The Vascular Voice Network has launched it's brand new Vascular Condition Directory 📢 Visit the webpage at vascularvoice.org/vascular-con... to be signposted to trusted sources of information and support 🤝 @aorticdissectct.bsky.social @acta2alliance.bsky.social @marfantrust.bsky.social

#RareDiseaseDay2026 www.vascularvoice.org

www.ppivasc.uk

🎉 The UK Vascular Research PPIE Registry website is live 🎉 We launched today! Visit www.ppivasc.uk for news, links, and opportunities to get involved 😀

UK Vascular Research PPIE Registry

Has a vascular condition affected you or someone in your life? Your voice matters!

ppivasc.uk

Please share the below survey as widely as possible and help us to find out what people really do know about Peripheral Artery Disease 🦵#PADawareness

The #PPI participants who have signed up to the UK Vascular Research PPI Registry have had a busy few months, offering advice and support to vascular studies and wider projects around the nation! See our newsletter below for a taste of their work 🫶 #PADawareness

💚 📣 We've launched the Vascular Voice Network landing page 📣 💚 vascularvoice.org Visit our webpage and join us on our journey to connect organisations and individuals across the wider vascular community 🟢. @acta2alliance.bsky.social @aorticdissectct.bsky.social @ehlersdanlos.bsky.social

Vascular Voice Network

Connecting patients, charities, clinicians, researchers, and system leaders around the shared goal of improving care for people with vascular conditions.

vascularvoice.org

Please share this one page flyer with vascular patients and research participants. Let's keep spreading the word about #PPI in vascular research 🙏

#PPI in vascular research is incredibly important. Patient and public voices improve research study design and the recruitment of study participants. We're always looking for more PPI members to join the UK Vascular Research PPI Registry, so share this video and spread the word 🫶

Five ways to save your legs – by a vascular surgery specialist theconversation.com/five-ways-to...

Five ways to save your legs – by a vascular surgery specialist

Over 3,500 major leg amputations were performed by vascular surgeons in the UK in 2023 – and many were preventable.

theconversation.com

Please see the link below for contact details and the latest news about the UK Vascular Research PPI Registry. Let's spread the word to vascular patients and those who care for them 🗣 cambridgebrc.nihr.ac.uk/public/ppi-o...

PPI opportunities - Cambridge Biomedical Research Centre

This page has the latest PPI training and opportunities for involvement for researchers, patients and the public living in and around Cambridge. Please note that these are external events and the Read...

cambridgebrc.nihr.ac.uk

My first piece for @uk.theconversation.com highlighting the impact of PAD and how we may reduce amputations for those with #CLTI #medsky #vascsky

The Conversation UK@uk.theconversation.com · 2y ago

Peripheral artery disease – the biggest killer you’ve probably never heard of

NHS could save millions from preventable amputations – new data www.channel4.com/news/nhs-cou...

NHS could save millions from preventable amputations – new data

Thousands of lower limb amputations a year could be prevented - according to new research into a condition called peripheral artery disease.

channel4.com

Hello BlueSky people! I've noticed a mass exodus underway from other (somewhat more extreme) social media sites. I thought I'd join the party here 🥂