By completing 5 patient-reported outcome (PRO) surveys, you'll help researchers better understand symptoms and quality of life beyond standard lab tests. Join and make your voice count.

MPN Progression Registry® — MPN Research Foundation – Research Foundation funding MPN Research

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The July edition of Under the Microscope hit your inboxes at 5PM CT today! Join our community to receive these stories and so much more with this link:

Subscribe to Our Newsletter — MPN Research Foundation – Research Foundation funding MPN Research

goto.mpnresearchfoundation.org

Patient-reported outcomes (PROs) give patients a means to report symptoms, quality of life, and disease impacts. Answers can reveal insights beyond standard tests or exams, which is why 5 PROs are included in the MPN PROGRESSion Registry®.   https://goto.mpnresearchfoundation.org/4wfS7JB

The June edition of Under the Microscope hit your inboxes at 5PM CT today! Join our community to receive these stories and so much more with this link:

Subscribe to Our Newsletter — MPN Research Foundation – Research Foundation funding MPN Research

goto.mpnresearchfoundation.org

We are happy to announce Calytrix Bio has signed on as a new MPN PROGRESSion Registry® sponsor. Their support helps make this important, long-term, observational research possible. Our sincere thanks!   Enroll today: https://f.mtr.cool/vkdsgqtngr

How do clinical trials measure success?  Endpoints — the outcomes used to judge whether a treatment works.  MPN Research Foundation leads discussions on meaningful endpoints in #MPNs. Follow us to learn more: https://f.mtr.cool/dsywhcyxqf #ClinicalTrials #CancerResearch

Congratulations to Prof. Claire Harrison on receiving the @EHA_Hematology Lifetime Achievement Award. A leading MPN researcher, she has advanced key science, led global trials, and serves as co‑founder of #MPNVoice & trustee of @bloodcancer_uk. 

EHA Lifetime Achievement Award - The European Hematology Association (EHA)

The EHA Lifetime Achievement Award​ is awarded for an extraordinary lifetime contribution to the field of hematology​.

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Do you have anemia of myelofibrosis or care for someone who does? Help inform future MPN research by completing a 30–45 min online questionnaire. Qualified participants receive a $100 gift card. Learn more: smathias@healthoutcomessolutions.com

A Phase 3 clinical study from Italfarmaco is now enrolling adults with polycythemia vera (PV) to evaluate an investigational treatment.  A study doctor can help determine eligibility. Participation is voluntary.  Learn more: https://f.mtr.cool/ivmlznwcpb

Feeling overwhelmed by scientific slides or abstracts?  Join us next week for our new MPN Pathways webinar with Amielle Moreno, PhD and Tyler Parsons, PhD to learn more.  June 18 | 5 – 6pm CT  Virtual  Register: https://f.mtr.cool/koixymtunj #MPNPathways #ResearchEducation

Dana shares her journey with PV — diagnosis, challenges, and learning to advocate for herself. Watch and explore more: https://f.mtr.cool/usmmcielyd

Grateful to @UChicago for welcoming us into the Drazer Group & HIM labs during the 2026 #MPNRoundtable. Early-stage research shows where progress in MPNs begins and how it moves forward through collaboration. Join us in moving research forward: https://f.mtr.cool/sqzvnrbvmg

We recently rolled out a number of updates and improvements to the MPN PROGRESSion Registry® system to make it more user-friendly. Enrolled? Log into your portal to explore what’s new. Want to sign up? Enroll today:

MPN PROGRESSion Registry™ – MPN Research Foundation

The MPN PROGRESSion Registry™ is a patient-focused research initiative that collects comprehensive, long-term, myeloproliferative neoplasm (MPN) patient health data.

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From one early grant supporting the MPN-RC to a global research consortium.  This is the ripple effect of funding collaboration and infrastructure.  Last chance — there is still time to give. Invest in research: https://f.mtr.cool/qegnjxucfd #MPN #CancerResearch @mpn_consortium

Setting new standards in MPN clinical trials will move faster if we learn from what’s already working. At the 2026 MPN Roundtable™, we brought the #MPN community together to learn from progress in other malignancies and turn insight into action. #MPNResearch

Scientific presentations don’t have to feel inaccessible.  Join us for MPN Pathways: Empowered Voices in Research: Patients' & Caregivers’ Guide to Scientific Presentations. Register today: https://f.mtr.cool/ynqailytir #MPNPathways #MPNVoices #PatientEducation #RareDisease

Why do some people develop #MPNs, while others never do? What we know so far comes from years of research.  Progress depends on funding science.  Your support makes research possible.  Invest in research: https://f.mtr.cool/bilbrgbjdf

What defines meaningful progress in MPN research? Clinical endpoints and perspectives that shape them. At #MPNRoundtable, researchers, clinicians, industry partners, and patients convened to align on how progress is measured. Patient-informed science moves the field forward.

Basic or pre-clinical research is the science that maps disease biology, tests ideas early, and identifies possible treatment targets. MPN Research Foundation is committed to this fundamental work.  Invest in research: https://f.mtr.cool/nhbbexsxgw #MPN #CancerResearch

People living with #polycythemia vera are invited to share their experiences in a brief, confidential survey conducted with The Harris Poll. Your input helps guide future research and support. Survey: https://f.mtr.cool/tksisypaxv #PV #MPNresearch

Introducing our brand‑new publication: MPN Global Clinical Trial Insights. This digest offers accessible insights into MPN clinical research — including new studies, expanding trial sites, and an educational spotlight. Join our community to learn more: https://f.mtr.cool/jqpiatpwzc

Research linking #MPNs, treatment, and skin cancer risk is helping doctors improve screening and prevention. Support the science protecting patients today and improving care tomorrow. 👉 Invest in research: https://f.mtr.cool/ddydwhgvxe #BloodCancer #SkinCancerAwareness

MPN clinicians in the US: Have you requested your free Outreach Materials + Swag Kit for MPN PROGRESSion Registry® yet? Send us an email and we’ll ship one out -  mpnprogressionregistry@mpnrf.org.

For our founder Bob Rosen, MPN progression wasn’t abstract — it was personal. He didn’t live to see the Registry® launch, but it carries his vision forward. Invest in research: https://f.mtr.cool/iawtodjtxd #MPN #BloodCancer #CancerResearch

The FDA has approved ruxolitinib extended‑release (Jakafi XR™), a once‑daily tablet for adults with #myelofibrosis and #polycythemiavera. Ongoing research helps clarify how new formulations may fit into MPN care. #MPNs #MPNresearch

Milestone reached! 500+ patients enrolled in MPN PROGRESSion Registry®! During Founder’s Week, no less. The achievement belongs to our entire community. Thank you for your trust, time, and dedication. Stay tuned! It’s only the start of our work toward PROGRESS over Progression.

Legacy isn’t just what you leave behind — it’s what continues to grow.  Today we honor our founder, Bob Rosen, and the mission he built.  Invest in research: https://f.mtr.cool/ojhsteodjt #MPN #CancerResearch

We are led by those we’ve lost and by what they inspire us to build next. Tribute gifts honor loved ones while fueling research that moves the MPN field forward.  Invest in research: https://f.mtr.cool/xedbgilpcr  #MPN #CancerResearch

Governance and transparency are core to MPN PROGRESSion Registry®. Independent IRB oversight, HIPAA‑compliant data protections, scientific & patient committee guidance, and careful data‑use review keep research ethical, secure, and patient‑focused. https://f.mtr.cool/wiwzvrxvlf

“They tried to support grants which were risky — work that probably wouldn’t be funded elsewhere.”  – Josef T. Prchal, MD  That courage built MPN Research Foundation.  👉 Invest in research: https://f.mtr.cool/akotfrwhrc #MPN #CancerResearch