Last month Paul Choat stood at the summit of Schiehallion and bagged his final Munro, marking the end of a five-year challenge in honour of his Dad, David. David had been living with MND, and died just 15 peaks short of bagging all 282 Munros himself.
My Name'5 Doddie Foundation
@mndoddie5.bsky.social
Our vision: a world free of MND 💙💛
“For as long as I can, I’ll continue to support the Foundation.” 💙💛 Driven by personal connections to Doddie and MND, Anthony has completed three 100km Ultra Challenges for us. His ongoing support is helping fund vital research into the disease. Read here: www.myname5doddie.co.uk/news-and-sto...
In the first half of 2026 alone, we have committed £1.8 million to four new MND research projects, which will help identify and test promising therapeutic targets and support the development of new treatments for MND. Full details here: www.myname5doddie.co.uk/news-and-sto...
Despite living with bulbar MND, Mo continues to do what she loves most – dance. Her loyal dancing community are an incredible support system and together, they’ve helped raise £11,200 for MND research 💙💛
🎉 We’ve passed the AMRC @amrc-uk.bsky.social Expert Review Audit! Meeting AMRC's six principles of expert review confirms that we use robust and rigorous research funding processes, helping us to fund the best research.
Today to mark Doddie's 56th birthday, we're reflecting on hope in the research landscape and what we are doing to accelerate progress. Together, with your help, we're carrying Doddie's legacy forward. Read 'How close are we to a cure?' below 👇 www.myname5doddie.co.uk/news-and-sto...
Congratulations to the one and only Rob Wainwright on receiving his OBE today in recognition of the millions he has helped raise for charity 👏 From leading on the pitch to leading the charge on fundraising for MND research - we are so thankful for all Rob has done for My Name'5 Doddie Foundation 💙💛
At 78 years old, Janice Small proves that adventure & fundraising have no age limit🚲 From Arran to Africa, earlier this year Janice cycled through Malawi, Zambia & Zimbabwe in memory of her friend and fellow cyclist, Sue, who died of MND in 2022 Read more: www.myname5doddie.co.uk/news-and-sto...
Lewis, we're so proud of you. 500 miles ✅, countless memories ✅, vital research funding ✅ You can still keep the donations coming: lewismoodyxv-cyclechallenge.com
To mark this year’s Global MND Awareness Day we’re proud to share Ben Lighting’s story - a powerful and honest account of living with motor neuron disease, and focusing on what matters most. Earlier this week Ben went along to meet Lewis Moody on Day 6 of Lewis' epic 500 mile cycle challenge 🚲
Lewis and the team have made it to Twickenham 🏁🚴 What an epic week. The commitment from everyone involved in the 500 miles to get here will help make a real impact as we work towards a world free of MND. It’s not incurable, it’s just underfunded. Keep supporting: lewismoodyxv-cyclechallenge.com
Yesterday's highlights ✨ It's the final push today - 25 miles to go and the team will reach the finish line. We're so proud 🏁💙💛 Back Lewis and the team and donate now: lewismoodyxv-cyclechallenge.com
“We need to do more to make this world free of MND.” A special and poignant moment at Kingsholm today. So great to be joined by Ed Slater and spend some time with the community here ❤️ The team are starting to tire now - if you can, please donate to support them: lewismoodyxv-cyclechallenge.com
“We now have that torch and we’re going to take it, we’re going to take it a long way, and hopefully to the finish line.” What Lewis said - please continue with us on this journey. You know what to do, donate now: lewismoodyxv-cyclechallenge.com
The Lewis Moody XV Cycle Challenge began yesterday, and is Lewis’ biggest physical challenge to date. The team are cycling 500 miles, going from Newcastle to the Allianz Stadium ahead of the Gallagher PREM Final. We can’t wait to see what this incredible group achieves over the next seven days.
“I’m not a good runner but everyone seems to think I must be to be doing all this stuff. No, it’s just the cause means a lot to me. I said I was going to do it, so I’m going to do it.” In a few days' time, Ali will set off to run the North Coast 500 in just seven days, all to raise funds for us.
🚨 Calling all researchers! There's only 1 week left to submit your application for our Advancing Treatments Award. We want to fund projects that will further the early-stage development of new treatments to slow, stop or reverse MND progression Details here: www.myname5doddie.co.uk/for-research...
“This disease affects families everywhere and we need people to rally behind the MND community in the same way rugby people always rally behind each other" The full route & rider line-up for the Lewis Moody XV Ride sponsored by Gallagher is live. Learn more: www.myname5doddie.co.uk/news-and-sto...
100+ Team Doddie runners took part in the Edinburgh Marathon Festival last weekend! Through sweltering heat, every runner had to dig deep. Some have shared their stories with us - what drove them to the start line, and carried them to the finish 💙💛 Read here: www.myname5doddie.co.uk/news-and-sto...
We are so sad to hear of the death of Neale Daniher, our thoughts are with all his family, loved ones & our friends at FightMND during this difficult time. Neale was a true inspiration - a tireless advocate who changed the landscape of MND in Australia, seeing millions invested into research & care
We're helping to improve access to tofersen for people living with SOD1-MND in Scotland. Too many are being prevented from accessing this treatment and that must change. We’re partnering with the MND Association to support people who are having to travel out of their area to receive tofersen.
"When our great friend Doddie was diagnosed with MND, Scott immediately stepped forward to help and played a vital role in establishing the charity. He was always on hand with ideas, providing wise counsel and using his boundless energy to enable us to grow into the charity we have become today."
Andy, who is living with MND, is taking on the Jurassic Coast Ultra this weekend - a continuous 100km walk along the Dorset coastline. In an extraordinary show of support and friendship, 106 others are taking part with him - they are ‘Andy’s Army’ 💙💛
📢 Calling all researchers! If you’re thinking of applying for our Advancing Treatments Award, then join our webinar on 15 May at 12pm This is your chance to hear more details about the award & gain insights on how to produce a strong application Register👇 events.teams.microsoft.com/event/bbc20d...
🚨 Our Advancing Treatments Award is OPEN for applications! We’re looking to fund projects that will further the early-stage development of new treatments designed to slow, stop or reverse MND progression. For more details and how to apply, click below 👇 www.myname5doddie.co.uk/for-research...
The #LongitudePrizeOnALS has awarded £2 million across 20 teams who'll use AI to identify & validate new drug targets for the treatment of ALS/MND We’re proud to be a funder of the Prize, alongside other key organisations Details: bit.ly/4tCWpcH @mndassoc.bsky.social @challengeworks.bsky.social
Wishing the ROW4MND team all the best as they take on the next leg of their journey to raise £57 million to help find a cure for MND. Setting off at 8pm tonight from Port Logan, this time they’ll be rowing the choppy waters off the Scottish coastline, through the western islands 🌊🚣 www.row4mnd.com
A huge congratulations to the 12 members of Team Doddie who took on the London Marathon for us this year, racing through the heat and raising over £30,000 for vital MND research 💙💛
“If it gets painful, I’ll think about Scott and what he went through. It puts everything into perspective.” Tomorrow, Jonathan Beaton runs London Marathon in memory of his friend Scott Stewart, who died from MND in 2024. He’s already raised £10k+ to honour Scott’s legacy 💙💛
We are incredibly proud and grateful that Lewis Moody has chosen to partner with us 💙💛❤️ Click here to support his epic 500-mile cycle challenge, taking place this June: uk.emma-live.com/LewisMoodyCy...