1/2)

The #KCRS26 Poster Gallery is now LIVE! Explore research from investigators across the #KidneyCancer community and discover the innovative science being showcased at this year's Summit: https://kcrs.kidneycan.org/kcrs26-abstract-poster-wall/ #AcceleratingCures

The #KCRS26 Abstract Book is now available! Get an early look at the innovative research that will be presented during this year's Summit: https://kcrs.kidneycan.org/kcrs26-abstract-book/ Then join us virtually to hear these findings presented! https://kcrs.kidneycan.org #AcceleratingCures

🖐️ Just 5 DAYS until #KCRS26! In five days, experts from across the #KidneyCancer community will come together to share the latest research, exchange ideas, and help shape the future of kidney cancer care. Register today before the Summit begins: https://kcrs.kidneycan.org #AcceleratingCures

July’s edition of our newsletter is now available. It includes results from World Kidney Cancer Day, details for the Global Patient Survey on Kidney Cancer launch, a recap from #ASCO26, and more. mailchi.mp/ikcc/newslet... #KidneyCancer

Wherever you're making a difference in #KidneyCancer research or care, #KCRS26 can come to you. Virtual attendance gives you access to two days of presentations and discussions featuring leading experts from around the world. Register today: https://kcrs.kidneycan.org #AcceleratingCures

Dr Eric Jonasch spoke about the IKCC Global Patient Survey with the Video Journal of Oncology (VJOncology) at #ASCO26. He focused on the importance of emotional wellbeing, which was the theme of the most recent #WorldKidneyCancerDay. www.youtube.com/watch?v=DoNm... #KidneyCancer

Emotional health burden and unmet support needs in kidney cancer

YouTube video by VJOncology

youtube.com

What does “optimal” SDM look like? 💡 Our network, the Global Cancer Coalitions Network (GCCN), sets out 3 core elements in its new infographic: clinical evidence and expertise, patient preferences and goals, and biological, psychological and social context, (1/2)

Join us virtually for #KCRS26 on July 23-24 and hear directly from leading researchers, clinicians, and experts as they share the newest advances shaping the future of #KidneyCancer research. Register today! https://kcrs.kidneycan.org #AcceleratingCures

Are you an early-career researcher looking to engage with the #KidneyCancer research community? To help make participation more accessible, discounted registration for #KCRS26 is available for early-career researchers. Register today: https://bit.ly/KCRS26Registration #AcceleratingCures

Time, openness and health literacy are the biggest barriers to shared decision making, and biomarker testing adds complexity. 💡 Our network @GlobalCCN_org has mapped these challenges and the enablers that help in a new infographic. We see them every day. 👉 www.globalccn.org @glcc01.bsky.social

Last week in Gdansk, Poland, IKCC played an active role at the WECAN Academy, with Eric Jonasch, Caleb Egwuenu and Olivier Exertier participating, and Claudia Ungarelli attending as a speaker. (1/3)

📣 As a proud member of GCCN, we're sharing their new infographic on shared decision making in precision medicine and oncology biomarkers, developed with Ipsen at ESMO 2025. Patients deserve to be true partners in their care. 👉 www.globalccn.org @glcc01.bsky.social

Thank you again to all that helped make #WorldKidneyCancerDay a success! As a reminder, the Emotional Wellbeing Global Symposium is available on YouTube with auto-translated subtitles: www.youtube.com/watch?v=LfO_... We're looking forward to the next #WKCD on 17 June 2027.

What an incredible global response to #WorldKidneyCancerDay 2026. None of it would be possible without the generous support of our industry sponsors. Thank you for your commitment to the global kidney cancer community. #WKCD

We are overwhelmed by the support for the global kidney cancer community on #WorldKidneyCancerDay. (1/3)

We are delighted that @NHS Gloucestershire Urology raised awareness of #kidneycancer today as part of @ikccorg.bsky.social #wkcd26 They had a display in their outpatient department where they shared the emotional wellness questionnaire, along with advising how patients can access support.

@care1project.bsky.social A great pragmatic trial that will improve the capturing of real world patient experience using ePROs, and advanced and more relevant #QoL measurements. #kidneycancer #wkcd

International Kidney Cancer Coalition@ikccorg.bsky.social · 2mo ago

#ResearchInitiativesHighlight: For World Kidney Cancer Day 2026, IKCC wishes to highlight the CARE1 European project. This Pragmatic Clinical Trial is a European phase III multi-centre study of first-line treatment for metastatic kidney cancer. (1/4)

This year’s theme for Kidney Cancer Day from our partners at the @ikccorg.bsky.social reminds us that emotional well-being is an often-overlooked element of patient care. Because behind every diagnosis is a person resiliently navigating uncertainty.

We are grateful to the sponsors and partners who share our commitment to raising awareness for kidney cancer and the emotional burden of living with the disease. Check out the video below featuring Reno and Rina – a kidney love story for #WorldKidneyCancerDay. (1/2)

#ResearchInitiativesHighlight: For World Kidney Cancer Day 2026, IKCC would like to draw attention to the DISCERN Project – Discovering the Causes of Three Poorly Understood Cancers in Europe. (1/4)

#ResearchInitiativesHighlight: For World Kidney Cancer Day 2026, IKCC is proud to promote the COMFORT Project – COMputational Models FOR patienT stratification in urologic cancers – Creating robust and trustworthy multimodal AI for health care. (1/5)

#ResearchInitiativesHighlight: For World Kidney Cancer Day 2026, IKCC wishes to highlight the CARE1 European project. This Pragmatic Clinical Trial is a European phase III multi-centre study of first-line treatment for metastatic kidney cancer. (1/4)

On #WorldKidneyCancerDay, we are thinking about the 85% of kidney cancer patients who experience emotional challenges, according to the 2025 Global Patient Survey on Kidney Cancer. (1/3)

The recording of the #WorldKidneyCancerDay Emotional Wellbeing Global Symposium is now available on YouTube! Watch it with auto-translated subtitles: www.youtube.com/watch?v=LfO_... #WKCD

World Kidney Cancer Day Emotional Wellbeing Global Symposium

YouTube video by International Kidney Cancer Coalition (IKCC)

youtube.com

Two images for #WorldKidneCancerDay #WKCD Before checkpoint inhibitor. During checkpoint inhibitor treatment The Emotional Burden is real. The Quality of Life difference is enormous. Just trying to survive the Side Effects day by day. Mood is fragile at best. Honest. @ikccorg.bsky.social

The 3 Counties Kidney Cancer Group are delighted to support @ikccorg.bsky.social #wkcd26 They offer friendship to families affected by #kidneycancer in Northwest Surrey, Northeast Hampshire and Southwest Berkshire. To find out more about their group: actionkidneycancer.org/help-support...

#ShareYourWeather: How is living with kidney cancer affecting your emotional wellbeing? (1/2)