The Lily Foundation are celebrating a MAJOR milestone in mitochondrial research.🚨 As a named partner, Lily are proud to be investing directly in FIVE PhD studentships. To read more click here - https://www.thelilyfoundation.org.uk/news/lily-celebrates-major-investment-in-future-scientists/

The Lily Foundation are proud to feature in Raremap – a brand new directory of rare disease organisations What a brilliant resource to drive progress for those living with rare conditions Find out more: https://raremap.co.uk/ #RareDisease #MitochondrialDisease #Raremap #MitoAware LifeArc

Home - Raremap

Your guide to the rare disease research ecosystem in the UK Raremap has been created to help you find out more about the organisations in the UK rare disease ecosystem, what they do and how they interact with each other. Categories of organisations, groups and networks There are many different groups and organisations all involved […]

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Happy National Friendship Day! 🩷 Today, we're celebrating the incredible friendships that have grown through The Lily Foundation. Learn more about our Family Support Weekend ⬇️🩷 https://www.thelilyfoundation.org.uk/affected-by-mito/here-to-help/family-weekend/

🚨 HUGE NEWS! Peter Kay has just announced 9 NEW tour dates – and profits will be split equally between 3 charities, including The Lily Foundation! 💙🎟️ Tickets go on sale this Friday 31st July at 10:00 AM. Thank you, Peter! 🙌 https://ow.ly/1qJC50Zu5yR #PeterKay #MitoAware

PETER KAY LIVE 2026

ALL PROFITS FOR CANCER CHARITIES. VISIT PETERKAY.CO.UK/CHARITIES FOR DETAILS

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Run the 10th anniversary London Landmarks Half Marathon with Team Lily in 2027!🏃‍♀️✨ Join Team Lily for an unforgettable 13.1-mile journey through the heart of London and help support children and families affected by mitochondrial disease. https://ow.ly/YoNG50Z79jE

🚨 1 in 17 people will be affected by a rare disease, but only 5% have an approved treatment Please take our short survey and help shape Lily’s response on the future of mitochondrial disease treatments https://ow.ly/RqR350ZoPji #MitochondrialDisease #RareDisease #Research #PatientVoice

🧠 How can 'mini brains' help unlock the mysteries of mitochondrial disease? Read more about this fascinating research via the link ⬇️ https://www.thelilyfoundation.org.uk/affected-by-mito/our-research/research-zone/how-mini-brains-are-helping-scientists-study-mitochondrial-disease/

Join Cure EB's Butterfly Run and make every step count! 🦋🩷 Sign up today, rally your team, and help us bring hope to those living with mitochondrial disease. 🤩 https://www.thelilyfoundation.org.uk/charity/get-involved/events/butterfly-run-2026/

Tee off for a great cause at the Lily Golf Day 2026! ⛳ Gather your team and join us for a fantastic day of golf, fundraising and friendly competition at the beautiful Croham Hurst Golf Course in Surrey, proudly sponsored by Skyform. https://ow.ly/apNz50ZhxZ7

Run the 10th anniversary London Landmarks Half Marathon with Team Lily in 2027!🏃‍♀️✨ Join Team Lily for an unforgettable 13.1-mile journey through the heart of London and help support children and families affected by mitochondrial disease. https://ow.ly/YoNG50Z79jE

We're delighted to welcome Arantxa to The Lily Foundation as our new Public and Patient Involvement and Engagement (PPIE) Manager! Please join us in giving Arantxa a warm welcome! 🩷 To read more about Arantxa click here ⬇️ https://ow.ly/xgf650Zl00v

A very special celebration for the beautiful Bethany! 🩷 We couldn't let this wonderful milestone pass without celebrating the incredible Bethany, who recently attended her school prom – and doesn't she look absolutely stunning! ✨

We want to say a huge thank you to Skyform for sponsoring our wonderful Croham Hurst Golf Day! ⛳ Interested in getting involved with this fantastic event? Click the link below to learn more about our sponsorship opportunities. Join us - https://ow.ly/W1ha50ZghVK

We are always so grateful to the clinical teams who give their time so generously to support our Lily Family Weekend. 🩺 Your time and kindness make a real difference. #mitochondrialdisease #mito

One leap. One decision. One brave moment!!☁️✈️ This summer, challenge yourself and take the leap for The Lily Foundation, tick it off your bucket list and help change lives. Ready for the ultimate adrenaline rush? Sign up today - https://ow.ly/bCwn50Z78uy

Run the 10th anniversary London Landmarks Half Marathon with Team Lily in 2027!🏃‍♀️ Join Team Lily for an unforgettable 13.1-mile journey through the heart of London and help support children and families affected by mitochondrial disease. Sign up today! https://ow.ly/9JF350Z4Lzj

Science, smiles and special connections at our Lily Family Weekend. 💗🔬 It was wonderful to bring families, clinicians, researchers and early career scientists together to share knowledge, ask questions and explore the science behind mitochondrial disease. #science #raredisease

The Lily Foundation Family Weekend 2026!🩷 Our Family Weekend is always a special event in the Lily calendar. It’s a chance for families to connect with others who can understand living with mitochondrial disease. To find out more visit - https://www.thelilyfoundation.org.uk/

Run the Bath Half for The Lily Foundation 🏃‍♀️ This year, places must be secured through general admission, so you’ll need to be FAST to grab your spot! Sign up today and run for something bigger than the finish line.🩷 https://ow.ly/y8kf50Z29la

We were honoured to attend Euromit 2026. We feel incredibly fortunate to have been part of such an inspiring event, working alongside researchers, clinicians, advocates and families who are all committed in their fight against mito. https://ow.ly/2Yj150ZcEP9

Run the Manchester Marathon 2027 with Team Lily! 🏃 Sign up today through our partner, Run for Charity, and once you’re registered, we’ll support you every step of the way! 🩷 - https://ow.ly/e0p250Z4Ii0

One leap. One decision. One brave moment!!☁️✈️ This summer, challenge yourself and take the leap for The Lily Foundation, tick it off your bucket list and help change lives. Sign up today and be part of something incredible. https://ow.ly/1eNv50YRFxu

Huge congratulations to Matt and Team Matilda for completing the Yorkshire Three Peaks Challenge and raising an incredible £1,905 for The Lily Foundation!⛰️ Feeling inspired? Why not take on a challenge of your own? ⬇️ https://ow.ly/uNk050Z8IN6

Run the 10th anniversary London Landmarks Half Marathon with Team Lily in 2027!🏃‍♀️ Join Team Lily for an unforgettable 13.1-mile journey through the heart of London and help support children and families affected by mitochondrial disease. Sign up today! https://ow.ly/9JF350Z4Lzj

Join us for Parallel Windsor 2026! It's the most accessible, sensory-friendly, and inclusive event! With no cut-off times, it’s not about speed – it’s about inclusion, community and achieving your personal goal. Who’s joining us?! 🤩 https://ow.ly/vAf050YIMRN

Run the Bath Half for The Lily Foundation 🏃‍♀️ Places for this year’s event are available through general entry, so you’ll need to be quick to secure your spot! Sign up today and run for something bigger than the finish line.🩷 https://ow.ly/aiEW50Z2bJh

Euromit 2029 is coming to Newcastle! Following a successful bid led by Prof Laura Greaves & UK colleagues, Newcastle Mitochondrial Research Group will host Europe’s leading mitochondrial meeting. The Lily Foundation is proud to support the organising committee & help shape the patient programme.

Our CEO Liz Curtis spoke to xtalks.com recently about The Lily Foundation’s strategy to transform mitochondrial disease research and our long-term vision for the UK Mitochondrial Disease Research Institute. Read the full interview 👇 https://ow.ly/Wz1G50Z7vEw

The Lily Foundation’s Strategy to Transform Mitochondrial Disease Research

Learn how The Lily Foundation is driving progress in mitochondrial disease research through patient registries and more.

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📅 Mark your calendars – 16 June 2026 Join us for the next webinar in our series: an informal yet informative session exploring the journey to diagnosing mitochondrial disease. To find out more - https://ow.ly/wC8L50Z4Jiq

Lily Golf Day 2026! ⛳☀️ Wow, what an amazing day, and the weather to match! We had an absolute blast and are so grateful to everyone who attended and helped make the day such a success.💚⛳ Find a Lily Event today - https://www.thelilyfoundation.org.uk/charity/get-involved/events/