If you are a sponsor, funder, regulator or policymaker, how patient engagement works in practice can offer valuable insight for future collaboration, guidance and support. Explore regional perspectives at the PEOF session: patientengagement.synapseconnect.org/events/from-...

Patient engagement should be measured not by how often it happens, but by what changes because of it. Join Hayley Chapman and Maddalena Benivento at Measuring Patient Engagement Europe for insights on patient experience data, practical metrics and ESG reporting. 15–17 Sept.

Patient insight should shape investment decisions long before a product reaches the market. At #ISPOR2026, Hayley Chapman will explore how patient insight can strengthen investment decisions, reduce uncertainty and shape more relevant innovation.  Learn more: tinyurl.com/3xm9r852

What happens to a patient’s voice once they are in the room? Is it heard, considered and acted on? Join PEOF+ on 15 Sept to explore what meaningful patient engagement looks like across regions and what happens when patient voices truly shape clinical research: tinyurl.com/49pwtydw

PFMD is working to make patient engagement more systematic, connected and impactful — bringing communities together and helping transform the healthcare ecosystem. Explore the strategy behind this approach to improving global health: patientfocusedmedicine.org/mission-and-...

Missed the latest PEOF face-to-face? The July Newsletter brings you session resources, community updates and what’s next for PEOF. Subscribe and stay connected: share-eu1.hsforms.com/1cjAlVbfuQPS... And keep an eye out for what’s coming on 15 September!

The strongest infrastructure behind patient engagement isn’t a framework or platform. It’s the community building it together - patients, advocates, researchers, clinicians, regulators, HTA bodies and industry. Explore PFMD’s 10-Year Impact Report: patientfocusedmedicine.org/pfmd-report/

Patient engagement is moving from conversation to implementation. Our June newsletter captured the ideas, collaborations, and milestones shaping that shift. Subscribe for monthly insights from across the global patient engagement community: share-eu1.hsforms.com/1cjAlVbfuQPS...

What happens after patients share their experiences? The new PE–PEI visual map shows how patient perspectives evolve into data, evidence & intelligence that inform healthcare decisions. Follow the journey from patient voice to impact: patientengagement.synapseconnect.org/resources/th...

Patient perspectives are increasingly shaping regulatory and HTA decisions. The new PE–PEI visual map provides a shared framework to connect engagement, data, evidence and intelligence, supporting greater clarity and consistency. patientengagement.synapseconnect.org/resources/th...

Six terms. One shared framework.  The new PE–PEI visual map clarifies how patient perspectives evolve from engagement to evidence and intelligence, helping industry teams build a common language and strengthen patient-centred medicines development. tinyurl.com/4v9j99bp

We’ve proven patient engagement works. Now comes the harder part: making it consistent, sustainable and system-wide. From pockets of excellence → to universal standard. The next decade is about scale. See what’s been built and what comes next: lnkd.in/e2yV8Gir

If we want to improve outcomes in rare diseases, we need to understand more than the disease itself. Join us on 25 June to explore what patients need after diagnosis and how more patient-centred approaches can strengthen support, engagement, and care. Register here: tinyurl.com/4vpyvfw4

Clinicians & healthcare professionals: We know patient empowerment matters and support tools exist. So why aren't they consistently embedded into care? Join us on 25 June to explore practical ways to strengthen patient engagement and shared decision-making in rare disease care. tinyurl.com/4vpyvfw4

A rare disease diagnosis doesn't automatically make care decisions easier. If you've ever felt unsure what to ask, how to prepare for appointments, or how to make your voice heard, join us on 25 June for a discussion on navigating life after diagnosis. 👉 Register here: tinyurl.com/4vpyvfw4

18000 screened through mobile cancer clinics 174000+ connected to hepatitis care 300+ children shaping paediatric healthcare experiences Congratulations to Made Patients Awards 2026 awardees who made these numbers a reality, reshaping healthcare systems in practice. tinyurl.com/2ehfsu22

Proud to announce the awardees of the Made with Patients Awards 2026, celebrating the changemakers driving this shift globally. From clinical trial design & AI oversight to national health conversations, patients are increasingly shaping decisions across healthcare. tinyurl.com/2ehfsu22

Congratulations to Laura Kavanagh, recipient of the Hall of Fame recognition at the Made with Patients Awards 2026. Her work has helped advance patient partnership across research, innovation, and healthcare in Ireland and beyond. tinyurl.com/2ehfsu22

A new generation of patient engagement leaders is reshaping healthcare decision-making, and Linxi Mytkolli is right at the centre of that shift. Congratulations to the Rising Star awardee at the Made with Patients Awards 2026. Read more: tinyurl.com/2ehfsu22

For a community of 25 million young adults with chronic conditions, Sneha Dave is shifting the paradigm from storytelling to systemic reform. Sneha wins the Jury Special Award at the MwPA 2026 for tackling clinical trial integrity, patent reform, and digital health frontiers tinyurl.com/2ehfsu22

Rare diseases affect 300M globally yet many remain unseen. That’s exactly what Ritu Jain has spent years working to change. Huge congrats to Ritu for winning Jury Special Award at the MWPA 2026 for championing rare disease advocacy & inclusion across South & SE Asia. tinyurl.com/2ehfsu22

An effective healthcare system requires turning patients into strategic protagonists. Catherine Moura has spent 20 years proving exactly that. Catherine wins the Jury Special Award at the Made with Patients Awards 2026 for reshaping public health policy across Brazil and LAC. tinyurl.com/2ehfsu22

"There is no power for change greater than a community discovering what it cares about." Congrats to StITCH for winning Best Overall Initiative at #MadeWithPatients2026! Over 180,000 screened and care delays slashed from months to 5 days across Vietnam and the Philippines. tinyurl.com/2ehfsu22

256 patient groups engaged globally 27% trial protocols reshaped by patients 443 initiatives co-created Congrats to Unite4Rare (Sobi), winner of the Systematic Meaningful Patient Engagement Award at the MWPA 2026 for shifting healthcare to true shared governance tinyurl.com/2ehfsu22

A huge round of applause to PRIDD by GlobalSkin, winner of the Systematic Meaningful Patient Engagement Award at the Made With Patients Awards 2026. Built with patients at every step, PRIDD is a milestone for patient-centred dermatology research. tinyurl.com/2ehfsu22

A huge congratulations to ACT NOW: Access to Cancer Treatment Now for winning the Systematic Meaningful Patient Engagement Award at the Made With Patients Awards 2026. From mobile screenings to patient navigation, the initiative is transforming cancer care across Philippines. tinyurl.com/2ehfsu22

Here's to celebrating the winner of Best Tools Implementation Award at MWPA2026, Little Journey, for redesigning a hospital experience through a child’s eyes. Co-designed with 300+ kids, it cut anxiety by 39% and slashed unplanned admissions by 67%. tinyurl.com/2ehfsu22

Moving systems change in healthcare takes a village. Real change happens when patients, regulators, researchers, and industry challenge assumptions, exchange perspectives, and co-create together over time. PEOF is building a connected, actionable, and sustainable ecosystem: shorturl.at/rwHcp

What does it actually take for AI to enter clinical practice responsibly? In Part 3 of her series, Leanne West explores the systems, safeguards, and human oversight behind AI in healthcare and why it should support clinicians, not replace them. patientengagement.synapseconnect.org/resources/fr...

From Algorithms to Care: How AI Enters Clinical Practice

From Algorithms to Care: How AI Enters Clinical Practice

patientengagement.synapseconnect.org

Patient voices → Shared knowledge → Collective action → Systemic change Synapse is mapping the global patient engagement ecosystem: 10,700+ experts 2,900+ organizations 1,000+ initiatives Making collaboration, visibility, and healthcare transformation easier. patientengagement.synapseconnect.org