Researchers at Leiden University Center for Infectious Diseases are studying the worldwide impact of UTIs, and your experience matters. ✅ Any gender, anywhere ✅ 18+ years old ✅ Experienced ≥1 UTI as an adult 🔗Find the survey link in our bio. #bladdersmatter #stigma #patientperspective
LUF
@liveutifree.bsky.social
Patient research organization specializing in: 🧬 Underserved and under-diagnosed female health issues 💊 Clinical trial recruitment 🔬 Research design, ethics, logistics 👥 PPIE Our links: liveutifree.com/faq
Listen to our latest podcast episode where Melissa speaks with Dr. Kiren Gill and Dr. Harry Horsley about extended antibiotic treatment for chronic UTI, and the EAT-UP Trial https://open.spotify.com/episode/4d9T7fuAHG9glAb1jP4Pab?si=c172216bc8044c0d
Molly talks to Jenna Perkins, RN, WHNP-BC about the impact of the pelvic floor muscles on one's bladder health, as well as overlapping symptoms and other pelvic health conditions. Watch the full video on our YouTube channel: https://youtu.be/CxbSlQPQnLg
Patients, caregivers, or parents with UTI diagnostic testing experience: UW researchers want your input to redesign the process. Complete two 15-min surveys & sign up for focus groups. Link in bio. #utitesting #diagnostics #liveutifree
Is Uromune effective for Recurrent & Chronic UTI? Bob Yang, Consultant Urologist, FRCS Urol, joins Melissa Kramer to discuss how he uses Uromune in his urology practice and what the latest research indicates about its efficacy. Watch now: https://youtu.be/SPT9TUL43UY #utisky #liveutifree
The latest interview in our Clinician Insight Series is live! Molly talks to Leah Posthuma, MD and Aubree Ng about their approach to UTI testing and the importance of understanding a person's story. Watch the full video on our YouTube channel: https://www.youtube.com/watch?v=FuKyHSKTBhU
Listen to our latest podcast episode where Melissa speaks with Julia Anditsch about all things chronic UTI prevention, including real patient experiences. https://open.spotify.com/episode/4G0IiJT207lZQ3qwFNa5oB?si=cb54b95bb6424882uti #dmannose #podcast
Help break the stigma of recurrent UTIs. 🌍 Join the Leiden University global study to share your experience via a 10-min survey. 🔗https://forms.office.com/Pages/ResponsePage.aspx?id=T4wExFTdvUyASVRXqs0vuBxB1tXO98ZJhriESO55RmtUNkNRVko0WDQ4TE45MTc2MVNRVEUyTDhaSy4u #RecurrentUTI #BladdersMatter
The latest interview in our Clinician Insight Series is live! Molly talks to Dr Nicholas Faure Walker about the challenges patients with recurrent UTI typically face, as well as overlapping symptoms with other health conditions. Watch the full video: https://youtu.be/vkQVUuca4m4
Did you know that MicroGenDX Europe launched in 2025 to provide better access and faster turnaround times for patients in the EU and surrounding countries? Standard UTI tests often miss the microbes driving persistent infections. Read the full article:
MicroGenDX Europe: Advanced DNA-Based UTI Testing | Live UTI Free | LUF
Did you know that MicroGenDX Europe launched in 2025 to provide better access and faster turnaround times for patients in the EU and surrounding countries? Why is better access to urinary tract infection testing so important? Urinary tr ...
liveutifree.com
Listen to our latest podcast episode where Professor Jenny Rohn talks about negative UTI tests and the novel antibiotic treatment she has developed. Link: https://open.spotify.com/episode/3ca4IyPSs0SvD7hZi97oi8?si=541c894b9420434f
Can long-term infection in the uterus contribute to endometriosis, and is it connected to urinary symptoms? Christine Metz, PhD, discusses the latest research on endometriosis, and how menstrual blood could be the key to unlocking better diagnostics. Watch now: https://youtu.be/rQyw2AOVZWw
Listen to our latest podcast episode where Dr. Aparna Taylor talks about stress, the nervous system, inflammation, gut health and chronic UTI symptoms. Link: https://open.spotify.com/episode/59BX1owreZ3AKPvf3BYeqF?si=1vAVOlVxQjysEGEeyaUPRQ
Do biofilm disruptors work? Dr. Jennifer Kerr, ND, joined Melissa Kramer for an interview to discuss her use of biofilm disruptors in treatment approaches for chronic UTI. Watch now: https://youtu.be/H9SqDLvf7mg #chronicuti #biofilms #recurrentuti #utisky
Dr. Jennifer Kerr, ND, joined Melissa Kramer for an interview to discuss how biofilms form in the bladder, why they are so hard to treat, and how she diagnoses chronic UTI in her clinical practice. Watch now: https://youtu.be/2_aDsrqMVeY #chronicuti #biofilms #recurrentuti #utisky
New UTI Clinical Trial: 'EAT-UP Trial, are longer courses of treatment dose antibiotics combined with methenamine hippurate more effective treatment at reducing levels of infection and symptoms than standard care. Watch now: https://youtu.be/D-YV9GR6peA #chronicuti #clinicaltrial #iveutifree
Listen to our latest podcast episode where Dr. Pamela Cipriano talks about mold toxicity, chronic bladder symptoms, and how mold can affect the immune system and irritate the bladder. Listen Now: https://open.spotify.com/episode/1ZAsf7dLeMxJiqeHpx6b4q?si=WnpOfqemTq2Y9hFQsCL4Fw
Have you heard about the Alliance for Patient-Centred UTI Research? @chronicutiaustralia, @cuticuk, @letstalkuti (US), and @liveutifree This week is about sharing UTI experiences, and we'd love to hear yours, so get in touch with any of our organisations! #utistories #womenshealth #utiresearch
Listen to our latest podcast ep: Dr. Maria Uloko shares ground-breaking insights from her research, talking about how misdiagnosis and knowledge gaps in medicine are impacting people with chronic UTI and vulvar pain. https://open.spotify.com/episode/2OPMiyZTpNk8SZ1hTPotEN?si=u2LVxJx0TFOKDxPcExTfkQ
Why is the immune system response to UTI likely one of the reasons that chronic urinary tract infection occurs? Dr. Malcolm Starkey joined Melissa Kramer for an interview to share his research. Watch now: https://youtu.be/LUADMg3KIqU #liveutifree #bladdersmatter #chronicuti
How did the standard urine culture become the test used globally for UTI, and why is it so flawed? Dr. Malcolm Starkey joins Melissa Kramer to share insights about the current state of UTI testing and how his research aims to change patient outcomes. Watch: https://youtu.be/jtWOTqOGBOc
Talking about the impact of UTIs on sexual wellbeing and relationships isn't always easy. But it does matter, and researchers need to understand lived experiences. If you're willing to share your experience, you can find the study here: https://redcap.link/v4ck1yls
Dr. Henry Schreiber explores UTIs as a whole‑body problem, shares insights on how the gut may serve as a reservoir for UTI‑causing bacteria, inflammation, and why we need better diagnostics and treatments. Listen Now. https://open.spotify.com/episode/5Udm3L8Pv2tNaW2iygAkuU?si=epVkh-H9SDevLZ-7ONk0tw
Bladder cancer is linked to prolonged inflammation, and catheters cause inflammation, is there a simple way to reduce this risk while also minimizing the risk of catheter-associated UTIs? Dr. Ana Flores-Mireles @afloresmireles.bsky.social joined us to share her research.https://youtu.be/AC2xddCqu7Y
We've developed two new tools to enable patients to self-report their perspective on recurrent UTI-going beyond the insights that clinical tests provide to clinicians. We're looking for interview participants with recurrent UTI experience. https://uor-redcap.reading.ac.uk/surveys/?s=4PW9T3NFHXYKCDPL
It’s not too late to join a clinical trial for a potential new UTI vaccine! Research is underway in the US, Argentina, Belgium, South Africa, and Spain. Learn more and find a research site near you: https://f.mtr.cool/bozbgbeuvx
Why do catheters increase the risk of UTI? Dr. Ana Flores-Mireles @afloresmireles.bsky.social joined Melissa Kramer for an interview to share how her own scientific discoveries could lead to long term solutions for patients who are catheterized. Watch now: https://f.mtr.cool/ikdehrkthw
Could chronic pain symptoms be a nervous system issue rather than infection? Or both? In this interview, Kate Waters discusses regulating the nervous system to help alleviate chronic urinary symptoms. Watch now: https://youtu.be/0pbUXvwYKE0 #liveutifree #bladdersmatter #diet #nutrition
What role does diet play in UTI prevention and management? In this interview, Kate Waters discusses why it's important to look at microbiome health holistically in the context of recurrent or chronic urinary tract infections, and in general. Watch now: https://youtu.be/E1oQz2o7gMo #liveutifree
A clinical trial for a potential new UTI vaccine is underway. Eligible volunteers in the US, Argentina, Belgium, South Africa, and Spain can participate. Learn more about how you can join the study: https://liveutifree.com/uti-vaccine-clinical-trial/