If you can, please send in your comments. This is important for all people living with disabilities! www.facebook.com/groups/20923...?
MECFS Clinic MN
@mecfsclinicmn.bsky.social
We are a free clinic staffed by all volunteers to treat ME/CFS and Long COVID.
Today a tornado hit 90 miles NW of Milwaukee. I hope those of you living in the affected area or have loved ones there are safe. I know the world feels a bit crazy at times, and unwell at other times. We hope to support you all as much as the clinic is able because we are a community.
I am sorry to hear about the shooting that happened yesterday in Seattle. My condolences to all of you who live or know of someone in Seattle, Washington state.
Remember that wildfire smokes can cause cancer abd strain your heart abd lungs. Use MERV 13 or HEPA filters at home to remove them. #wildfiresmokes
MECFS Clinic MN has earned the 2026 Gold Quality Standard awarded by The National Association of Free & Charitable Clinics. Thank you for all your support allowing us to reach this prestigious status.
Please join me to welcome our newest volunteer Perrin Practitioner, Audrey Chan. She comes with an immense depth of knowledge. "I want to support people living with debilitating diseases, e.g. ME/CFS, with limited resources and help them regain self-care abilities."
I appreciate your long wait. After a month of technical difficulties and editing work, the recordings of the Rooted in Hope Concert is ready. You can find a one-minute concert highlight video, as well as the concert recording on the clinic YouTube Channel. www.youtube.com/@MECFSClinicMN Enjoy!
Our ME and Long COVID communities have a Holistic Nurse Coach. Please reach out to Tessi if she can be of any help to you. www.nourishandflowcoaching.com
Nourish and Flow Coaching | Holistic Nurse Coaching
Holistic nurse coaching and consulting for whole-person wellbeing. Reclaim your health, build aligned rhythms, and create a life that loves you back.
nourishandflowcoaching.com
Today is our #MillionsMissing Day to tell the world that you are still struggling with ME/CFS. You are too exhausted to eat, bath, cook, see your families or friends, work, etc. We hear you, are in solidarity with you, and will continue to advocate for you.
Let’s kick off the next project of our free clinic. We will host a virtual conference for providers and therapists to identify, diagnose and treat ME/CFS in their respective areas of practice. The speakers will share practical tips when caring for people with ME/CFS.
Rooted in Hope Concert photos are available. Hi-Res and Web sized downloads are available for free and custom prints/books can be made via the shop within the gallery. clients.diamondlakeproductions.com/4DpymHLJK6Ank
MECFS Concert 2026
Diamond Lake Productions,MECFS Concert 2026,
clients.diamondlakeproductions.com
Folks, did you enjoy the concert? KSTP channel 5 in MN will report this Rooted in Hope Concert on their evening news TONIGHT at 5:30 and 6 pm, something like that. Stay tuned. Thank you Billy Hanlon, KSTP and Renee Cooper for bringing awareness of these misunderstood diseases to the world!
Folks, the concert live stream is changed to Zoom. zoom.us/j/94600798921
Join our Cloud HD Video Meeting
Zoom is the leader in modern enterprise cloud communications.
zoom.us
Rooted in Hope Concet is today! You can tune in on our YouTube channel starting at 1:30 pm central time. The concert starts at 2 pm. www.youtube.com/@MECFSClinicMN Remember to check out the silent auction. The auction is from 1 to 4 pm today. givebutter.com/c/qFCf8j/auction
Rooted in Hope Charity Concert
Raise awareness of ME/CFS, long COVID, chronic Lyme disease
givebutter.com
Your Rooted in Hope Concert and the silent auction are coming this Sunday. We have gift cards/certificates from Costco, Berlin restaurant, Circus Juventus, UMN Mindfulness course, and private golf and pilates lessons for you to bid. Check them out. givebutter.com/c/qFCf8j/auc...
Check out all our silent auction items. That includes a $100 gift card donated by COSTCO! They called me yesterday and approved my donation request! Rooted in Hope Charity Concert share.google/8BrCF3aZMnQI...
Rooted in Hope Charity Concert
Raise awareness of ME/CFS, long COVID, chronic Lyme disease
share.google
Free ME/CFS books and DVDs for pick-up in person at the Rooted in Hope Concert next Sunday in Minneapolis, 1 to 4 pm. We can also mail them to you. Just contact me at care@mecfsclinicmn.org. After the concert, all unclaimed items will be donated to a local library.
JUST IN. A 96% accurate test for ME/CFS. The test does not sound as simple to do nor cheap to run at this time. It is a step in the right direction. www.uea.ac.uk/about/news/a... #mecfs #longcovid
Revolutionary blood test for ME / Chronic Fatigue unveiled
Scientists at the University of East Anglia have developed a high accuracy blood test to diagnose Chronic Fatigue Syndrome, also known as Myalgic Encephalomyelitis (ME/CFS).
uea.ac.uk
Scientifists found the lymphatic drainage in the human brain! May be #thePerrinTechnique is not a hoax, after all. share.google/qeiHTxuSax3N... #mecfs #longcovid
Scientists just found a hidden “drain” inside the human brain
A hidden waste-removal pathway in the brain has finally been caught in action. Using cutting-edge MRI scans, researchers discovered that fluid flows along the middle meningeal artery in a slow, lymphatic-like pattern—very different from blood. This confirms the presence of a previously unknown drainage hub in humans. The finding could transform how scientists approach brain aging, injury, and diseases like Alzheimer’s.
share.google
Dr. Perrin will be available this Saturday from 2-4 pm to answer your questions virtually or in person in Minneapolis. Everyone is welcome. You do not need to be a medical professional to attend. For all virtual attendees, please send me your questions ASAP. mecfsclinicmn.org/perrin-q-a
Events
https://www.mecfsclinicmn.org/Dr. Perrin's Q&A
mecfsclinicmn.org
After a whirlwind week, Dr. Perrin trained 46 new practitioners from Montana, Arkansas, Tennessee, Georgia, Oklahoma, Wisconsin, Illinois, Iowa, Minnesota, Indiana, Utah, Kansas, Florida, Pennsylvania, California, Hawaii, Louisiana and Alberta, Canada! Thank you for spreading the words!
We are about 2 weeks away from Dr. Perrin’s Q&A. Do you have any questions for him? You can find the video link here: www.mecfsclinicmn.org/perrin-q-a #ThePerrinTechnique #MECFS #longcovid
A sensory-friendly concet for everyone affected by ME/CFS, long COVIDand chronic Lyme. Tickets are free (suggested donation $15 to $50)!!!!
Hi everyone, I am organizing a live and virtual Q&A/book signing event for Dr. Perrin in Minneapolis on March 21, 2026. Lay people and practitioners are all welcome to join. Please share. Join Zoom Meeting zoom.us/j/9570060192... Meeting ID: 957 0060 1926 Passcode: 131896
A randomized controlled trial of the Perrin self treatment, prelude to the bigger multi-center trial starting in 2026! link.springer.com/content/pdf/...
link.springer.com
Folks, we have the first corporate sponsor of our Rooted in Hope charity concert for ME/CFS and Long COVID! Alotapilates has been a bigger supporter of our clinic. Their coaches are good in preventing injury. They offer virtual classes. Use them when your ME is better. www.alotapilates.com
Alotapilates - Pilates Studio in St. Louis Park, MN
Looking for Pilates near you? Alotapilates in Minnesota offers private Pilates sessions and group classes (mat and equipment classes) to help you move better and feel stronger. Experience the best Pil...
alotapilates.com
Free food for pick up or deliver to your home. Community Aid Network MN share.google/C324yvbkmnAU...
Community Aid Network MN
Community Aid Network MN (CANMN) is a Mutual Aid Site Located in the Whittier Neighborhood in Minneapolis, Minnesota. Receive. Donate. Volunteer.
share.google
Ron Davis et al published a paper suggesting that glymphatic dysregulation contributes to ME/CFS. Can you believe that? Exciting! Another nod to The Perrin Technique! www.mdpi.com/1422-0067/26...
mdpi.com