My Name'5 Doddie Foundation

@mndoddie5.bsky.social

Our vision: a world free of MND 💙💛

Last month Paul Choat stood at the summit of Schiehallion and bagged his final Munro, marking the end of a five-year challenge in honour of his Dad, David. David had been living with MND, and died just 15 peaks short of bagging all 282 Munros himself.

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Congratulations to the one and only Rob Wainwright on receiving his OBE today in recognition of the millions he has helped raise for charity 👏 From leading on the pitch to leading the charge on fundraising for MND research - we are so thankful for all Rob has done for My Name'5 Doddie Foundation 💙💛

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To mark this year’s Global MND Awareness Day we’re proud to share Ben Lighting’s story - a powerful and honest account of living with motor neuron disease, and focusing on what matters most. Earlier this week Ben went along to meet Lewis Moody on Day 6 of Lewis' epic 500 mile cycle challenge 🚲

The Lewis Moody XV Cycle Challenge began yesterday, and is Lewis’ biggest physical challenge to date. The team are cycling 500 miles, going from Newcastle to the Allianz Stadium ahead of the Gallagher PREM Final. We can’t wait to see what this incredible group achieves over the next seven days.

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“I’m not a good runner but everyone seems to think I must be to be doing all this stuff. No, it’s just the cause means a lot to me. I said I was going to do it, so I’m going to do it.” In a few days' time, Ali will set off to run the North Coast 500 in just seven days, all to raise funds for us.

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We are so sad to hear of the death of Neale Daniher, our thoughts are with all his family, loved ones & our friends at FightMND during this difficult time. Neale was a true inspiration - a tireless advocate who changed the landscape of MND in Australia, seeing millions invested into research & care

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We're helping to improve access to tofersen for people living with SOD1-MND in Scotland. Too many are being prevented from accessing this treatment and that must change. We’re partnering with the MND Association to support people who are having to travel out of their area to receive tofersen.

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"When our great friend Doddie was diagnosed with MND, Scott immediately stepped forward to help and played a vital role in establishing the charity. He was always on hand with ideas, providing wise counsel and using his boundless energy to enable us to grow into the charity we have become today."

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Andy, who is living with MND, is taking on the Jurassic Coast Ultra this weekend - a continuous 100km walk along the Dorset coastline. In an extraordinary show of support and friendship, 106 others are taking part with him - they are ‘Andy’s Army’ 💙💛

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“If it gets painful, I’ll think about Scott and what he went through. It puts everything into perspective.” Tomorrow, Jonathan Beaton runs London Marathon in memory of his friend Scott Stewart, who died from MND in 2024. He’s already raised £10k+ to honour Scott’s legacy 💙💛

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