We are delighted to welcome Batten Disease Family Association as the newest members of NAoS. We look forward to working together and raising awareness of children and families affected by Batten disease in Scotland. Find out more about their work here: www.bdfa-uk.org.uk

Become a member of the Neurological Alliance of Scotland by completing the 'Join Us' form on our website ➡️ bit.ly/4fe6esR Full membership is open to any not for profit organisation who is interested in furthering the objects of the Alliance.

Applications are currently open to become a NAoS trustee. To be eligible to apply, you must work for a NAoS member charity. If you would like to find out more about the role and how to apply, please email admin@scottishneurological.org.uk. Applications will close 1 September 2026.

Registrations are open for our upcoming webinar exploring the often-overlooked mental health impact of neurological conditions on children and young people. 📆Monday 7 September, 4-5pm This session is aimed at professionals working with children and young people. Register here ➡️ bit.ly/4fraVP5

Become a member of the Neurological Alliance of Scotland by completing the 'Join Us' form on our website ➡️ bit.ly/4fe6esR Full membership is open to any not for profit organisation who is interested in furthering the objects of the Alliance.

July is #DisabilityPrideMonth and we're celebrating the strength, diversity and resilience of the neurological community in Scotland. Learn more about the fantastic members who make our work possible here: bit.ly/4eQAskm

NAoS was pleased to be at the Scottish Parliament yesterday, joined by two of our members- Glasgow FND Awareness Support and Funding Neuro- to meet with Dawn Black MSP, one of our newly elected Neuro Champions. Many thanks to @dawnblacksnp.bsky.social for her time and commitment in meeting with us.

This PSP and CBD Awareness Week @pspassociation.bsky.social have published a new report revealing a staggering lack of progress in diagnosing Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD)- both terminal, progressive neurological conditions. Read more 👉 bit.ly/4oIb9FK

Thank you to Sharon Turnbull from More Than Fibro who presented at our Members' Meeting this morning as part of our member showcase. If you would like to find our more about their work or get in touch with Sharon, please visit their Facebook page or website: morethanfibro.org

Professor Anna Glasier OBE, Women's Health Champion for Scotland, delivered an insightful presentation at our Members' Meeting this morning on the unique and unequal health challenges faced by women in Scotland, and the work being done to address such health inequalities in the Women's Health Plan.

📣New member announcement A very warm welcome to FND Dimensions. FND Dimensions are a charity for people living with functional neurological disorder (FND), their family, friends and supporters, run by trustees and volunteers who themselves are living with FND. Find out more 👉https://bit.ly/4uAlogr

We are delighted to announce the Women's Health Champion for Scotland, Professor Anna Glasier OBE, will be joining our members' meeting next week to discuss the Women's Health plan and the importance of brain health. 📅18 June, 10:30 - 12:30. This is a member only event.

Breaking: we’ve joined organisations across Scotland calling for the reinstatement of a dedicated Minister for Women’s Health. Without a clear focus, women’s health risks being deprioritised – including in neurological conditions, where women are often disproportionately affected. 📰➡️ bit.ly/4gankst

Our Programme Director, Alice Struthers, enjoyed being part of the launch event for Voluntary Health Scotland's new report (IN)VISIBLE Health Sex and Gender Inequalities. We’re proud to have contributed to this report, highlighting the impact for people with neuro conditions 👉 bit.ly/4nOPdbA

📣 3 of our newly elected #NeuroChampions have been appointed to Scottish Cabinet: 👉Maree Todd MSP, Minister for Mental Wellbeing, Public Health, Sport, Alcohol & Drugs 👉Jamie Hepburn MSP, Minister for Parliamentary Business and Veterans 👉Kirsten Oswald MSP, Minister for Victims and Community Safety

Our Programme Director, Alice Struthers, was delighted to attend the Essential Tremor Conference in Stirling last week as a guest speaker. It was a fantastic opportunity to connect with others across the neuro community and share our work. Thank you to the Scottish Tremor Society for the invitation.

Movement for Good's special draw is only open for another 5 days and could give us the chance the win essential funds so we can continue advocating for the neuro community. Please consider nominating us today. It takes less than 1 minute! 👉 movementforgood.com/draws/1000?c...

Nominate now! - Movement for Good awards

We could receive a £1,000 donation with your help through the Movement for Good Draw.

movementforgood.com

Don't miss Epilepsy Scotland's event bringing together elite athletes with lived experience of epilepsy to discuss resilience, hidden disability, performance, stigma and what can be learned from competing at the highest level while managing a neurological condition. 📆Tues 17 May bit.ly/4uV1z3Z

We are delighted to announce that @jamiehepburn.bsky.social is a #NeuroChampion. That's a total of 7 Neuro Champions in the Scottish Parliament (& counting). We look forward to working with MSPs from across the chamber to improve the lives of people affected by neurological conditions in Scotland.

This #MentalHealthAwarenessWeek we're sharing resources to support the mental health of people impacted by neurological conditions. Practical resources for supporing the mental health of children and young people 👉 bit.ly/3PBmpqe Condition specific support & support for carers 👉 bit.ly/4dFDTuL

This #MentalHealthAwarenessWeek we're sharing resources to support you, or a loved one, to look after your mental health. Our mental health directory lists general and condition specific support, as well as support for carers, provided by our member charities 👉 bit.ly/4dFDTuL

Congratulations to all candidates elected to Parliament on 7 May. We are pleased to introduce our first six Neuro Champions: Dawn Black (SNP) Maggie Chapman (Scottish Greens) Martyn Day (SNP) Helen McDade (Reform UK) Kirsten Oswald (SNP) Maree Todd (SNP) We look forward to working together.

🧬Join our Sequence ME & Long Covid Webinar Following the announcement of major funding (£4.75 million) from the UK Government, join our webinar to find out more about what this means for the study, and what happens next. 📅 26 May, 14:30-15:30pm GMT 📍 Register here: us02web.zoom.us/webinar/regi...

Fantastic news today on International ME Awareness Day that the #DecodeME study has been granted an additional £4.75m round of funding. This new funding is a critical step for our and future generations. @actionforme.bsky.social @meactionscotland.bsky.social @meassociation.org.uk

#MEAction Scotland@meactionscotland.bsky.social · 3mo ago

Good news for #WorldMEDay. Gov invests £4.75m in research. Congratulations to Action for ME, The University of Edinburgh, Decode ME Study, Oxford Nanopore Technologies, and the European Bioinformatics Institute (EMBL-EBI). www.gov.uk/government/n... #MilionsMissing #MEAwarenessWeek

This year, #MEAction Scotland will be running an email campaign aimed at MSPs during ME Awareness Week (11th-17th of May). Last year, in the final budget of that parliament, the Scottish Government earmarked £4.5 million

Our next policy group meeting is taking place tomorrow, 11:00-12:00, on Teams. The meeting will be a chance to discuss the results from Scotland's elections and learn a bit about the make up of the new Scottish Parliament. Thank you to Mark Jackson from @pspassociation.bsky.social for chairing.

This election, people with neurological conditions deserve strong voices in Parliament. We’re proud that candidates from all the main parties have supported our manifesto and committed to becoming #NeuroChampions2026, but there’s still time to do more. Ask your candidates now 👉 bit.ly/3PF8EXk

Today’s Challenge, Tomorrow’s Hope: Manifesto for the 2026 Holyrood Elections

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Fantastic to host our neuro hustings last week and hear candidates directly reference our manifesto, support our principles and pledge to become Neuro Champions if elected on the 7 May. Let's get more candidates signed up to become #neurochampions2026! ⭐ Find our more here: bit.ly/3PF8EXk

This election, we need champions for people with neurological conditions. Ask your local candidates to support the manifesto for change and become a #NeuroChampion2026. Because if not now... when? Download the our candidate letter and write to your candidates today: bit.ly/3PF8EXk

Just two days until our neuro hustings! We have some great candidates lined up, all of whom have a strong interest in neurological health and wellbeing. This is an event for our members only. If you are not a member, feel free to comment below with a question you'd like us to ask the candidates.