Opening of the international genomic medicine symposium in Hong Kong, convened by HK Genome Institute, Rare Diseases International and the Lancet Commission on Rare Diseases. @phgfoundation.bsky.social colleagues and senior fellows among international audience for this significant milestone event.

Putting mitochondrial donation in context -- some thoughts on the publication of NEJM papers on pronuclear transfer at Newcastle: www.linkedin.com/posts/peter-...

Today's news that eight, apparently healthy children have been born following pronuclear transfer to reduce the risk of inherited mitochondrial disease will not be a surprise for those of us who h...

Today's news that eight, apparently healthy children have been born following pronuclear transfer to reduce the risk of inherited mitochondrial disease will not be a surprise for those of us who h...

linkedin.com

We all want good health. But that does not mean that there is one thing we all want... Comments on #personalisedhealth in the context of our current @phgfoundation.bsky.social campaign and the #NHS #10yearplan: www.linkedin.com/posts/peter-...

We all want good health. | Peter Mills

We all want good health. But that does not mean that there is one thing we all want. Our requirements and our capabilities are different. In seeking to achieve good health, if we treat everyone the sa...

linkedin.com

👋 The PROPHET.EU #public #consultation has just been launched This public consultation aims to collect feedback on the full draft version of the Strategic Research and Innovation Agenda (#SRIA) and related #Roadmap. 🗓️ 26 June - 16 July 🔎 Participation is open to everyone 🔗

Opportunities to get involved: public consultation - PROPHET

Get involved! Welcome to the PROPHET public consultation After having completed the expert consultation, we are now opening the public consultation from 26 June 2025 to 16 July 2025. This public…

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We are recruiting a senior policy analyst with expertise/interest in law, ethics and policy for genomics, data and related health applications. If that could be you take a look: www.phgfoundation.org/vacancies/

Special edition of The CRISPR Journal now online to coincide with the International Summit on Genome Editing: www.liebertpub.com/toc/crispr/0/0

The CRISPR Journal | Ahead of Print

The CRISPR Journal

liebertpub.com

Day 1 of the international summit on genome editing: as well as a stellar opening panel (Jasanoff w/ Baylis, Church, Cohen, Williams) we’ve already had bioethics in the medium of dance (Pigeonwing Dance Company) and a screening of ‘unspeakable conversations’ w/ O’Reilly (playwright) in conversation.

Talking with a range of professionals in relevant fields the PHG Foundation Humanities team is examining trends and challenges in health AI governance. www.phgfoundation.org/blog/first-d... ➕ Lots more on AI from the University of Cambridge www.cam.ac.uk/ai #shapingAIforeveryone

First do no harm: shaping health AI governance in a changing global landscape - PHG Foundation

The PHG Foundation Humanities team examines trends and challenges in health AI governance

phgfoundation.org

Much reaction has focussed on data security. Some on the value of research resources. The issue of how to square the ideals of a global republic of science with technonationalism got less attention. A major concern is that the shrill reporting undermines confidence in research participation.

UK Biobank@ukbiobank.ac.uk · last yr.

In response to a recent Guardian article about why approved researchers in China can access our data, we have provided some additional information for our participants, including how we follow Government guidance on who can use UK Biobank. Please read here: ow.ly/yWsi50VAIIH

Federal advisory panel on ethical, legal issues in human health research disbanded: SACHRP panel provided guidance to HHS for more than two decades www.statnews.com/2025/04/03/h... via @statnews.com

Federal advisory panel on ethical, legal issues in human health research disbanded

A committee of experts that advises HHS on emerging ethical and legal issues in human health research has been disbanded, according to an email obtained by STAT.

statnews.com

Published today: Optimising EXome PREnatal Sequencing Service (EXPRESS) policy report. Findings and policy recommendations for service delivery at: www.phgfoundation.org/publications... #prenatalcare @cambridge-scm.bsky.social @ox.ac.uk @england.nhs.uk @cambridgebrc.bsky.social @nihr.bsky.social

Optimising EXome PREnatal Sequencing Services - PHG Foundation

The optimising EXome PREnatal Sequencing Services (EXPRESS) policy report outlines actions to strengthen clinical implementation of, and further research on, prenatal exome sequencing services in the ...

phgfoundation.org

Organicism has just been biding its time. I had the pleasure of attending this lecture live but I am recommending the recording to all my colleagues.

Centre for Personalised Medicine@cpmoxford.bsky.social · 2y ago

If you missed last week's brilliant annual lecture from @philipcball.bsky.social, you can now watch it here: youtu.be/fzVZZcxERwU

We've set out our strategic direction and priorities for 2025-30 in a new @phgfoundation.bsky.social publication. In a related post I describe where I think efforts to 'make science work for health' have brought us and what PHG's role can be: www.phgfoundation.org/blog/policy-...

Policy, governance, ethics: refreshing the PHG Foundation's strategic focus - PHG Foundation

We want to make science work for health but we also want science that works for health. Here's how

phgfoundation.org

Heat, Health and Human Genetics - if you’re following #COP28  and are interested in the effects of climate change on human health you should read our new @PHGFoundation report published this week: phgfoundation.org/report/heat-...

Heat, health and human genetics

phgfoundation.org