Thankyou @patientlibrary.bsky.social for all your past newsletters and analysis. V sorry "That's all"! It is to be regretted that no-one has provided funding for your work. #Patients are at the heart of the NHS, they matter and #patientexperience can be illuminating and lead to +ve change.
Lyme Disease Action
@lymediseaseaction.org.uk
The longest established UK charity working on Lyme disease and associated tick-borne diseases. Accredited to the PIF Tick UK quality mark for trustworthy information. www.lymediseaseaction.org.uk
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This is just "lab-confirmed acute"; does not include * those with the characteristic rash not needing a test * those late diagnosed by NHS lab test * a missed diagnosis - symptoms can be confusing. Summer 'flu? Check it out www.lymediseaseaction.org.uk
Lyme Disease Action — Lyme Disease Action: The longest established UK charity working on Lyme disease and tick-borne diseases. Accredited to the UK quality mark PIF Tick for trustworthy information.
lymediseaseaction.org.uk
SW counties of England have the highest no. of confirmed #Lymedisease cases per population www.bbc.co.uk/news/article... If you live or go on holiday to the SW be aware! The ticks are a lot smaller than the BBC image suggests! @ukhsasouthwest.bsky.social
This is the reality of what a tick looks like to you. Would you spot it on your wrist? Best test, when feeling a small scab, is to use your fingers to see if it rocks back and forth. If yes, then get your tick remover!
SW counties of England have the highest no. of confirmed #Lymedisease cases per population www.bbc.co.uk/news/article... If you live or go on holiday to the SW be aware! The ticks are a lot smaller than the BBC image suggests! @ukhsasouthwest.bsky.social
South West highest risk for tick bites and Lyme disease - report
A 2025 report confirmed there were 281 laboratory-confirmed acute Lyme disease cases in the region.
bbc.co.uk
You do not want to contract #Lymedisease. Do you have a defence plan? www.lymediseaseaction.org.uk/what-we-are-...
Cooler weather and the #ticks are out looking for a meal. You won't feel them attach and they'll stay until you remove them. See how they cling! www.lymediseaseaction.org.uk/wp-content/u...
lymediseaseaction.org.uk
European #Tick-Borne Disease 2026- preliminary programme published. www.etbd.eu Anyone from @ukhsa.bsky.social or @hpruezi.bsky.social going? We need to find out about current research, and start collaborations, as #TBDs on the rise in the UK.
ETBD
etbd.eu
Thankyou @adamjamesdance.bsky.social for questioning Dept of Health re cases of #Lymedisease in #Somerset. NB their answer (cases not up over the last 7 years) is misleading as that only applies to what is classified as lab confirmed acute cases. www.theyworkforyou.com/wrans/?id=20...
Lyme Disease
Department of Health and Social Care written question – answered at 9 June 2026
theyworkforyou.com
2 trustees back from #NordTick2026, now have to write up a summary. Many interesting talks & posters. Always good to meet researchers, clinicians & patient orgs we only see at international conferences. Notable how #TBE & #Neoehrlichia are growing topics yet to be major problem in UK.
Printed poster from brill @SciencePosters: easy to pack for #NordTick 2026 next week. Hope for good discussions to inform UK research which seems not to respond to need #ticks - yes; #Lyme -not apparent @hpruezi.bsky.social Can Europe help? @francelyme.bsky.social @tekenbeetziekten.bsky.social
Lyme disease: what #pharmacists need to know when someone asks them about "this funny rash". www.thepharmacist.co.uk/clinical/vac... @pcpa-uk.bsky.social @drzoewaller.bsky.social @clairewynn.bsky.social
Lyme disease: what pharmacists need to know
Lyme disease is the most common vector-borne disease in the northern hemisphere, yet it remains frequently missed or misdiagnosed...
thepharmacist.co.uk
If you know you get #ticks attaching to you and you need some protection, why not try a repellent. Plant based, effective and easy to use. www.lymediseaseaction.org.uk/what-we-are-...
New figures on #Lyme disease cases highlights the rise in "longstanding" Lyme. @UKHSA says may be previous disease, not active. But these people had test because of illness. Want #PIFTick accredited info on this? www.lymediseaseaction.org.uk/about-lyme/c... @theguardian.com
Highest no of cases in the SW and SE, as in previous years. Awareness is needed as we move to peak tick activity. @forestresearchuk.bsky.social @royalforestrysoc.bsky.social @dartmoorac.bsky.social @newforestcommoner.bsky.social
🌿🦠 Our first One Health surveillance report of vector-borne diseases (VBD) in England shows: 📊 Lyme disease remains the most common VBD 🦟 Emerging mosquito threats are increasing across Europe While risk to the public remains low, taking precautions matters Read full report https://bit.ly/3Py2hFy
Treating patients as partners, to contribute a new important perspective, is much more effective than simply using patients to tick a box. But how to make the change?!
Patient Partnership Week is back for 2026! Together patients, professionals and policymakers will explore a simple but powerful idea: healthcare works best when patients are treated as partners. Take a look at our events and sign up, more to follow! #PPW2026 buff.ly/bKnMBsz
This is for syphilis. Note single dose #doxycycline also found to be successful in preventing #Lyme borreliosis following a tick bite. www.journalofinfection.com/article/S016... Maybe worth it in areas of high infection in ticks, though that's few places in the UK.
A single dose of doxycycline after an ixodes ricinus tick bite to prevent Lyme borreliosis: An open-label randomized controlled trial
Lyme borreliosis is the most prevalent tick-borne disease in the northern hemisphere.1 Over the last decades, marked increases in the incidence of Lyme borreliosis have been reported in several Wester...
journalofinfection.com
The @ukhsa.bsky.social DoxyPEP monitoring framework is now out. Grateful to have had the opportunity to contribute to this as part of my @nihr.bsky.social Professorship & looking forward to working with colleagues on these studies over the coming years.
As it's in the top 10, here's hoping it has raised awareness. A bit horrifying that only 42% English survey responders would have prescribed doxycycline at the right dose. But maybe when faced with a case now, they would consult @nicecomms.bsky.social. Have to hope!
Congratulations to HPRU-EZI's Lucy Delaney and co-authors, whose paper is in the top 10 of BJGP Open's Most Read Research Articles of 2025! doi.org/10.3399/BJGP...
If you shop online, you can help us raise funds for #research into #Lyme disease using @easyfundraising.bsky.social - it costs you zero as the retailer donates on your behalf. Over 8,000 retailers will donate incl Booking.com, eBay, M&S and more. Visit: www.easyfundraising.org.uk/causes/lyme-...
You spend, brands donate to Lyme Disease Action.
Help us when you shop with 7,000+ brands. Join now.
easyfundraising.org.uk
Easter holidays, get out and about and enjoy the Spring! But don't forget to check for #ticks after your #walking #camping trip! @theroyalparks.bsky.social @ramblersscotland.bsky.social If you want any posters for noticeboards, just ask us and we can send.
Whose health matters in the countryside? During #TickBitePreventionWeek we’re exploring ticks, tick-borne diseases and the links between human, animal and environmental health. @lymediseaseaction.org.uk explains the One Health approach: c-js.uk/3Otu3lM
Just to remind you - #ticks are beginning to get more active. If you work or exercise in garden, woodland, even town park, it might be worth a refresher. How do you spot them? and then remove them? www.lymediseaseaction.org.uk
Lyme Disease Action — Lyme Disease Action: The longest established UK charity working on Lyme disease and tick-borne diseases. Accredited to the UK quality mark PIF Tick for trustworthy information.
lymediseaseaction.org.uk
Pain Cafes are free to join across #Somerset to help you to have a better quality of life despite long-term pain. Find your nearest group: bit.ly/PainCafeSome... Mandy, our Engagement Officer, will be at Community Pain Hub on 10 Feb 1pm-3pm, Priorswood Community Centre, Taunton. #LiveWellWithPain
Pain Cafes in Somerset - Our Somerset
Learning to Live with Pain in Somerset Find support for learning to live well with pain. Pain Café are running now across Somerset. To join one, you must be registered with the relevant GP in the area...
bit.ly
Thanks! We do not know much about the micro-ecology of vectors&reservoirs (Lyme). Using his-res vegetation does not work: researchers collected the tick at low res. for many years (eg. 1 km. res.). We need high-res records and data. Also, the lack of homogeneous data for hunting, conservation, etc.
Fascinating and with surprising UK results, though we notice the careful word "tendency"! Thank you for the work and glad you enjoyed it. The other factors such as nature conservation may be more difficult to analyse as I guess data harder to come by.
The main point when you are semi-retired is the spare time to explore what is still seating in your mind. I've enjoyed exploring this. A tipping point of climate in Europe, around half 1980's, could govern the trend of spread of Ixodes ricinus in parts of the continent. rdcu.be/e2Jwm 🧪
You may have noticed that it has been a little bit wet recently ☔ This shouldn't stop you from getting out into the parks to connect with nature, especially as it is one of the best things we can do for our physical and emotional wellbeing 🙌 Find out more by reading on below 🔽
The best nature walks in London
A selection of the best nature walks in London for you to enjoy
royalparks.org.uk
Approach your GP carefully if worrying about #Lyme disease. They know there is a lot of poor info on the internet, so stick to facts and have a look here first www.lymediseaseaction.org.uk/resources/se...
Self Help | Lyme Disease Action
lymediseaseaction.org.uk
Most GP appointments are just 10 minutes long. That doesn't give you much time to explain your symptoms, get a diagnosis, discuss treatment and get your questions answered. Check out our tips for getting the most out of your appointment - https://bit.ly/3NqsR25
Gosh - all those familiar faces who helped us from May 2010 all the way through to publication in Jan 2013! Huge thanks to you all for keeping going and growing and strengthening the JLA to where you are now.
📢What's new on the JLA website? In our latest blog post we share the early history of the James Lind Alliance (JLA) and how it has grown into the initiative that it has become today. 🌐Check it out here:
Pain systems in the brain light up when people are rejected. Would this amplify pain of people with post treatment #Lyme disease? They are rejected, not investigated & not even considered to have a real problem. @liverpooluni.bsky.social seems to have abandoned the area. @benedictneuro.bsky.social
1 in 5 people are experiencing pain, and in the UK over 34% of adults regularly experience chronic pain. @benedictneuro.bsky.social and Prof. Michelle Briggs @lincneurosci.bsky.social discuss on the latest episode of Original Ideas 🧠💡🎙️▶️ liverpool.ac.uk/research/original-ideas/neuroscienceandpain/