#ISSVA 2026 has started. Great to meet again friends and colleagues to discuss #vascular #anomalies. #vascapa #hevas #cmtc #deduveinstitute #Vascern
Exciting 1st day at #iDR26 on #drug #repurposing. Academics, companies, funders, policymakers & patients, gathered to discuss how to #repurpose #medicines for #diseases with unmet medical needs, incl. #vascular anomalies. #VASCERN #VASCAPA #HEVAS #CMTC #Eurordis #WELRI #deDuveInstitute #FNRS #ISSVA
Nos recherches sur le lymphœdème et la découverte d'un nouveau gène TIE1 muté chez certains patients atteints de cette maladie viennent d'être vulgarisées par La Loupe, un média belge qui rend la science accessible à tous. L'article est à lire ici : la-loupe.be/fr/articles/... #lymphedema #lymphe
Le gène TIE1 et les lymphœdèmes inexpliqués — Découverte UCLouvain — La Loupe
Des mutations du gène TIE1 causent des lymphœdèmes primaires tardifs. Étude sur 755 patients par le Pr. Vikkula — UCLouvain, JCI 2024.
la-loupe.be
Fabian’s great work: Volumetric perfusion fraction change in MR angiography for monitoring sclerotherapy-related changes in peripheral #venous #malformations published. Free access until 13/6/2026: authors.elsevier.com/c/1m~tx,GNpk... #VASCERN #VASCAPA #HEVAS #CMTC #Welbio #deDuveInstitute #ISSVA
An interesting session on #vascular anomalies at the Society of #Interventional #radiology (#SIR) meeting in Toronto. Met new enthusiastic younger colleagues! #VASCAPA #CMTC #HEVAS #VASCERN
Our latest review, 'Current and Emerging Pharmacotherapies for Vascular Malformations', is online. First 50 can download the PDF for free via the link. Thank you, Emmanuel Seront, for putting it together! #VASCAPA #HEVAS #CMTC #VASCERN #RADIOORG #EURORDIS #EVBO www.tandfonline.com/eprint/QGPRV...
tandfonline.com
What a great #VASCERN-VASCA meeting. Thank you Roberta, Thi-Mai et Treasure for organisation. And all those who presented steps made forward in various task forces. Looking forward to follow-up of all action points. #vascapa #hevas #cmtc #vascern #radiorg #eurordis www.facebook.com/100069557370...
facebook.com
What a great #VASCERN-VASCA meeting. Thank you Roberta, Thi-Mai et Treasure for the organisation, and all those who presented steps made forward in task forces. Looking forward to the follow-up of all action points. #vascapa #hevas #cmtc #vascern #radiorg #eurordis www.facebook.com/100069557370...
facebook.com
It was a great annual #Crick #Rare Disease Conference 2026. Learned so much new, made novel contacts, and of course, discussed #precision #therapies for #vascular, and more specifically, #lymphatic anomalies. Organised by @Veronica K. #VASCERN #vascapa #hevas #eurordis #CMTC
Laurence and I were honoured to participate in the vascular anomaly session at the French Academy of Medicine on 2 February 2026, organised by Prof. Anne Dompmartin. Our presentations were dedicated to our late Mentor, Dr John B. Mulliken.
#PIK3R1 and PIK3CA mutations with Capillary Malformation with #DilatedVeins (CMDV) lnkd.in/e2UAUKJr JID cover video lnkd.in/eUSWXYFN features #MRI with #hyperintense slow-flowing blood in dilated veins. A great collaboration within our #VACure and #Leducq networks. #VASCAPA #HEVAS #CMTC #VASCERN
Congratulations Emmanuel on showing how #sirolimus treatment can be adapted. #patients with #slow-#flow #vascular #malformations have #symptom reduction even with #intermittent dosing. A big step forward in the #multimodal management of VAs. #VASCERN #VASCAPA #CMTC #HEVAS #ISSVA #EVDays #Lymph
Congratulations Peyman for the identification of associations between #variants in #spliceosomal genes and the occurrence of #cleft #lip and #palate. A #complex disease and #heterogeneous underlying pathophysiology. #Radiorg #eurordis #CLP #WELRI onlinelibrary.wiley.com/journal/humu/
So happy to have been able to teach about genetics and theragnostics on vascular anomalies at the 18th European Course in Neuroradiology. An extensive, high level course for all those interested in specialising in the field. Humbling to be part of the faculty.
It was a great International Society of Lymphology conference in Antalya. Thank you for the great organisation Pinar. Lots of news ideas and new collaborations 🤩
What a Great visit to the Mendel museum this afternoon. Atbthe the roots of Mendelian genetics.