Julie Rehmeyer
@julierehmeyer.bsky.social
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
The Sick Times does invaluable work on all aspects of Long Covid, ME/CFS, and related diseases. I’m proud to be on their board. Please support them.
The Sick Times@thesicktimes.org · 3w ago🚨🙀‼️: Our summer fundraiser ends tomorrow at midnight and we need your help to cross the finish line! We’re aiming to gain 88 more Supporters. Monthly donors, even at $1 a month, help us in our mission in becoming a more sustainable newsroom.
Big thanks to David Tuller for this interview about my Modern Love piece about Beth Mazur. www.youtube.com/watch?v=DXeR... The essay itself is here: www.nytimes.com/2026/04/03/s...
Interview with Julie Rehmeyer about her NY Times' Modern Love piece
YouTube video by David M Tuller
youtube.com
“I feel like I don’t really exist,” she said, her voice small. Her cognitive dysfunction didn’t show—from the outside, her brilliance still blazed—but that invisibility deepened her frustration. Beautiful and true, essay by @julierehmeyer.bsky.social Gift link: www.nytimes.com/2026/04/03/s... #ME
Putrino Lab@putrinolab.bsky.social · 4mo agoAs usual, @julierehmeyer manages to capture things so beautifully here as she reflects on the loss of her dear friend with #MECFS. The feelings and thoughts so perfectly expressed in this piece by Julie are familiar to so many in the community: so many www.nytimes.com/2026/04/03/s... 1/
»Darf ich mein Leben bei dir beenden?« Die Myalgische Enzephalomyelitis (ME) hatte Beth Mazur »ihre Karriere, ihre Kinderwünsche, das Snowboarden und oft sogar die Kraft zum Aufstehen geraubt. Aber der schlimmste Verlust war ihr brillanter Verstand als Technologieexpertin. 🧵
Ralf Wittenbrink@ralfwittenbrink.bsky.social · 4mo ago»Darf ich mein Leben bei dir beenden?« Die an ME/CFS erkrankte Beth Mazur traf während des Besuchs bei ihrer Freundin Julie Rehmeyer die wohl schwerwiegendste Entscheidung überhaupt. www.nytimes.com/2026/04/03/s...
Over two years ago, the magnificent Beth Mazur ended her life while visiting me. I miss her. www.nytimes.com/2026/04/03/s...
May I End My Life With You?
nytimes.com
6. Through the Shadowlands: A Science Writer’s Odyssey Into an Illness Science Doesn’t Understand, Julie Rehmeyer. @julierehmeyer.bsky.social and I have many of the same health problems, ...
New essay: The environmental story that shaped so many of us — small is beautiful — now collides with the scale the climate crisis actually demands. I wrote about why we need to update our instincts for the world we’re living in now, not the world of 1973. jrehmeyer.substack.com/p/small-is-b...
Small Is Beautiful — But It’s Not Enough
Why our environmental intuitions must evolve for the climate crisis
jrehmeyer.substack.com
Alice Wong taught us that disabled people don’t just leave memories behind—they leave infrastructure. Lineages of care. Methods of collectivity, survival. She named the connective tissue that holds our communities together, even across death, even across the losses that come too fast and too often.
Rachel Riggs has a gorgeous, delicious new cookbook out — and I got to have a really interesting conversation with her about it. It'll help you make wonderful food even when one friend is gluten free and one is dairy free and one doesn't eat nightshades... jrehmeyer.substack.com/p/deliciousn...
Deliciousness, Born from the Fire of Chronic Illness
Rachel Riggs's beautiful new cookbook
jrehmeyer.substack.com
It's election day! I voted by mail a week ago, so I'm celebrating by making calls with @environmentalvoter.bsky.social, the Environmental Voter Project, reaching out to folks who care about the environment but often don't vote. I'm amazed by the impact I can see from it. 1/
ME friends: If you want a way of resisting our terrible national situation, phone banking with the Environmental Project is a great way to go! You can do it in small increments. It's easy, they train you, and it's effective. See details below on how it works.
Julie Rehmeyer@julierehmeyer.bsky.social · 9mo agoI just spent an hour volunteering with the Environmental Voter Project (EVP). It’s one of the most effective, nonpartisan ways I know to pitch in during these dire days. www.environmentalvoter.org
Julie's essay is worth your time. Promise.
Julie Rehmeyer@julierehmeyer.bsky.social · 9mo agoHow do you love something you can’t fix? That question runs through Emily Johnston’s “Loving a Vanishing World”—and through my new essay about illness, climate grief, and the discipline of continuing. jrehmeyer.substack.com/p/two-system...
I just spent an hour volunteering with the Environmental Voter Project (EVP). It’s one of the most effective, nonpartisan ways I know to pitch in during these dire days. www.environmentalvoter.org
How do you love something you can’t fix? That question runs through Emily Johnston’s “Loving a Vanishing World”—and through my new essay about illness, climate grief, and the discipline of continuing. jrehmeyer.substack.com/p/two-system...
Two Systems in Collapse
What illness can teach us about responding to climate change
jrehmeyer.substack.com
Beautiful essay. “‘We cannot expect to feel hopeful, at least not very often, and having any particular hope is likely to end in heartbreak.’… Instead, we practice a kind of hopeless action—we keep trying because trying itself is a form of faith, a muscular type of prayer.“
doomed.xn--its-so0a
Julie Rehmeyer@julierehmeyer.bsky.social · 9mo agoHow do we love what we can't save — a planet, or a body? I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system... #MyalgicE #mecfs #ClimateAction #climatecrisis
How do we love what we can't save — a planet, or a body? I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system... #MyalgicE #mecfs #ClimateAction #climatecrisis
Two Systems in Collapse
What illness can teach us about responding to climate change
jrehmeyer.substack.com
Poignant sequel to Rilke’s poem The Panther by Veronica Ashenhurst who has severe ME/CFS: www.westtrestlereview.com/wtr_septembe...
Rilke's Panther Befriends Me by Veronica Ashenhurst
Now, the cat soars through rooms of sky, roars at stars, and recalls old years of midnight hunts. He springs his unbound will, and comes to condole with me. I can see his paws, claws withdrawn like sw...
westtrestlereview.com
Thanks to @cenmag.bsky.social, @hothousemag.bsky.social, @ksjatmit.bsky.social and @undark.org, @statnews.com, @7homaslin.com and @transjournalists.org, every dollar you give will be matched 1:1 up to $5,5000. Your gift will have twice the impact. 💌 $25 → $50 💌 $50 → $100 💌 $100 → $200
Woohoooooo! TON’s 15th birthday celebration has begun! Please pitch in to support this incredible organization.
The Open Notebook@theopennotebook.bsky.social · 10mo ago15 years ago today, TON began as a simple idea: to improve the craft of science journalism by connecting people and providing freely accessible resources to anyone who wanted them. And for our birthday, we’re asking for your help achieving a big goal: to raise $10,000 by midnight. 🧪 #TON15
It's been a long time since I've been on a podcast. I think this one, Ask the Patient Advocate with Dr. Elena Borrelli, has some interesting tidbits in it, particularly toward the end when I was asked about sources of hope. shows.acast.com/660d7e37088d...
Living with the ME/CFS, Long COVID, and the Power of Advocacy with Julie Rehmeyer | Ask The Patient Advocate
shows.acast.com
Pretty darn cool to get a shoutout from @billmckibben, one of my heroes! billmckibben.substack.com/p/the-stupid.... This is for my piece on how a dying coal plant sparked New Mexico's ambitious climate law — and created a blueprint other states can follow. jrehmeyer.substack.com/p/how-a-dyin...
The Stupidest Speech in UN History
Everyone's saying so!
billmckibben.substack.com
It seemed impossible: New Mexico — poor, bluish-purple, oil-and-gas-heavy — passed a clean energy law more ambitious than almost any other state had achieved. Not only that, it did so with broad bipartisan support. The catalyst? A dying coal plant. jrehmeyer.substack.com/p/how-a-dyin...
How a Dying Coal Plant Sparked New Mexico’s Ambitious Climate Law — and What Other States Can Learn
New Mexico's Energy Transition Act
jrehmeyer.substack.com
Generalized joint hypermobility, and especially extreme joint hypermobility, greatly increase the risk of Long Covid: bmjpublichealth.bmj.com/content/3/2/...
Variant connective tissue as a risk factor for long COVID: a case-control study of data from a retrospective online survey of adults in the USA and UK
Introduction This study explored the extent to which two measures of joint hypermobility, a marker of variant connective tissue, predict the development of long COVID after COVID-19 infection, and whe...
bmjpublichealth.bmj.com
We’ve had Evie the EV now for almost a week — and wow we really love her, even more than I expected. What I didn’t anticipate was how significant the smoothness and quiet would be. It feels like you’re just gliding along. John and I enthuse to one another each time we drive her.
If you're tempted to take advantage of the exceptional deals available on EVs right now that are weirdly hard to find, here are a couple of resources that will help you track them down: jrehmeyer.substack.com/p/a-hodge-po...
Paid subscriptions, audio, EV resources, oh my!
Accepting paid subscriptions; an audio version of "So What the Heck Are Colleges Supposed to Do in the Age of AI?"; and a couple of EV resources
jrehmeyer.substack.com
