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The #LymeDisease community's leading source for news, insight and advocacy. Publisher of The Lyme Times, creator of MyLymeData. A 501(c)(3) organization. Tick-Borne Diseases, Infection Associated Chronic Conditions #IACC, #OneHealth
LymeDisease.org represents you—the Lyme patient and your loved ones. Your support powers everything we do for patients and families. Support the organization that supports you. DONATE before December 31st to be tax-deductible this year. www.lymedisease.org/donate-2/
💚Honor Someone You Love This Holiday Season💚 This time of year reminds us how deeply our loved ones shape our lives—those who walk beside us and those we carry in our hearts. 🎁 Make a tribute gift today: www.lymedisease.org/donate-honor/
Growing evidence suggests that Alzheimer’s disease may be shaped not only by age and genetics, but by the immune system’s long-term memory of previous infections. READ MORE www.lymedisease.org/infections-m...
PATHOBIOME PERSPECTIVES: Past infections may rewire the brain and shape Alzheimer’s risk | LymeDisease.org
By Ali Moresco Growing evidence suggests that Alzheimer’s disease may be shaped not only by age and genetics, but by the immune system’s long-term memory
lymedisease.org
If you want to watch a replay of the HHS Lyme Roundtable meeting, read a summary, or browse the transcript, we've got you covered. READ MORE: www.lymedisease.org/summary-tran...
Video, written summary, and transcript of HHS Lyme Roundtable session | LymeDisease.org
Click here to watch the replay of the meeting on YouTube. The following summary and transcript were generated by a machine transcription service and may
lymedisease.org
HHS Secretary RFK Jr. shared a reality this community has long known: research has been underfunded and misunderstood for decades, leaving families without answers. "Patients wait day after day, year after year." READ MORE www.lymedisease.org/lyme-roundta...
HHS Lyme Disease Roundtable brings cautious hope | LymeDisease.org
By Ali Moresco This week, I attended the HHS Lyme Disease Roundtable hosted by HHS Secretary Robert F. Kennedy Jr. Walking into the room, I’ll be honest:
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HHS Secretary Robert F. Kennedy Jr. convened a long‑awaited roundtable on Lyme disease. The event brought together patients, clinicians, and researchers in Washington, D.C., while a national (and international) audience tuned in live via YouTube. READ MORE www.lymedisease.org/hhs-roundtab...
Does HHS Lyme roundtable signal a new era for patients? | LymeDisease.org
On December 15, Health and Human Services Secretary Robert F. Kennedy Jr. convened a long‑awaited roundtable on Lyme disease. The event brought together
lymedisease.org
A New Hampshire family’s battle with tick‑borne illness inspired this young woman to use her platform to spotlight prevention and education. READ MORE www.lymedisease.org/sophia-sarge...
Miss New Hampshire Volunteer 2026 shares her family’s fight against Lyme | LymeDisease.org
By Sophia Sargent My family’s journey with Lyme and other tick-borne diseases has been anything but straightforward. We faced crisis after crisis,
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For decades, patients with neurological Lyme symptoms have been told their struggles were “stress” or “anxiety.” Now, groundbreaking research reveals how Bartonella can infiltrate the brain’s own immune cells. This disrupts hundreds of genes. READ MORE www.lymedisease.org/bartonella-b...
PATHOBIOME PERSPECTIVES: How Bartonella hijacks the brain’s immune system | LymeDisease.org
By Ali Moresco For decades, patients with persistent neurological symptoms have been told their illness is “stress,” “anxiety,” or “unexplained.” Now,
lymedisease.org
An amendment from New Jersey Congressman Chris Smith has cleared the House as part of the Fiscal Year 2026 defense bill. It directs the US GAO to investigate whether Cold War‑era military bioweapons programs used ticks to spread Lyme disease. READ MORE www.lymedisease.org/lyme-bioweap...
Lyme bioweapon amendment by Chris Smith passes House | LymeDisease.org
An amendment authored by New Jersey Congressman Chris Smith to investigate whether the U.S. military weaponized ticks with Lyme disease has been included
lymedisease.org
A session entitled Invisible Illness — Leading the Way with Lyme Disease will discuss federal priorities for Lyme disease and related chronic conditions. You can watch it live on YouTube via HHS Gov READ MORE www.lymedisease.org/hhs-lyme-rou...
RFK Jr. to lead Lyme disease roundtable on December 15 | LymeDisease.org
The U.S. Department of Health and Human Services (HHS) has announced a roundtable discussion titled Invisible Illness — Leading the Way with Lyme Disease,
lymedisease.org
Many Lyme patients complete rigorous treatment yet remain unable to heal. In this podcast, naturopath and author Dr. Melanie Stein explains why this can happen--and what to do about it. READ MORE www.lymedisease.org/why-lyme-rec...
PODCAST: Why Lyme recovery stalls — and how healing can restart | LymeDisease.org
By Fred Diamond Many Lyme survivors have told me about their journey to discover the root cause of their inability to heal from chronic Lyme disease. Most
lymedisease.org
Cognitive decline, mood changes, memory loss. Nicole Bell’s powerful story reveals how hidden infections and toxic exposures can shape devastating neurological conditions. READ MORE www.lymedisease.org/pathobiome-h...
PATHOBIOME PERSPECTIVES: Borrelia, Bartonella & Babesia in the Brain | LymeDisease.org
By Ali Moresco For years, people living with Lyme disease and other infection-associated chronic illnesses have reported cognitive decline, mood changes,
lymedisease.org
A team from Georgia used CRISPR technology to design new ways to detect and treat Lyme. Their breakthrough earned honors at an international competition and a spotlight on 60 Minutes. READ MORE www.lymedisease.org/georgia-teen...
Georgia high schoolers are using CRISPR to tackle Lyme disease | LymeDisease.org
Although Lyme disease is the most common vector‑borne illness in the United States, it remains one of the hardest to diagnose and treat. That’s why I was
lymedisease.org
Brain fog isn’t just frustrating. It may hold clues... In this interview, Dr. Sean Miller discusses how infections like COVID‑19 and Lyme disease can accelerate Alzheimer’s‑like damage, and how the retina could provide a window into early detection. READ MORE www.lymedisease.org/do-eyes-hold...
PATHOBIOME PERSPECTIVES: Do your eyes hold the key to brain fog? | LymeDisease.org
Pathobiome Perspectives is an interview series exploring the role of infections in chronic neurological and psychiatric conditions—including Alzheimer’s,
lymedisease.org
This year, we’re rallying support for MyLymeData, one of the largest patient-driven Lyme research projects in the world. If MyLymeData has helped you—or if you believe in the power of patient-centered research—please consider supporting us on #GivingTuesday DONATE: www.lymedisease.org/donate-2/
On Thanksgiving we pause with gratitude for the incredible strength, resilience, and compassion within the Lyme community. Whether you are a patient, caregiver, advocate, researcher, or supporter, you are the heart of this movement. 💚
The 2025 MyLymeData Research Chartbook is here, capturing insights from over 19,000 patients who shared their Lyme disease experiences. This milestone report distills 10 years of patient-led research into powerful visuals and key findings. LEARN MORE www.lymedisease.org/mylymedata-2...
2025 Research Chart Book Released | LymeDisease.org
This year marks a major milestone for the MyLymeData patient registry—our 10th anniversary. To celebrate, we’re publishing the MyLymeData 2025 Research Chartbook—a visual summary of a decade of ground...
lymedisease.org
The 2025 MyLymeData Research Chartbook is here, capturing insights from over 19,000 patients who shared their Lyme disease experiences. This milestone report distills 10 years of patient-led research into powerful visuals and key findings. LEARN MORE www.lymedisease.org/mylymedata-2...
2025 Research Chart Book Released | LymeDisease.org
This year marks a major milestone for the MyLymeData patient registry—our 10th anniversary. To celebrate, we’re publishing the MyLymeData 2025 Research Chartbook—a visual summary of a decade of ground...
lymedisease.org
What does chronic Lyme really feel like? For many, it’s confusion, disbelief, and a level of illness that defies explanation. That’s why Lyme survivor and advocate Jesse Ruben wrote “Monster”—a raw anthem born in the middle of his own crisis. READ MORE www.lymedisease.org/podcast-does...
PODCAST: “Doesn’t It Kill You?” — the Lyme lyric that stops a room cold | LymeDisease.org
By Fred Diamond If you’ve ever struggled to explain what chronic Lyme disease really feels like with the confusion, the disappearing health, the disbelief
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In this interview, Dr. Brian Balin discusses how microbes like Lyme, Bartonella, and Chlamydia pneumoniae have been found in Alzheimer’s brain tissue—and what this means for millions living with chronic illness. READ MORE www.lymedisease.org/lyme-may-tri...
PATHOBIOME PERSPECTIVES: How microbes like Lyme may trigger Alzheimer’s | LymeDisease.org
Pathobiome Perspectives is an interview series exploring the role of infections in chronic neurological and psychiatric conditions—including Alzheimer’s,
lymedisease.org
After 41 years of caring for patients, Dr. Richard Horowitz is closing his clinical practice. More than 22 advocacy groups across the U.S. recently came together to honor Dr. Horowitz with a Lifetime Achievement Award. READ MORE: www.lymedisease.org/advocates-ho...
A tick bite when she was six set off a chain of symptoms that went misunderstood for years. This eventually led to neurological and psychiatric struggles that nearly cost her everything. In her book Revival, she talks about the long road to recovery. READ MORE www.lymedisease.org/kaitlyn-olei...
A new study found that 92% of youth diagnosed with bipolar disorder in a Lyme-endemic area showed signs of tick-borne infections. These findings raise urgent questions about how we diagnose and treat psychiatric symptoms. READ MORE www.lymedisease.org/child-psychi...
Could an infection be driving your child’s psychiatric symptoms? | LymeDisease.org
In the Lyme world, these stories surface again and again. A child who was thriving suddenly shifts—mood swings, anxiety, trouble focusing, even
lymedisease.org
Dr. Melanie Stein’s journey from sudden paralysis to lasting recovery led her to uncover a deeper root cause of chronic illness—and a new path to healing. Here she shares the approach that helped her reclaim her health when nothing else worked. READ MORE www.lymedisease.org/morning-i-co...
PATHOBIOME PERSPECTIVES: New interview series, hosted by patient advocate Ali Moresco, premiers Tuesday, Nov. 11. LEARN MORE: www.lymedisease.org/pathobiome-p...
PATHOBIOME PERSPECTIVES: New interview series premiers Nov. 11 | LymeDisease.org
The AlzPI and PCOM Symposium is an annual interdisciplinary event focused on exploring the role of infections and the microbiome in chronic neurological
lymedisease.org
Want to stay in the loop on Lyme? Our FREE weekly newsletter brings you fresh stories, expert insights, and the latest news—all in one easy read. Get the November 8 edition here: conta.cc/3LxFh73
The 2025 MyLymeData Research Chartbook is here, capturing insights from over 19,000 patients who shared their Lyme disease experiences. This milestone report distills 10 years of patient-led research into powerful visuals and key findings. LEARN MORE: www.lymedisease.org/mylymedata-2...
2025 Research Chart Book Released | LymeDisease.org
This year marks a major milestone for the MyLymeData patient registry—our 10th anniversary. To celebrate, we’re publishing the MyLymeData 2025 Research Chartbook—a visual summary of a decade of ground...
lymedisease.org
For Isabel Rose, what began as a carefree childhood leap into a leaf pile became the start of a medical nightmare. Read her account of how a tick bite at age 8 led to decades of misdiagnosis and chronic illness. READ MORE www.lymedisease.org/a-mothers-st...
A mother's story: the nightmare in the leaf pile | LymeDisease.org
When many people see a big, beautiful pile of colorful autumn leaves, it feels like an open invitation to dive in. The scene evokes joy, nostalgia, and
lymedisease.org
Looking for connection, understanding, or just someone who gets it? Our online patient support group is a welcoming space where Lyme patients can share experiences, ask questions, and find encouragement from others who truly understand the journey. READ MORE www.lymedisease.org/lyme-disease...
