Liver UK

@liveruk.bsky.social

Liver UK is the new name for the British Liver Trust and Children's Liver Disease Foundation. The UK's leading liver health charity.

A new study has given patients unprecedented influence over the future of cirrhosis research, setting out a new agenda that experts say could transform care. We're calling for these findings to be acted on, and to prioritise research that reflects the needs of patients: https://ow.ly/XsUL50Zu6gW

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It is with the heaviest of hearts that we share the news that Katie Mulholland, an amazing young woman who was an incredible supporter of our charity in many ways passed away on Friday. We are privileged to have known her and send our deepest sympathy to her family and her fiancé Keelan 💗

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If you are in the Manchester area, our next support group for adults affected by liver disease is on 6/8 10am-noon, at Wythenshawe Forum, M22 5RX. Email outreach@liveruk.org if you'd like to come along. Not in Manchester? We have other face to face and online groups: https://ow.ly/nyE650Zscp8

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Alagille syndrome is a rare genetic condition which occurs in around 1 in 30,000 births. It mainly affects the liver but can also affect other parts of the body. Read more about how it is diagnosed and treated, and its implications for those affected: https://ow.ly/vG9x50ZrQE4

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It's just two weeks until we head to Sheffield for the British Transplant Games and we're looking forward to seeing as many of you as possible. It's our first outing as Liver UK so we're very excited! Comment below if you're planning to be there and we'll look out for you 😊

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Lucy was very unwell after being diagnosed with autoimmune hepatitis aged just 19 – it took 3 years to find a medication that worked. She also struggled emotionally and was angry at her body for taking away the life she had imagined for herself. https://ow.ly/tu0b50ZqP7E

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We're really pleased to be at Parliament today, we're speaking with MPs about our campaigns, including our calls to make sure that liver disease is diagnosed early, with measures in place in every health body across the UK.

Do you live in Dorset, Hampshire or the Isle of Wight and would you be happy to share your experience of liver disease with the media to help raise awareness of the launch of Liver UK and the support we offer to people affected by liver disease? Please message us if you can help.

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The Met Office has issued an amber extreme heat warning until at least Thursday 25th June. The high temperatures and sun’s UV rays can put us at risk of short and long-term health problems. Read our top tips on how to stay safe during hot weather. https://ow.ly/pMST50ZfAS1

Top tips to stay safe during extreme summer temperatures - British Liver Trust

The Met Office has issued an amber extreme heat warning for southern and eastern England and south …

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Join us in congratulating Irene Clarke who has been awarded the British Empire Medal in the King's Birthday Honours for her services to fundraising and to the local community. We're delighted to see her recognised in this way. Well done Irene!👏 👏

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