Apparently going public wasn’t part of the prior authorization process 💀 #HeartTransplant #PatientAdvocacy #MedicationAccess #HealthInsurance #Healthcare

🎙️ I joined Patient Voices in Pharmacy to share my heart transplant journey, my fight for Everolimus, “ghost approvals,” and how @warrisbokhari.bsky.social, @getclaimable.bsky.social, and @mcuban.bsky.social helped when the system failed me. ❤️ @costplusdrugs.com youtu.be/ZlC4OeDzJO4

Payton's Voice: A New Heart. A New Fight.

YouTube video by Patient Voices In Pharmacy

youtu.be

Nearly 3 months ago, my Facebook accounts were disabled after what I believe was unauthorized access. Meta told the Ohio AG they would help me regain access, requested my ID, and I submitted it nearly 3 weeks ago. I’m still waiting. Victims deserve a transparent recovery process. #Meta #OhioAG

My story with @truthrx.org is live. It covers “ghost approvals” and mentions @mcuban.bsky.social, @costplusdrugs.com @warrisbokhari.bsky.social from @getclaimable.bsky.social, and Mary Cutter, my donor Christian’s mom. “Approved” should mean accessible. puttrx.medium.com/ghost-approv...

Ghost Approvals: The Insurance Practice That’s Putting Patients at Risk

At 11 years old, Payton Herres received a heart transplant that saved her life. Now 26, she relies on a daily immunosuppressant, Everolimus…

puttrx.medium.com

Honored to be the first patient guest on @jhlt.bsky.social (JHLT) Podcast. Grateful for the opportunity to share my experience as a heart transplant recipient and advocate for medication access. 🎙️❤️ #HeartTransplant #PatientVoice #PatientAdvocacy #TransplantCommunity #MedicationAccess

The Journal of Heart and Lung Transplantation@jhlt.bsky.social · 2mo ago

What happens when a transplant recipient has insurance coverage for their #immunosuppressants —but still can't access their medication? You'll want to hear Payton's story on #JHLT the podcast. #transplantsky #medsky

My second KevinMD article is now live: “Insurance denial after transplant: approval isn’t access.” As a heart transplant recipient, I’ve learned that having a medication approved doesn’t always mean you can actually obtain it. This piece explores that gap. kevinmd.com/2026/06/insu...

Insurance denial after transplant: approval isn't access

Insurance denial nearly cut off my anti-rejection medication after a heart transplant. See why approval is not access, and what ghost approval really hides.

kevinmd.com

Insurance approval doesn’t always mean medication access. I’m a heart transplant recipient collecting patient experiences with “ghost approvals” — approved medications that remain inaccessible due to cost, pharmacy restrictions, delays, or other barriers. forms.gle/qya9VFMVj58F... #PatientAdvocacy

Ghost Approval Survey: When Insurance Approval Doesn't Mean Access

For this survey, a “ghost approval” means a medication was approved by insurance but remained difficult or impossible to obtain due to cost, specialty pharmacy requirements, network restrictions, admi...

forms.gle

My annual heart transplant testing came back normal: no ischemia, no scar tissue, normal heart function, CAV 0. I’ve been stable on Everolimus for years, but Anthem now wants ~$500/month. Grateful for @mcuban.bsky.social @costplusdrugs.com / and @getclaimable.bsky.social for helping me fight this

I'm a heart transplant recipient studying "ghost approvals"—when a medication is approved by insurance but still difficult or impossible to obtain due to cost, delays, or pharmacy restrictions. Take the survey: forms.gle/qya9VFMVj58F... #PatientAdvocacy #DrugAccess

Ghost Approval Survey: When Insurance Approval Doesn't Mean Access

For this survey, a “ghost approval” means a medication was approved by insurance but remained difficult or impossible to obtain due to cost, specialty pharmacy requirements, network restrictions, admi...

forms.gle

My story was published by KevinMD. Prior authorization delays for transplant medications are not just administrative issues — they can put lives at risk. kevinmd.com/2026/05/prio...

Prior authorization delays vital transplant medication

A heart transplant recipient shares the mental toll and life-threatening delays caused by prior authorization barriers when accessing vital transplant medication.

kevinmd.com

My STAT First Opinion was published today. I wrote about “ghost approval” — when lifesaving meds are technically approved but still inaccessible. Thank you @mcuban.bsky.social and @warrisbokhari.bsky.social for helping me access my transplant medication. www.statnews.com/2026/05/19/i...

I’m a heart transplant recipient. I’m haunted by ‘ghost approval’ for medication I need to survive

“On paper, I have insurance coverage. In real life, I don’t have access. That’s what I call ‘ghost approval,’” writes patient advocate Payton Herres.

statnews.com

Grateful to the Dayton Daily News for covering my story. 💙 As a heart transplant recipient, access to anti-rejection medication is life-sustaining. Article: www.daytondailynews.com/lifestyles/l... #HeartTransplant #InsuranceDenial #PatientRights #Insurance #AnthemBCBS #Everolimus #Transplant

Local heart transplant recipient fights for access to life-saving medicine

After a difficult birth in March of 2000, and overcoming multiple complications due to her congenital heart defect, Payton Herres of Washington Twp. is now an adult fighting a system

daytondailynews.com

My article in The Journal of Heart and Lung Transplantation is now indexed on PubMed: “When Coverage Is Not Access: A Heart Transplant Recipient’s Perspective on Everolimus, FDA Labeling, and the Problem of ‘Ghost Approval.’” pubmed.ncbi.nlm.nih.gov/41895624/