*** FUNDRAISING NEWS *** This October, our very own Clare is getting her trainers on again to raise funds for Cure NF2 Foundation. Running in honour or her family Scott, Olivia & Zac who all live with NF2. Support Clare here: www.peoplesfundraising.com/donation/cla... #endNF2 #schwannomatosis

Its sunday on the blog! And we are back with the latest update from Avastin Diaries, so grab a cuppa and have a read. curenf2.org/avastin-diar... Tshirt courtesy of @nf2.arch - check out the new stock at fcuknf2.bigcartel.com #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

Join our new podcast script "In Our Shoes: NF2 and Me" If you live with NF2 and feel comfortable answering a few questions about your experiences, your insight could help shape something meaningful To take part msg or you can email me joanne@curenf2.org #schwannomatosis

Come and join us at our Virtual Coffee Meet and meet other NF2ers. (carers/family welcome) Date: Tuesday 13th October 10.30am BST Have a chat, say hi or just enjoy the company - the choice is yours Sign up here: forms.gle/Uq97GQJTy83G... Guest speaker Katherine a yoga instructor #schwannomatosis

NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

Advancing neurofibromatosis research: a comparative review of animal models and their utility in dissecting the tumor microenvironment

NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

We are celebrating one of our incredible fundraisers today We are so very thankful to the TGC Ladies Captains Charity Day and our supporter Cathy Baglin who nominated us as their beneficiary of this wonderful event The team raised over £1031 #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

Our supporter Helen Bray who lives with NF2 is organising a charity evening with the one & only Dan Patchett as Michael Buble Where: Otley Social Club, Otley, LS21 2DP When: Friday 6th November 2026 Get your tickets here ----> www.ticketsource.com/otley-social... #schwannomatosis #NF2support #nf2

Bridge-Disease Curriculum Transfer Enables Smartphone-Based Balance Assessment in Rare Neurologic Disorders

Schwannoma

Our message is simple. Amplifying our mission to: Fix the Gene, Cure NF2, Change Lives Join Us in achieving this. Donate here: www.peoplesfundraising.com/donation/nf2... or (USA/Canada/Europe) curenf2.org/donate/ #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

Natural History Study of Patients With Neurofibromatosis Type 2 [RECRUITING]

NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

NADPH oxidase 3 inhibition preserves hearing in mice after stereotactic radiosurgery #NF2 #schwannomatosis #vestibularschwannoma www.sciencedirect.com/science/arti...

Quantitative imaging of schwannoma captures heterogeneity and accelerates preclinical testing, revealing distinct impacts of targeted therapies

Variable Schwann cell merlin inactivation is targetable with TEAD1 inhibition in schwannomas

NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

A 3D in vitro co-culture model to investigate tumor-endothelial interactions in Neurofibromatosis type 2-associated meningiomas

NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

Join CamRARE on Wednesday 7 October for a packed programme of talks, panels and interactive workshops at #RAREsummit26 - exploring policy, care, health data, partnerships and innovation. 📍 In person or online 🎟️ Programme & tickets: www.camraredisease.org/raresummit26... #RAREsummit26 #RareDisease

NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves, it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves. it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — & it can be truly life changing Learn more at curenf2.org. #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing Learn more at curenf2.org The impact is very real. #endNF2 #NF2 #schwannomatosis

NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2 #NF2Schwannomatosis #schwannomatosis