Start with a research question. Leave with a clearer path to analysis. The Kids First Portal helps researchers search harmonized pediatric data, explore clinical details, identify cohorts, and send authorized files to CAVATICA. Explore the portal: https://monkeylink.co/d3c6ee
Gabriella Miller Kids First Data Resource Center
@kidsfirstdrc.bsky.social
The Gabriella Miller Kids First Data Resource Center (Kids First DRC) is a collaborative pediatric research effort with a goal to understand the genetic causes and links between childhood cancer and congenital disorders. Learn more: linktr.ee/kidsfirstdrc
Every discovery begins with a thread: a question, dataset, or perspective that helps researchers see differently. On Sept. 17, see Kids First researchers build and share #CAVATICA tools, then hear from #NIH leaders guiding the program. https://monkeylink.co/b397cb #KidsFirstDRC #PediatricResearch
New to Kids First? We’ve got your back. Join our free monthly SupportU session—a guided intro to the ecosystem, data access, and tools to get you started. 🗓️ First Tuesday @ 10 a.m. ET 🔗 https://monkeylink.co/e37791 #KidsFirstData #ResearchSupport #PediatricResearch #OpenScience
Kids First supports the infrastructure researchers need to move pediatric research from idea to analysis, with connected data, shared tools, and cloud-based resources that help teams work across institutions. Learn more: https://monkeylink.co/5605fc
Over the past decade, #NIH and #CDC institutes invested $240M in research using Kids First data, advancing new studies, tools, and insights across childhood cancer and congenital conditions. #KidsFirstData #TranslationalResearch
Want to stay connected to pediatric research powered by shared data? Sign up for Kids First updates to hear about upcoming webinars, new resources, publications, funding opportunities, and tools that help researchers move discovery forward. Join the community: https://monkeylink.co/5fda8c
When Dana Maier searched for answers about her son’s rare condition, #KidsFirst data helped her see a fuller picture and advocate with greater confidence. Read how one parent turned connected data into support for an entire community: https://monkeylink.co/985f0d #SitusFoundation
Explore the Children's Brain Tumor Network study in the #KidsFirstData Resource Portal. With genomic data from ~8,000 patients, this dataset helps researchers study childhood brain tumors and accelerate data-driven discovery. #WorldBrainDay View the study: https://monkeylink.co/1252cb
Stuck mid-project? Come to MasterClass — our free, monthly live Q&A for deeper dives and real solutions. 🗓️ Third Thursday @ 2 p.m. ET 🔗 https://monkeylink.co/e37791 #KidsFirstData #ResearchSupport #PediatricResearch #OpenScience
Rare pediatric conditions are harder to understand with only part of the picture. Through the Kids First Data Resource Portal, researchers can connect data across childhood cancer and congenital disorders, uncover patterns, and move closer to answers. Explore the portal: https://monkeylink.co/d3c6ee
Across Kids First awardee publications, 90% connected to real-world care questions, from diagnosis and genetics to risk and treatment. Many addressed multiple areas, showing how Kids First-supported research helps build clearer answers for children. #KidsFirstData
New to Kids First? We’ve got your back. Join our free monthly SupportU session—a guided intro to the ecosystem, data access, and tools to get you started. 🗓️ First Tuesday @ 10 a.m. ET 🔗 https://monkeylink.co/e37791 #KidsFirstData #ResearchSupport #PediatricResearch #OpenScience
Kids First supports research across pediatric cancer and congenital conditions, including studies that help researchers better understand the genetic origins of conditions affecting the head, face, and development. #CleftCraniofacialAwarenessMonth #NCCAPM
The Kids First ecosystem keeps moving all summer. New datasets, publications, and discoveries across pediatric cancer and rare disease research. Stay current: https://monkeylink.co/5fda8c #KidsFirstDRC
Survival is not the finish line. Research using Kids First data is examining the long-term effects of childhood cancer treatment, so the next generation of survivors lives better, not just longer. See the work that's been happening: https://monkeylink.co/ace4f0 #KidsFirstDRC
Stuck mid-project? Come to MasterClass — our free, monthly live Q&A for deeper dives and real solutions. 🗓️ Third Thursday @ 2 p.m. ET 🔗 https://monkeylink.co/e37791 #KidsFirstData #ResearchSupport #PediatricResearch #OpenScience
Today we honor every child who made it through, and the families, researchers, and clinicians who refused to stop until more of them could. #CancerSurvivorsDay #KidsFirstDRC
Scoliosis affects 3% of adolescents and is mostly inherited, yet its genetic causes remain largely unknown. #KidsFirst whole genome sequencing data is helping researchers find answers. Explore: https://monkeylink.co/d3c6ee #ScoliosisAwarenessMonth
The faster you can analyze data, the faster discovery follows. New tools from The Turner Lab, led by tycheleturner at #WashU, are on #CAVATICA. Streamline how researchers analyze #KidsFirstData and help them turn discovery into insight faster. Explore how: https://monkeylink.co/7b09d7
New to Kids First? We’ve got your back. Join our free monthly SupportU session—a guided intro to the ecosystem, data access, and tools to get you started. 🗓️ First Tuesday @ 10 a.m. ET 🔗 https://monkeylink.co/e37791 #KidsFirstData #ResearchSupport #PediatricResearch #OpenScience
New datasets, findings, and collaborations are moving through the Kids First ecosystem this month. Stay current with the research. Subscribe: https://monkeylink.co/5fda8c #KidsFirstDRC
Missed the live session? You can still catch the momentum. Watch how Kids First data accelerates discovery and brings us closer to answers for children and families. Catch the insightful webinar recording: https://monkeylink.co/dcc0a3
Stuck mid-project? Come to MasterClass — our free, monthly live Q&A for deeper dives and real solutions. 🗓️ Third Thursday @ 2 p.m. ET 🔗 https://monkeylink.co/e37791 #KidsFirstData #ResearchSupport #PediatricResearch #OpenScience
Using #KidsFirstData, Children's Hospital of Philadelphia researchers are expanding a study that already uncovered 250+ new gene discoveries to 1,000+ pediatric cancer cases. Learn about the project: https://monkeylink.co/054d97 #KidsFirstDRC #PediatricCancer
The Next Wave webinar starts soon. See you at 12 p.m. EST. Get on board here: https://monkeylink.co/fce9f9
Dive into what’s new in the #KidsFirstPortal! Dr. David Higgins highlights how innovative Kids First tools help researchers turn data into insights – and insights into impact – faster than ever. Ride the next wave of discovery May 13: https://monkeylink.co/fce9f9
Kids First data expert David Higgins shares insights at two upcoming #CFDE training events: 📅 Omics Open House | May 14 https://rebrand.ly/khmyhro 📅 DeCoDE Institute: Introduction to Omics and CFDE Resources | June 4 Session https://monkeylink.co/5ac0fc
This Mother’s Day, we remember childhood cancer advocate Gabriella Miller and the determination of her mother, Ellyn. A mother’s love helped launch the Kids First program, and her persistence helped pass the Gabriella Miller Kids First Research Act 2.0.
Hear the latest update from NIH Kids First Program Manager Dr. Marcia Fournier. Discover how this robust genomic data ecosystem drives progress, bringing new hope to patient families. Ride the next wave of discovery May 13: https://monkeylink.co/fce9f9
New to Kids First? We’ve got your back. Join our free monthly SupportU session—a guided intro to the ecosystem, data access, and tools to get you started. 🗓️ First Tuesday @ 10 a.m. ET 🔗 https://monkeylink.co/e37791 #KidsFirstData #ResearchSupport #PediatricResearch #OpenScience