Lived Experience (LX) in healthcare is what User Experience (UX) is in software. The idea is simple...the people who actually use a product or service should help shape its design, priorities, and continuous improvement. Lived experience helps reveal what can’t be seen from the outside.

This has been the most purposeful and meaningful work I've done in my life that's much bigger than myself. Feeling thankful for the impact it's made so far and the people who've supported it.

Psychedelic Lived Experiences@psych-lived-exp.bsky.social · 2mo ago

Some people go through clinical trials and move on. Others stay with what they saw, what they lived, and what they believe needs to change. Two years into Psychedelic Lived Experiences, this clip reflects the heart of why this work exists. #psychedelics #clinicaltrials #livedexperienceexpertise

I've always appreciated Ron's unfiltered communication. His experience is vital for researchers designing trials and for regulators approving protocols. The clinical research field needs better experience design so that science doesn't get put above participant wellbeing.

Psychedelic Lived Experiences@psych-lived-exp.bsky.social · 4mo ago

What Participant Screening Really Felt Like in an MDMA Therapy for PTSD Trial Ron reflects on the emotional and physical toll of screening and clinical questionnaires, even when the goal is to understand and validate what someone has been through. #MDMATherapy #PTSD #Psychedelics #MDMA

Are you a clinician, therapist, researcher, QA, program lead, or study staff? Discover how to leverage lived experience as quality and safety infrastructure in psychedelic care. 🗓 Apr 11, 2026 • 10 AM PT / 1 PM ET / 17:00 UTC (19:00 Central Europe) #psychedelics #PatientSafety #LivedExperience

Looking forward to running this workshop for professionals working in psychedelic clinical trials and practice with an interest in safety and quality control. I hope to see you there.

Psychedelic Lived Experiences@psych-lived-exp.bsky.social · 5mo ago

Upcoming workshop: Apr 11, 2026 • 10 AM PT / 1 PM ET / 17:00 UTC (19:00 Central Europe) Discover how to leverage lived experience as quality and safety infrastructure in psychedelic care. #PsychedelicTherapy #PsychedelicResearch #PatientSafety #LivedExperience #ClinicalTrials

I’m especially grateful to Joost and the OPEN Foundation for making real space for patient and trial participant voices at ICPR. It is one of the few conferences I’d strongly recommend for both the quality of the presentations and the strength of the connections you can build there.

Psychedelic Lived Experiences@psych-lived-exp.bsky.social · 5mo ago

When Lived Experience Is Shared on Stage, Safety Matters Meet Joost Breeksema, PhD, a qualitative researcher in psychedelic trials and Executive Director of the OPEN Foundation in the Netherlands, which organizes the ICPR conference (June 4-6, 2026). #Psychedelics #PsychedelicResearch

Do you work in psychedelic clinical research? In this short Behind the Scenes Update (Dec 20, 2025), our founder and director, Pedram Dara @pedramdara.bsky.social, shares how a new initiative is taking shape following conversations from the first-ever Psychedelic Lived Experiences Summit.

This is why outcomes ≠ experiences. Healing doesn’t always show up on a checklist, but it still shows up in real life.

Psychedelic Lived Experiences@psych-lived-exp.bsky.social · 8mo ago

When the follow-up Zoom call asks: “Any adverse events?” (and you don’t know where your life fits on the checklist) #Psychedelics #LivedExperience #ClinicalResearch #clinicaltrials #patientadvocacy #mentalhealth #memes

Behind the Scenes Update | Dec 13, 2025 In this short update, our founder & director Pedram Dara, @pedramdara.bsky.social shares reflections on what has been happening behind the scenes in the psychedelic research and education space over the past few weeks. #LivedExperience #Psychedelics

Behind the Scenes Update | Dec 8, 2025 In this short update, our founder and director, Pedram Dara, @pedramdara.bsky.social shares what’s coming up after the first-ever Psychedelic Lived Experiences Summit. #LivedExperience #ClinicalTrials #ClinicalResearch #PatientVoices #PatientAdvocacy

Patients and trial participants are the ones who take part in regulated psychedelic-assisted therapy research, yet their perspectives are often missing from the conversations that shape this field. #LivedExperience #ClinicalTrials #ClinicalResearch #PatientAdvocacy #psychedelics

We did it. The world’s first Psychedelic Lived Experiences Summit has officially wrapped and what started as a response to a major gap in the field has now become a global movement. 3,000+ attendees from 74 countries. 3 full days. 54 speakers. #psychedelics #livedexperience

Behind the Scenes Update | Nov 16, 2025 In this week’s update, Founder and Director @pedramdara.bsky.social shares what unfolded during the final stretch of preparing for next week’s Psychedelic Lived Experiences Summit. Claim Your Free Pass: psychedeliclivedexperiences.com/summit #psychedelics

3 weeks until the Psychedelic Lived Experiences Summit (Nov 21–23 | Free & Virtual). Join us to hear from 50+ patients, therapists, and researchers. Explore the potential and limits of psychedelic treatments. Claim Your Free Pass: psychedeliclivedexperiences.com/summit #livedexperience

I’m excited to share I’ll be speaking at #PS2025 (June 19 at 2:30 PM on Rick Doblin's stage) in Denver, sharing insights on lived experience in psychedelic care. I'm part of a groundbreaking panel, a first at Psychedelic Science led by MDMA-assisted therapy trial participants.

Scientists are joining. Now we need the journalists to join along with politicians to bring news along with them.

Bluesky now has over 20M people!! 🎉 We've been adding over a million users per day for the last few days. To celebrate, here are 20 fun facts about Bluesky:

What’s one thing you’re enjoying about this new platform?

Hello world!