*New publication* led by @JimReederphysio - first paper from his research exploring innovative ways to empower parent carers of children with neurodisability @hls.exeter.ac.uk onlinelibrary.wiley.com/doi/10.1111/...

Interventions supporting the empowerment of parent carers of children with neurodisability and other long‐term health conditions: A scoping review

This scoping review identified 145 different interventions designed to support parent carer empowerment. These interventions have been catalogued and are presented in an interactive, online database.

onlinelibrary.wiley.com

We have had a flurry of new papers published over the summer 🙂 www.pencru.org/news/latestn...

New and recent publications | PenCRU | University of Exeter

pencru.org

Parent carers continue to fall to the bottom of the heap. www.healthyparentcarers.org gives them the lift they need. Hear from the carers themselves... @carersweek.bsky.social

Had a fantastic time hearing about this programme - I think there’s lots we can do with it. Watch this space.

PenCRU @ University of Exeter Medical School@pencru.bsky.social · last yr.

Great to meet @steveracemp.bsky.social today and share about the Healthy Parent Carers. Thanks for listening, Steve and being willing to promote the programme. www.healthyparentcarers.org @hls.exeter.ac.uk

Great to meet @steveracemp.bsky.social today and share about the Healthy Parent Carers. Thanks for listening, Steve and being willing to promote the programme. www.healthyparentcarers.org @hls.exeter.ac.uk

Gosia is parent carer to a child with visual impairment. She recently took part in the HPC programme run by VI charity, LOOK. “Taking part in this course was the best decision I have ever made! It changed the way I think and reminded me how to be me again. I feel healthier and happier then ever!”

Healthy Parent Carers just launched in Harrow and already having a positive effect for carers. "It’s good to be reminded that we actually have permission to look after ourselves as well as our children. It’s so necessary and important so that we do not burn out."

Helen from @OurVoiceEnfield on the Healthy Parent Carers Programme: "An excellent course run by parent carers. Non-judgmental safe space to share our voices together. Highly recommend to all parent carers."

Our research to promote inclusivity and equity of programmes for parent carers of disabled children ⬇️ 🙂 Led by @phillharniess.bsky.social

ARC South West@arcsouthwest.bsky.social · 2y ago

A @pencru.bsky.social study proposes ways to overcome key barriers to health programmes for parent carers to ensure inclusivity and reduce inequalities. The study identified five main barriers: Reach, Credibility, Opportunity, Optimisation and Reservation. Read more👇 tinyurl.com/43uj9rm7

Hear how lives of parent carers are being transformed by the Healthy Parent Carers programme at the CDC workshop www.youtube.com/watch?v=Fxfx... @england.nhs.uk

Workshop 1: The Healthy Parent Carers Programme: Improving parent carers’ health and wellbeing.

YouTube video by WatchCDC

youtube.com

Super new video about Eating and Drinking Ability Classification System for people with cerebral palsy @dianejsellers.bsky.social @mackeithpress.bsky.social @bacdisability.bsky.social youtu.be/woa7TGbwb0Y?...

Eating and Drinking Ability Classification System for people with cerebral palsy

YouTube video by Science Animated

youtu.be

Our Hospital Communications research highlighted crucial role parent carers have supporting ward staff to improve children's experience of care when they have to stay in hospital www.pencru.org/projectsmeet... The caring doesn't stop when children are inpatients. www.theguardian.com/society/2025...

Mother had carer’s allowance stopped while with disabled daughter in hospital

Rachel Adam-Smith says stopping benefits when loved ones are in hospital fails to recognise carers’ ongoing role

theguardian.com

Tackling parental burnout in carers of children with SEND. Healthy Parent Carers is a 12 week course co-produced by academics at the University of Exeter and parent carers. www.healthyparentcarers.org

Last chance to submit an abstract(s) to this year's annual conference. Successful abstracts invited to present and chance to win @mackeithpress.bsky.social prizes - £350 cash prize for best oral presentation - £200 MKP vouchers for best poster *Deadline Weds 26 Feb* www.bacdis.org.uk/pages/asm-2025

Annual Scientific Meeting 2025 | British Academy of Childhood Disability

Safeguarding children and young people with special needs and disabilities: a multi-faceted approach

bacdis.org.uk

The Healthy Parent Carers Programme "should be part of every Local Offer" @amandaallard.bsky.social We're training facilitators to run it locally. www.healthyparentcarers.org @exeter.ac.uk @lizkendallmp.bsky.social