You’re invited: Basic Science of Pain in Intellectual and Developmental Disabilities Join IASP and the Pain in Intellectual and Developmental Disabilities SIG for a webinar. Wednesday, 8 September 2026 | 10:00 a.m. EDT Register here: https://loom.ly/Y8W9zYE

National survey study shows children with disabilities had an elevated risk of parent-reported chronic pain, highlighting the importance of targeted screening and enhanced interventions. https://loom.ly/btTbCZk

New research shows that children with cerebral palsy may have distinct sensory reactivity profiles—patterns in how they respond to touch, pressure, or heat. These findings could help us better understand chronic pain in CP and move toward more personalized care. https://loom.ly/2UAe0QU

The feasibility of a subgroup approach to create sensory-motor behavioral response profiles from a modified quantitative sensory test in cerebral palsy - PubMed

Cerebral palsy is the most common motor disorder of childhood, leading to lifelong disability and associated comorbidities, including a high incidence of chronic pain. This hypothesis-generating study aimed to (1) investigate a modeling approach to subgrouping based on behavioral reactivity (BR) to …

pubmed.ncbi.nlm.nih.gov

Infants and children with intellectual disabilities are at high risk for pain—yet there’s a major gap in assessing it. This new review highlights what tools exist, where they fall short, and next steps. https://loom.ly/maWbip0

New review highlights how autistic people communicate during moments of distress, including pain. Non‑spoken communication is common. Attending to the many ways autistic people communicate is key to truly supportive care. 💙✨Find out more: https://loom.ly/ZUqfMjQ

Describing the communication of autistic people during experiences of distress: A scoping review - PubMed

Autistic people can experience distress for many reasons. Some of these reasons may include unsupportive environments; experiences of trauma; sensory overload; burnout, inertia, meltdown and shutdown; pain; and mental health diagnoses such as anxiety. Little is known about how distress can impact co …

pubmed.ncbi.nlm.nih.gov

✨ Calling all early-career researchers! Win an award for your pain research by submitting a poster abstract for WCP 2026 in Bangkok (Oct 26–30)! 🗓️ Deadline: Feb 15. Don't miss the special Pain in IDD award opportunity! Check it out: https://loom.ly/fHpDIMU

🌟 Rising to the Occasion: Assuring Quality Care Across the Lifespan A virtual conference on developmental disabilities & complex care ✅ Expert speakers ✅ Topics: health equity, mental health, aging & more #Healthcare #DevelopmentalDisabilities 📅 Register now: https://loom.ly/NYmNNL0

🧠 Surgery can trigger new tactile corpuscles near incision—linked to postsurgical pain via BDNF-TrkB signaling. ⚠️ This matters, people with dev disabilities often face multiple surgeries in their life. #PainResearch #DisabilityHealth #Allodynia https://loom.ly/Sl31New

Postsurgical tactile-evoked pain: a role for brain-derived... : PAIN Reports

and central pain circuits have been studied, but the peripheral tactile drive has not been explored. Objective: Investigate the innervation of the skin in the rat plantar hindpaw skin–muscle incision model. Results: Incision increased epidermal thickness and cell layers and reduced intraepidermal nerve fibre density, identified with PGP9.5 immunostaining. Strikingly, Collagen IV immunostaining revealed the development of dermal protrusions, oriented towards the incision site, that w...

journals.lww.com

🚨 New review: Malnutrition drives complications in pediatric hip & spine surgery. ERAS protocols + nutrition may improve outcomes. BMI > lab tests for risk prediction. #PedsOrtho #Nutrition #ERAS #CerebralPalsy #Scoliosis https://loom.ly/Cww780Q

We hope to see you in Bangkok this year!

International Association for the Study of Pain (IASP)@iasp.bsky.social · 11mo ago

IASP connects pain professionals across 100+ countries, creating opportunities for collaboration. That collective spirit is what makes the World Congress on Pain the world’s largest and most impactful gathering of pain professionals. bit.ly/4nfC5eo #PainAwarenessMonth #IASP26

🎓✨ Join us for a Student Data Blitz 📊 Rapid-fire presentations by emerging scholars, followed by our SIG business meeting. Don’t miss this chance to connect, learn, and shape future research #PainIDD #StudentResearch #Neurodiversity #DataBlitz https://loom.ly/YTriY04

International Association for the Study of Pain: Pain in Intellectual and Developmental Disabilities Special Interest Group Student & Early Career Presenters – Data Blitz and Business Meeting

Link to register for the webinar and business meeting

perc.iasp-pain.org

What puts children at risk for intellectual disability? Research summerizing 58 studies highlights low SES, minority ethnicity, teenage motherhood, maternal mental illness & alcohol use. Early interventions could make a difference. #ChildDevelopment https://loom.ly/-06u7xY

New Core Outcome Set for Chronic Pain in CP: 20 validated tools to assess pain interference and emotional impact in children with cerebral palsy. #CerebralPalsy #PainAssessment #ClinicalResearch #PatientCenteredCare #ICFFramework https://loom.ly/bihVhxY

Chronic pain is a significant issue for children with autism spectrum disorder (ASD). Research shows that, among over 177,000 children, those with ASD experience more pain, particularly headaches, compared to their peers. https://loom.ly/fg-0fB8

Chronic Physical Pain in Children With and Without Autism Spectrum Disorder in the United States: Findings from the 2016 – 2021 National Survey of Children’s Health - Journal of Autism and Developmental Disorders

Individuals with autism spectrum disorder (ASD) have long been reported to exhibit atypical pain experiences. Chronic physical pain is a significant comorbidity in ASD, leading to substantial burdens on daily functioning and quality of life. This study aims to examine the potential associations between ASD and chronic physical pain, including its specific types. The study used data on chronic physical pain and headaches from the 2016 – 2021 National Survey of Children’s Health. Participants w...

link.springer.com

Are you or someone you know using a feeding tube? Share your thoughts in a short survey to influence important research! You can help kids recover faster after surgery! Join us at https://redcap.link/tubefeed to take part. No surgical experience required! #FeedingTube #HealthResearch #KidsHealth

@SalahElTallawy authored a great review of the state of the field of pain in individuals with intellectual disabilities if you're looking for an update! #Pain #DisabilityAwareness https://loom.ly/RYQ27Eg.

Pain Management in the Most Vulnerable Intellectual Disability: A Review - Pain and Therapy

This review is made up of two parts; the first part discussing intellectual disability (ID) in general, while the second part covers the pain associated with intellectual disability and the challenges and practical tips for the management of pain associated with (ID). Intellectual disability is characterized by deficits in general mental abilities, such as reasoning, problem solving, planning, abstract thinking, judgment, academic learning, and learning from experience. ID is a disorder with ...

link.springer.com

"Hanging on by a Thread" Parenting kids with complex medical needs brings extraordinary challenges and remarkable strength. Healthcare professionals can make a difference by understanding the holistic needs of every family member. #FamilyCare https://loom.ly/BKqOpiU.

“Hanging on by a Thread”: The Lived Experience of Parents of Children with Medical Complexity

Background: Families with children with medical complexity endure high levels of chronic and toxic stress, impacting the overall health and wellbeing of all family members and the system as a whole. The purpose of this study was to examine the lived ...

pmc.ncbi.nlm.nih.gov

Our PIDDSIG leadership was honored to connect with community members at the University of Glasgow, such as nurses, parents, and therapists, addressing crucial subjects like #PainAwareness, assessment, and treatment for those with Neurodevelopmental Disabilities. #CommunityEngagement #HealthCare

#ISPP2025 in Glasgow provided great opportunities to advance collaborations and share science in #Pain and #neurodivergence.

Got 2.5 minutes? Yes you do! This thought provoking silent video will change the way you think about pain in those that cannot tell you about the pain they feel. #PainAwareness #DisabilityAwareness https://loom.ly/ygpBXak

#ISPP2025 will have great representation of pain in children and young people with #neurodevelopmental disabilities. Let us know if you'll be there! #InclusionMatters @iasp.bsky.social

Register for the 28 May PIDDSIG webinar: Advances in the Understanding and Assessment of Chronic Pain in Children and Young People with Cerebral Palsy for updated information on this chronic pain condition. bit.ly/4d95Mtr

Register now for our May 28th webinar: “Advances in the Understanding and Assessment of Chronic Pain in Children and Young People with Cerebral Palsy.” bit.ly/4d95Mtr

Development of clinical guidelines for neonates with #neuroirritability developed at Connecticut Children’s and shared at #USASP2025

Incredible work going on @ University of Florida in brain structure, function, pain, and Autism! #USASP2025

PIDDSIG officer @CCBurkitt presented poster on novel surgical #pain profiles and rates of chronic postsurgical pain in #CerebralPalsy at #USASP2025

#PainInterference moderates pain #catastrophizing and #nutrition in this surgery study. Stay tuned for more great things from this student and this lab! #USASP2025

We enjoyed seeing a busy lunch crowd today at #USASP2025 and lots of great science being shared in beautiful Chicago!

Michelle Failla@docfailla.bsky.social · last yr.

Come and visit us if you’re at #USASP2025 at the Pain in Intellectual and Developmental Disabilities special interest group table at the lunch round tables! We have candy! @pidd-iasp.bsky.social

Increased prevalence of Autism just released by CDC underscores increased need for diagnostic, treatment, and support services. www.cdc.gov/mmwr/volumes...

Prevalence and Early Identification of Autism Spectrum ...

This report describes autism spectrum disorder prevalence and early identifications patterns among children aged 4 and 8 years old.

cdc.gov

The April 2025 issue of #PAIN is out now! Catch up on the latest pain research at bit.ly/4frygyC