Leading up to PHA 2026, we documented Flat Matt’s cross-country journey to Dallas on social media. Kelly Dickson, PH navigator at AnMed Medical Center, was inspired by that campaign and created her own Flat Matt. Learn more: buff.ly/y4MU5Gq
Pulmonary Hypertension Association
@phassociation.org
PHA is the oldest and largest pulmonary hypertension association dedicated to supporting patients, families and health care providers. #PHAssociation #PHA
A recent study published in Respiratory Medicine found that higher pressure resistance in the blood vessels of the #lungs could indicate greater chance of hospitalization for people with #COPD-related #PH. Learn more about the findings: buff.ly/WqFSsWJ
Registration for the #PHWellnessExpo opens Aug. 11. Join #PHA on Oct. 10, in San Francisco to connect with local organizations, discover valuable resources and find support within the #PH community. The expo is free and open to anyone affected by #PH. Learn more: buff.ly/fLO67on
Every person’s PH journey is different. For those living with CTEPH, the disease brings its own set of challenges and treatment considerations. Join PHA’s CTEPH Facebook group to connect with patients, share your experience and help others in the PH community. buff.ly/ARyv5AX
Adults with a serious respiratory illness and those who care for them are invited to take a short global survey to help researchers better understand the support that matters most to patients and families. Take the survey: buff.ly/lk8sFql
During the summer, your systemic blood pressure may run slightly lower than it does during colder months. If you feel weak, tired or lightheaded, consult your doctor about changes to your treatment plan. buff.ly/j7fs47t
The Northern California O2breathe walk is one month away! Join the local PH community on Sunday, Aug. 30, at Crissy Field in San Francisco. The event is free to attend and open to anyone affected by PH. Register now: buff.ly/1rpOZam
The 17th annual PH in the Park is one month away! Join PHA, University of Colorado Denver, and Colorado Children’s Hospital s on Sunday, Aug. 23, at City Park in Denver for a 5k run and walk to honor the PH community. The event is open to anyone affected by #PH. Register now: buff.ly/Eyx7K3y
The Advocacy Action Alert is a monthly newsletter for anyone in the #PH community that would like to learn more about PHA's #advocacy efforts. Each newsletter shares advocacy opportunities, legislative updates, patient stories and more. Subscribe today: buff.ly/3tkp7HB
Interacting with fellow #patients and #caregivers can help combat isolation. Join PHA’s “Long-term Thrivers with PH” Facebook group to connect with others with #PH and gain support, knowledge and empowerment. buff.ly/JPyhCEv
In a recent opinion piece, PHA advocate Lindsay Cipriani shares how her daughter's PH diagnosis inspired her to become an advocate for oxygen access. Through their experience, Lindsay has seen how policy barriers can delay access to oxygen therapy. Learn more: buff.ly/jY7fcvj
Join PHA, the PVRI PHGPS Task Force and PHA Europe for a webinar on Aug. 13, at 11 a.m. EDT/3 p.m. UTC. Speakers will discuss findings from the PH Global Patient Survey and how the data can be used to support local PH communities. Register now: buff.ly/dWsCOvT
For decades, Beverly Adams has lived with #lupus and #scleroderma. Eighteen months ago, she was diagnosed with #PH. Navigating each diagnosis has not been easy, but her unwavering faith has guided her through each challenge. Learn more: buff.ly/QgckTOs
Living with #pulmonaryhypertension as a teen comes with unique challenges, but you don’t have to face them alone. Join PHA’s “PH Teens” Facebook group to connect with fellow patients ages 13-19 and gain support, knowledge and empowerment. buff.ly/yJi6pna
PHA’s Peer Mentor program is an opportunity for members of the PH community to use their own lived experience to provide encouragement and support to others. The time commitment for this volunteer role is approximately three hours a month. Learn more: buff.ly/j4kORCb
In a recent opinion piece, Rock LeGrand shares his experience living with #COPD. Rock uses a portable oxygen concentrator, but his activities are limited because the battery only lasts three hours. As a result, he must carefully plan his days and is unable to travel. Learn more: buff.ly/nvFjpyf
Certain summer activities should be avoided, specifically those that increase your heart rate or put you at risk of low oxygen levels. When attending outdoor events, ask about medical exemptions, so you don’t have to wait in long lines. Learn more about summer safety tips: buff.ly/2Ssudgf
The deadline is approaching for the AHA/PHA 2027 Postdoctoral Fellowship. In partnership with the American Heart Association, the initiative supports research focused on #PH and pulmonary vascular disease to improve patient outcomes. Apply by Aug. 5, 2026, at 3 p.m. EDT. buff.ly/p2hEAwo
A PHA-supported survey found that people ready to be discharged from the hospital are being forced to stay extra nights due to a lack of adequate at-home oxygen supplies. 54 clinicians were surveyed, representing 40 medical centers across the U.S. Learn more: buff.ly/U9Xpfz6
Did you know PHA has a YouTube channel? You can find pulmonary hypertension educational resources, webinar recordings, podcast episodes and more. Visit our channel and subscribe today: buff.ly/ejY30l3
On the next season of “Who Wants To Be a Millionaire,” actor and rapper Awkwafina will compete for a chance to donate $1 million to PHA. Awkwafina chose PHA because her mother died of pulmonary hypertension in 1992 when she was 4 years old. Learn more: buff.ly/FIEWnDj
Time is running out to register for PHA’s upcoming webinar on inhaled therapies to treat pulmonary hypertension. Join us tomorrow, July 23, at 2 p.m. EDT/ 6 p.m. UTC to learn about approved treatments and how to safely use them. Register now: buff.ly/9Z0Ik9Y
Join us tonight, July 21, at 8 p.m. EDT for our monthly virtual CTEPH Support Group meeting. Connect with others to discuss challenges and coping strategies to best manage life with #CTEPH. Register now: buff.ly/Pp9OYwd
Registration for the free #PHWellnessExpo opens Tuesday, Aug. 11. This free event is open to all members of the #PHcommunity. Visit the #PHA website to learn more about the event. buff.ly/CIrM9Zl #PHWellnessExpo
Join PHA tomorrow for insights on long-term career growth. Speakers will discuss how to prepare for promotion conversations and best practices for fostering sponsorship relationships. The Women’s PHorum is sponsored by Gossamer Bio with support from PHA. Register now: buff.ly/VlwkqdR
Rebecca Colby Reed Walker was diagnosed with #PH in 2022. Since her diagnosis, Rebecca has learned how to build the right care team, manage medications and #oxygen therapy, and find support through a PHA support group. Learn more: buff.ly/PZ8jjnF
#PH treatments can be costly with or without #insurance coverage. Several organizations offer financial assistance for copays and premiums to help cover medical costs. Learn more on the PHA website: buff.ly/QnVETDm
On the latest episode of PH Insights, researchers discuss the future of #PH care, including #scientific advancements and #treatments on the horizon. Listen now to learn how collaboration and #data are improving quality of life for people living with PH.
PH Insights Podcast
The Pulmonary Hypertension Association’s PH Insights podcast amplifies the voices of the pulmonary hypertension community.
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To beat the heat this summer, monitor daily forecasts and limit your exposure when temperatures rise. You can better regulate your body temperature by doing outdoor activities in the early morning or late afternoon instead of during extreme heat. Learn more: buff.ly/2Ssudgf
Join PHA for a webinar on how to prepare for negotiation and promotion conversations. Speakers will discuss building sponsorship relationships and creating roadmaps for long-term career growth. The Women’s PHorum is sponsored by Gossamer Bio with support from PHA. Register now: buff.ly/VlwkqdR