Julie Lam
@msjulieslam.bsky.social
MaskTogetherAmerica.org Founder, writer, photographer, independent COVID/Long COVID reporter, RECOVER rep. (IgAN Long COVID Warrior) MaskTogetherAmerica.org
“We’ve never stopped requiring masks (though we’ve taken hits for that). We’re a small, owner-operated used and new bookstore in Western Massachusetts.”—Hillary Hoffman, owner, Federal Street Books, int by @msjulieslam.bsky.social 📚😷 www.instagram.com/p/DbjIn0gxLFp/ www.facebook.com/share/p/1HcU...
“This book reminds me of how crucial it is to remember the cost of lives while fighting for our future.” @msjulieslam.bsky.social invites you to read her review of “The Day I Almost Didn’t Come Back” by Marc W. Redding. www.instagram.com/p/Dbdoh2URrzs/ www.facebook.com/share/p/1JoE...
MaskTogetherAmerica on Instagram: "Marc W. Redding wrote a memoir about his life, starting from the days before he was hooked onto a ventilator in 2020. He asked me (Julie Lam) to post the NOW ON SA...
70 likes, 4 comments - masktogetheramerica on July 31, 2026: "Marc W. Redding wrote a memoir about his life, starting from the days before he was hooked onto a ventilator in 2020. He asked me (Julie...
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Let’s honor the human cost of the pandemic while fighting for a safer future together. #MaskTogetherAmerica
CDC needs to report on COVID variants. Different variants can shape distinct profiles of persistent illness, contributing to varying sub-types of Long COVID. We need our scientists to write to the CDC. @virusesimmunity.bsky.social @putrinolab.bsky.social @zalaly.bsky.social @erictopol.bsky.social
MaskTogetherAmerica@togetherwemask.bsky.social · last wk.What COVID strain is circulating? Many people asked. The link to CDC's genomic surveillance data is currently inactive. The last report was 6/6/2026 with XFG1.1 dominating. www.cdc.gov/covid/php/va... But MedicalDaily.com reported that Nimbus NB 1.8.1 has been fueling rise in ER Visits.
Latest CDC data shows COVID growing in 37 states. Test positivity & ER visits are up nationwide. 😷 Wear well-fitted, high-filtration masks (N95/KN95) 🌳 Gather outdoors 💨 Add HEPA filters, CR boxes Guide: MaskTogetherAmerica.org Source: www.cdc.gov/respiratory-... #MaskTogetherAmerica
![Current U.S. COVID Epidemic Trend (Source: CDC)
[https://www.cdc.gov/respiratory-viruses/data/activity-levels.html]
CDC data from late July 2026 shows COVID-19 transmission is growing or likely growing in 37 states, with increased test positivity and emergency room visits nationwide.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:gioridukdc4udijly543nbob/bafkreibqbztkzq2d3gct6rquxxndtbqx6n7bq4aytva2oclfqufmhr37wq)
At my 1st SPARK conference, I learned that my #IgAN med got FDA-approval. Tutakna is an immune modulator. Together with anti-virals, I found the (trial) med effective in reducing my #LongCOVID neuropathic pain and memory issues besides reviving my kidney function.
MaskTogetherAmerica@togetherwemask.bsky.social · last wk.Our @msjulieslam.bsky.social attended IgAN Foundation SPARK 2026 where #IgAN community connects, shares knowledge, and learns together. IgA nephropathy is a chronic autoimmune disease that a respiratory infection can trigger onset & relapse of kidney damage. 🧵 www.instagram.com/p/DbT4tAVkaW...
In its early stages, IgAN rarely causes pain or visible symptoms. A person can live with the disease without knowing it. Because biopsies carry risks, U.S. clinicians rarely perform them for mild or borderline urine abnormalities, leaving early-stage patients uncounted. @drjudystone.bsky.social
Respiratory infection is a common trigger for #IgAN flares. As COVID & other viruses circulate year-round, patient orgs should promote a layered approach to protection—like ventilation & high-quality masking—to help prevent relapses & kidney damage. #MaskTogetherAmerica @michael-hoerger.bsky.social
Our @msjulieslam.bsky.social attended IgAN Foundation SPARK 2026 where #IgAN community connects, shares knowledge, and learns together. IgA nephropathy is a chronic autoimmune disease that a respiratory infection can trigger onset & relapse of kidney damage. 🧵 www.instagram.com/p/DbT4tAVkaW...
Please register and submit your questions. masktogetheramerica.org/blog/lc-defe...
Long COVID Defense Series IV — Mask Together America
Join 5 Virtual Q&A Sessions MaskTogetherAmerica warmly invites you to register for the Long COVID Defense Series IV on September 2, 2026, from 3:40 PM to 6:40 PM ET. This virtual forum features five...
masktogetheramerica.org
Join LC Defense Series IV, Sep 2, 3:40pm – 6:40pm ET | 5 Q&A(s): 3:45pm Robert DeRosa @robertderosa.bsky.social 4:20pm Laura Pensiero 4:55pm Dr. @michaelpelusomd.bsky.social 5:30pm Dr. @putrinolab.bsky.social 6:00pm Dr. @drdavidkeegan.bsky.social Register: masktogetheramerica.org/blog/lc-defe...
Thank you for supporting this documentary project! Please support our awareness campaign on Instagram and Facebook too! www.instagram.com/p/Da81ZNntjV... www.facebook.com/share/p/18ys...
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MaskTogetherAmerica@togetherwemask.bsky.social · 3w ago🚨Chicago! #MaskUp for #WildfireSmoke + sickness prevention. “I mask to protect my health and keep each other safe!”—Courtney. 📸 @msjulieslam.bsky.social met Courtney at a mask required party organized by orgs: the Artistic Alphabet Mafia and @parallelplaychi.bsky.social Chicago.
“There are many phenotypes of Long COVID... I am encouraged that people are still researching Long COVlD and I hope they will identify the biomarkers.”Odilon Couzin, MPH, interviewed by @msjulieslam.bsky.social at a mask-required event by Breathe Easy London. www.instagram.com/p/DatNqN8R6-...
MaskTogetherAmerica on Instagram: "“There are many phenotypes of Long COVlD and no one is sure of the mechanism behind what is causing Long COVlD. I am encouraged that people are still researching Lon...
51 likes, 1 comments - masktogetheramerica on July 12, 2026: "“There are many phenotypes of Long COVlD and no one is sure of the mechanism behind what is causing Long COVlD. I am encouraged that peopl...
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After catching COVID in 2021, Josh developed #LongCOVID and Visual Snow Syndrome, a neurological disorder that turned his vision into a moving TV screen. Read how masking and lifestyle changes helped him reclaim his life, and the setback that followed. 👇 www.instagram.com/p/DaoLxRPR-R...
MaskTogetherAmerica on Instagram: "“My wife and I tried regular masks for a while and we just kept getting sick, so we moved to a mold remediation mask. People treat us like we are absolutely bonkers,...
69 likes, 1 comments - masktogetheramerica on July 10, 2026: "“My wife and I tried regular masks for a while and we just kept getting sick, so we moved to a mold remediation mask. People treat us like...
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I developed Shingles after my 2nd bout. Long COVID affects skin—the symptoms should not be dismissed. Let's fight for inclusive diagnostic criteria together!
MaskTogetherAmerica@togetherwemask.bsky.social · 4w agoFight for inclusive diagnostic criteria for Long COVlD. Protect your organs. #MaskTogetherAmerica www.instagram.com/p/Dal1lPuR7fQ/ www.facebook.com/share/p/1M3e...
Sharing an annotation on how Long COVID manifests as persistent rashes, hair loss, vascular lesions, papules, and burning or itching skin, and its associated conditions like diabetes, lupus, clotting disorders show their first symptoms on the skin. www.instagram.com/p/Dal1lPuR7fQ/
I am a patient rep coauthor of the NIH RECOVER study highlighted in this article. The findings suggest that patients with rheumatic diseases have higher risk of viral persistence. www.rheumatologyadvisor.com/news/covid-1...
Understanding SARS-CoV-2 Antigen Persistence in Systemic Autoimmune Rheumatic Diseases
Patients with systemic autoimmune rheumatic diseases may experience prolonged SARS-CoV-2 antigen persistence after COVID-19 infection.
rheumatologyadvisor.com
Rheumatology Advisor@rheumatologyadv.bsky.social · 4w agoFrom @acr-journals.bsky.social Patients with systemic #autoimmune #RheumaticDiseases are more likely to exhibit prolonged #SARSCoV2 antigen positivity months after a #COVID19 infection compared with the general population. @mgbresearch.bsky.social @msjulieslam.bsky.social @jeffsparks.bsky.social
From @acr-journals.bsky.social Patients with systemic #autoimmune #RheumaticDiseases are more likely to exhibit prolonged #SARSCoV2 antigen positivity months after a #COVID19 infection compared with the general population. @mgbresearch.bsky.social @msjulieslam.bsky.social @jeffsparks.bsky.social
Understanding SARS-CoV-2 Antigen Persistence in Systemic Autoimmune Rheumatic Diseases
Patients with systemic autoimmune rheumatic diseases may experience prolonged SARS-CoV-2 antigen persistence after COVID-19 infection.
rheumatologyadvisor.com
I am at my ophthalmologist right now for my persistent Long Covid neuropathic eye pain. This pain is debilitating. When it flares, I also get dizzy and can’t breathe properly. www.cidrap.umn.edu/covid-19/per...
My neuropathic pain reached 12, even 20 at one point in the scale of 1-10. Pain also means losing mobility. With medication, it's getting more manageable now. Trying my best to avoid another flare-up. Long Covid is a lot of pain for me. 😭👩🏻💻
MaskTogetherAmerica@togetherwemask.bsky.social · last mo.Sharing an annotation on what Long COVID Nerve Damage can lead to. Even asymptomatic COVID-19 can trigger a constellation of pain conditions in LC patients. Protect your body. Avoid infections. #MaskTogetherAmerica www.instagram.com/p/DadnkcwxsNM/ www.facebook.com/share/p/1LAV...
“Long COVID took almost everything from me: my health, career, independence, financial security, and the future I worked years for. I am now 90% housebound or bedbound.” Robert DeRosa, former international educator. Read interview by @msjulieslam.bsky.social 👉 www.instagram.com/p/DaTfgEgxpW...
MaskTogetherAmerica on Instagram: "“Long COVlD took almost everything from me: my health, career, independence, financial security, and the future I worked years for. I am now 90% housebound or bedbou...
22 likes, 2 comments - masktogetheramerica on July 2, 2026: "“Long COVlD took almost everything from me: my health, career, independence, financial security, and the future I worked years for. I am no...
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“I mask to keep myself and my communities safer! F*** COVID!”— Zack was interviewed by @msjulieslam.bsky.social #MaskTogetherAmerica at @positivedeviance.bsky.social “All Vinyl, All Love” mask-required rooftop party. Everyone wears masks while having a great time! www.instagram.com/p/DZ83I3DRPB3/
“We all share the same air, so we should all care. Having a safe time AND a good time is possible.”—Drew Empire, NYC Hip-Hop Artist at a @positivedeviance.bsky.social mask-required event. www.facebook.com/share/p/1CBo... www.instagram.com/p/DaGwhpXRjsC/ Support us! @msjulieslam.bsky.social
I have to raise my severe concerns over this RECOVER trial. Exercise can be dangerous in Long Covid even without PEM (e.g. cardiovascular risk). "Exercise-pacing" can be dangerous with PEM-like manifestations. At any rate, exercise is no cure for Long Covid www.medrxiv.org/content/10.6...
Rationale and Design of RECOVER-ENERGIZE: A Platform Clinical Trial of Interventions for Exercise Intolerance With and Without Post-exertional Malaise in Long COVID
Introduction A prominent symptom of post-acute sequelae of SARS-CoV-2 infection (i.e., Long COVID) is exercise intolerance with or without post-exertional malaise (PEM). PEM is characterized by the wo...
medrxiv.org
Saying, "All our liberations are intertwined!" in a shared space WITHOUT an N95 on your face is hypocrisy. #MaskUp #SaltingTheVibes #RiseUpSingOut bsky.app/profile/citi...
Citizen Harry 😷🥄⚙️💚🍉@citizenharry.bsky.social · 2mo agoWhen you don't #MaskUp in shared spaces, you're playing Russian Roulette with your own health AND worsening the odds for everyone else in the room. Engels called shortening the lives of others for the benefit of those with the power to save them Social Murder. Non-masking is violence!
“I mask up out of necessity; COVID damaged my immune system and organs. I advocate for prevention: as Dr. Martin Luther King said, if I can’t do great things, I can do small things in a great way.” Julie Lam ( @msjulieslam.bsky.social ), volunteering for #MaskTogetherAmerica since 2020.
“I wear a mask because I know too much about the damage COVID and Long COVID do to our immune system and organs. Not wearing a mask would be intentionally inflicting harm on myself and others.”— Patrick Cote, co-host of @punchuppod.bsky.social www.instagram.com/p/DZbPZNQETi...
MaskTogetherAmerica on Instagram: "“I wear a mask because I know too much about the damage COVlD and Long COVlD do to our immune system and organs. Not wearing a mask would be intentionally inflicting...
46 likes, 3 comments - masktogetheramerica on June 10, 2026: "“I wear a mask because I know too much about the damage COVlD and Long COVlD do to our immune system and organs. Not wearing a mask would ...
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Tank shares his arduous struggle for recovery from #longcovid to raise awareness with #MaskTogetherAmerica. www.instagram.com/p/DZUuCJoRMgf/ www.facebook.com/share/p/17df...
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“Long COVID ripped my life apart, leaving me with confusion, frustration, and pain. Masking and pacing are the most helpful tools in my tool belt.”— Tank Prusha, a trans photographer/filmmaker, an Omicron Long Hauler, interviewed by @msjulieslam.bsky.social www.instagram.com/p/DZUuCJoRMgf/
