When the next 75 years start with the impact you’ve already made 🙏 Families got answers. Kids built independence. Caregivers felt supported. Research & advocacy moved forward. We can’t thank you enough. 💙💛 #ForwardTogether #MDA75
Muscular Dystrophy Association
@mda.org
MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
Inspired by his uncle and cousin who lived with muscular dystrophy, Zack has volunteered at MDA Summer Camp for the last 14 years. He says the community gives him strength, but it’s his commitment that makes us stronger. Thank you, Zack! 💙💛 #ForwardTogether #MDA75 #MDAVolunteer
The 2026 #MDAconference agenda is LIVE! 🧬Join global leaders in #neuromuscular research, care & advocacy March 8-11 in Orlando FL. View tracks, speakers & sessions: www.mda.org/press-releas... #NeuromuscularResearch #GeneticMedicine #RareDisease #ClinicalCare
This year, thousands of families found answers, care & hope because of you. From research to camp memories, your support goes beyond numbers — it changes lives. 💙💛 #ForwardTogether #MDA75
💪 “Being strong is showing up and giving my all—even when I face challenges.” – Brayden, MDA Ambassador This Sept, discover what it means to be #MDAstrong. Donate $35.75+ & get our 75th anniversary tee: www.mda.org/Strong What makes you strong? mda.org/MDAstrong
BREAKING NEWS: MDA and Parent Project Muscular Dystrophy have published new Consensus Guidelines to help standardize #GeneTherapy delivery for #Duchenne #MuscularDystrophy. Read the release ➡️ www.mda.org/press-releas...
Muscular Dystrophy Association and Parent Project Muscular Dystrophy Announce Joint Consensus Guidelines for Safe and Equitable Delivery of Gene Therapy in Duchenne Muscular Dystrophy | Muscular Dystr...
Guidelines to standardize care, enhance safety monitoring, and promote equitable access to transformative treatments. New York, Saturday, August 23, 2025 — The Muscular Dystrophy Association (MDA) and...
mda.org
🚨 Registration is OPEN! 🚨 Join us March 8–11, 2026 in Orlando for the #MDAConference, the leading global event for neuromuscular care & research. 🌍🧬 🔗 Register now: www.mdaconference.org #MDA #MuscularDystrophy #neuromuscular
MDA Statement to our Community: www.mda.org/press-releas...
Muscular Dystrophy Association Statement to our Community | Muscular Dystrophy Association
New York – Friday, July 18, 2025 – We are heartbroken by the recent loss of an MDA community member in a gene therapy trial for limb-girdle muscular dystrophy (LGMD). Our deepest condolences go out to...
mda.org
How do you raise the standard of care? You make it law. Thanks to the MD-Care Act, more people with neuromuscular disease now have access to the care they need. Join us in making an impact: MDA75.org. 💙💛 #MDA75 #MuscularDystrophy #ALS #Neuromuscular
Dr. Jeni Stepanek calls herself a welcome mat. But not because she is walked on - because she invites others in and celebrates their stories. Stories defined by purpose and potential. Watch her story and share yours at #75YearsStrong! 💙💛 #MDA75 #MuscularDystrophy #Neuromuscular
We are proud of what MDA advocates have accomplished over the past six months. We know many in our community are feeling anxious or uncertain about what comes next. Join us July 15 @ 7PM ET for a special MDA Advocacy Institute: Medicaid and the Path Forward.
Congress has passed legislation that makes historic cuts to #Medicaid, #Medicare, and #ACA, & it could leave 17M more uninsured, including those w/ #neuromuscular diseases. #MDA is disappointed, and we pledge to defend our community. Read the full statement: www.mda.org/press-releas...
Today, the U.S. Senate passed a bill making devastating cuts to Medicaid & other health programs that the #neuromuscular community relies on to build healthy lives & independence. Urge the House to reject this bill & its cuts NOW! Read #MDA's statement: www.mda.org/press-releas...
🚨 NEW: MDA + FARA are co-funding a $300K research grant to study cardiac fibrosis in Friedreich’s ataxia (FA), a key cause of heart failure in FA. This study could lead to life-changing therapies. 🔗 www.mda.org/press-releas... #FriedreichsAtaxia #CardiacResearch #FAresearch #Neuromuscular
Today, MDA & 41 neuromuscular disease organizations sent a letter to the U.S. Senate leadership rejecting cuts to #Medicaid and affordable health insurance coverage/services used by the #neuromuscular community - raising costs, imposing red tape, and delaying care.
In 1986, Dr. Lou Kunkel cracked the genetic code of dystrophin, the gene behind Duchenne and Becker muscular dystrophies. This breakthrough paved the way for lifesaving treatments and gene therapies that are transforming lives today. 💛💙 Donate today: MDA75.org
Sometimes, going the distance for others starts by going the distance yourself. Literally. See how disability advocate & travel blogger Cory Lee helps others see the world—and share your own story at #75YearsStrong! 💙💛 #75YearsStrong #MDA75 #MuscularDystrophy #Neuromuscular #Travel #Adventure
📺 One nation, one mission. In 1971, the first national MDA Telethon hit the airwaves—bringing America together to fight neuromuscular disease. Millions watched, donated, and changed lives. 💙 Be part of the next historic moment. Donate today: MDA75.org 💛 #MDA75 #ALS #MuscularDystrophy
ALS influencer Brooke Eby’s perspective? You can endure anything if you make it funny. See how she’s tackling ALS and share your own story! 💙💛 #MDA75 #EndALSwithMDA #EndALS #ALS #MuscularDystrophy #Neuromuscular #ALSawarenessMonth #75YearsStrong
🌟 Not even muscular dystrophy could stop country musician Bradley Walker from becoming a star. Watch his story of hope and share yours at #75YearsStrong. 💙💛 #75YearsStrong #MDA75 #MuscularDystrophy #ALS #Neuromuscular
Summer fun can change the world. Just ask #MDA Camp Counselor Devin Jensen. His work with campers living with neuromuscular disease has changed their lives —and changed his too. Watch his story and share yours! 💙💛 #75YearsStrong #MDA75 #SummerCamp #MuscularDystrophy #Neuromuscular
In 1953, the first MDA Care Centers opened—transforming life with neuromuscular disease forever. Today, our impact spans 150+ centers nationwide—helping families every day. Be part of the next breakthrough. Donate today: MDA75.org 💙💛 #HealthcareHeroes #MDA75 #ALS #MuscularDystrophy
When hope wasn't enough, they took action. In just two months, these unstoppable families changed the future of #neuromuscular disease forever. The first breakthrough in our 75-year journey that defined MDA. Donate now at MDA75.org. 💙💛 #MDA75 #ALS #MuscularDystrophy
75 years of hope, progress, & action 💙💛 #MDA’s new PSA, Legacy. Impact. Momentum., celebrates the families, researchers, clinicians, advocates, volunteers, donors, & partners who’ve shaped the fight against #neuromuscular disease. 🎥 Watch the PSA: www.mda.org/press-releas... MDA75.org #MDA75