✉️ Support the DM community—one letter at a time. Send a kind note, drawing, or story to Colin and Patrick through MDF's Community Connections! 💚👇Get started at: www.myotonic.org/community-co...

📣MDF #myotonicDystophy grants aim to accelerate efforts toward effective treatments & a cure. 🧬🔬Open to for-profit and non-profit institutions around the world.🌐💚🔗Share to your network & apply now: www.myotonic.org/myotonic-dys...

🏔️ Taking awareness to new heights! 💚 MDF Director of Programs Mindy Buchanan reached the summit of Carrauntoohil, Ireland’s highest mountain, in honor of #MyotonicDystrophy In Motion Month! 🎉 Learn more about In Motion month at: www.myotonic.org/in-motion

🏕️ Camp JOA is underway! ☀️ Campers living with juvenile-onset #MyotonicDystrophy are making memories with friends, trying new activities, and enjoying plenty of summer fun in Iowa! 💚 Explore upcoming programs & activities for the DM community on our events calendar: www.myotonic.org/calendar/month

Our 2025 Annual Report is here! 💚📘 Together, the #myotonicDystrophy community continued to turn determination into progress. Check out how you've helped advance research, strengthen advocacy and raise awareness. Explore the highlights and impact in our full report at: myotonic.org/wp-content/u...

✨Save the Date! ✨ 🗓️Join us April 28th - May 2nd in #Seattle for the 2027 MDF Conference! Often called the #MyotonicDystrophy family reunion, registration for this educational and hope filled event will open on September 15th! 💚🧬🔗Learn more about MDF's 2027 Conference: myotonic.org/events/2027-...

Meet 2026 MDF Fellow Hossameldin Ali, PhD, MSc! 🧬🧑‍🔬✨ Dr. Ali is a University of Glasgow postdoctoral fellow using computational biology to study CTG repeat expansion & population-level transmission risk in #myotonicDystrophy type 1 (#DM1). Learn more: myotonic.org/2026-fellow-...

Have questions about disability protections and #myotonicDystrophy?💚 Join our Ask the Expert webinar with Disability Justice Advocate, Marisa Spain, to learn about self-advocacy strategies and work accommodations. 💬🔗Register at: events.zoom.us/ev/Ahsp1Eq1i...

Keep the movement going all year long. 💚 When you become a monthly donor, your gift helps MDF fund research and support families at every stage of #myotonicDystrophy. Learn more: give.myotonic.org/campaign/622...

Happy International #FriendshipDay! 💚Today, we’re honoring the connections that bring light and strength to the #MyotonicDystrophy community. Here’s to the people who stand beside us, every step of the way.

Meet 2025 MDF Pilot Grant Recipients David Housman, PhD, and Christopher Ng, ScD! 🧬✨ Their MDF-funded project adapts DNA repair enzyme therapy to study repeat instability in #myotonicDystrophy type 1 (#DM1) and support therapy development. Learn more: myotonic.org/2025-pilot-g...

Community starts here 💚✨ Join one of 30+ MDF Support Groups by topic or region! Meet with others in the #myotonicDystrophy community at an upcoming meeting. 🤝🗓️ Get connected at: www.myotonic.org/find-support

📢 Make an impact this International #MyotonicDystrophy Awareness Day! 💚Ask your local government to issue a proclamation recognizing September 15 and help spread awareness of DM. 🔗Download the Proclamation Toolkit: myotonic.org/wp-content/u...

📢 Make an impact this International #MyotonicDystrophy Awareness Day! 💚Ask your local government to issue a proclamation recognizing September 15 and help spread awareness of DM. 🔗Download the Proclamation Toolkit: myotonic.org/wp-content/u...

🔬 New research from MDF and Third Plateau identifies 3 priorities for strengthening #myotonicDystrophy clinical trial readiness: better endpoints, stronger data sharing and coordination, and fewer barriers for participants and families. Learn more: myotonic.org/2026-study-o...

We're proud to introduce MDF's first-ever Awareness Ambassadors! 🎉 Through a partnership with Living Proof Advocacy, 11 members of the #myotonicDystrophy community completed specialized training to share their stories and advocate for a brighter future. Learn more about our Ambassadors at:

Meet 2025 MDF Pilot Grant Recipient Stéphanie Tomé, PhD! 🧬✨ Dr. Tomé has 15+ years of experience studying repeat instability. Her MDF-funded work focuses on CTG repeat instability in #myotonicDystrophy type 1 (#DM1) & therapy development. Learn more:

2025 Pilot Grant Recipient Feature: Stéphanie Tomé, PhD | Myotonic Dystrophy Foundation

Meet one of our 2025 Pilot Grant Recipients, Stéphanie Tomé, PhD! Dr. Stéphanie Tomé, a researcher at the Myology Institute in Paris, has over 15 years of

myotonic.org

📊 New research powered by the #MyotonicDystrophy community! Data from 1,744 Myotonic Dystrophy Family Registry participants highlight 5 findings about how DM1 and DM2 affect daily life. Thank you to everyone helping deepen our understanding of DM! 💚 myotonic.org/myotonic-dys...

Explore MDF's New Guide for people living with Congenital #MyotonicDystrophy and their caregivers! 💚 👩‍👧 Designed for U.S. based families, it is packed with crucial information to consider when navigating the transition to adulthood. 🔗 Learn more at: myotonic.org/resources/pl...

Support everyday movement with Movement Mondays: Resistance & Strengthening! 💚💪 Join our final #MyotonicDystrophy #InMotion session exploring accessible resistance-based exercises for daily function. 🗓️ Monday, July 27 ⏰ 4 PM PT / 7 PM ET 🔗events.zoom.us/ev/At0NYT4HA...

Celebrating the power of community this #DisabilityPrideMonth. 💚 Together, the #MyotonicDystrophy community continues to raise awareness, inspire hope, and create change.

Meet 2025 MDF Pilot Grant Recipient Juan Manuel Fernandez, PhD! 🔬✨ Dr. Fernandez has 15+ years of #myotonicDystrophy research experience. His new MDF-funded project applies his 3D muscle model expertise to support DM2 drug development. Learn more: myotonic.org/2025-pilot-g...

Reach new heights with Movement Mondays: Flexibility! 💚🧘 Join our next #MyotonicDystrophy #InMotion session to explore gentle, accessible exercises that support mobility and range of motion. 🗓️ Monday, July 20 ⏰ 4 PM PT / 7 PM ET 🔗events.zoom.us/ev/At0NYT4HA...

Get moving with an aerobics demo by Dr. Kelly for people living with #myotonicDystrophy! 🧘‍♀️💪 Join our next 2026 Movement Monday on July 20th for more exercises designed with DM in mind.💚🔗 events.zoom.us/ev/At0NYT4HA...

Have questions about exercise and #myotonicDystrophy?💚 Join our Ask the Expert webinar with Physical Therapist and DM researcher, Dr. Tina Duong, to get your movement questions answered. 💬🔗 Register at: events.zoom.us/ev/Ahsp1Eq1i...

Get moving with a flexibility demo by Dr. Koike for people living with #myotonicDystrophy! 🧘‍♀️💪 Join our next 2026 Movement Monday on July 13th for more exercises designed with DM in mind.💚🔗 events.zoom.us/ev/At0NYT4HA...

💚 #myotonicDystrophy In Motion athletic gear is back, but only through July! 🚲 Movement Matters. Support the DM community, raise awareness, and get moving with this limited release. 👉 teamstore.agile-sportswear.com/store/myoton...

Meet 2025 MDF Pilot Grant Recipient Kate Eichinger, PhD! 🥼✨ Dr. Eichinger is a physical therapist and researcher who has worked with the #myotonicDystrophy community for 20 years. Her study uses wearable sensors to study mobility in DM. Learn more: myotonic.org/2025-pilot-g...

Ready to get your heart pumping? 💚🏃 Join our next Movement Mondays session: Aerobic & Cardio. Move at your own pace and explore accessible exercises with the #MyotonicDystrophy community. 🗓️ Monday, July 13 ⏰ 4 PM PT / 7 PM ET 🔗events.zoom.us/ev/At0NYT4HA...

📣Regulators have aligned with AMO Pharma on a study design for investigation of AMO-02 as a treatment for congenital #myotonicDystrophy!💚 🧬 Stay tuned for announcements of the trial launch in the coming months. 🔗Read more at: myotonic.org/wp-content/u...