We're proud to announce our 2026 research grant and fellowship recipients and with it, a 50% increase in our funding. Thanks to the generosity of our supporters, we’ve increased the size of each two-year research grant from $160,000 to $240,000.
PKD Foundation
@pkdfoundation.bsky.social
Dedicated to finding treatments and a cure for polycystic kidney disease (PKD). www.pkdcure.org
A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants.
A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants.
The PKD Foundation is deeply saddened by the passing of Dr. James Calvet, a pioneering researcher whose work helped shape our understanding of PKD and inspired generations of scientists.
A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants.
We're excited to see national news coverage highlighting the historic introduction of the first bill ever introduced in Congress specifically focused on polycystic kidney disease. www.nbcchicago.com/news/local/n...
Proposed federal law would direct efforts to find cure for common kidney ailment
There’s hope that new federal legislation could one day help find a cure for polycystic kidney disease (PKD), one of the most common genetic disorders.
nbcchicago.com
A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants.
Today is a landmark moment for the PKD community: for the first time ever, Congress has introduced PKD-specific legislation.
A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants.
Make a gift today that will have TWICE the impact! In the last year, our incredible donor community has helped PKD Foundation... 💙 Invest more than $2 million in innovative PKD research
We sat down with Cristen Wathen, Ph.D., LCPC, NCC., to voice questions from the community about mental health and life with PKD. In this conversation, she explores managing anxiety, guidance on seeking support, and communicating needs with others. youtu.be/TyyNLe-C4Yk
Mental Health& PKD: Expert Answers to Community Questions with Cristen Wathen, Ph.D., LCPC, NCC.
YouTube video by PKDFoundation
youtu.be
It’s Mental Health Action Day, and we want to encourage the PKD community to do something for their mental health today. Take part by choosing one of the following ⬇️
A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants.
The science of PKD is moving faster than ever. We need you to keep the momentum going. Right now, all gifts are matched — thanks to generous donors — up to $30,000. DOUBLE your impact today. pkdcure.org/endPKDnow
The PKD Foundation is proud to support the American Cures Act, reintroduced by Sen. Dick Durbin and his colleagues. www.durbin.senate.gov/newsroom/pre...
Durbin Reintroduces Legislation To Ensure Stable, Robust Funding For Biomedical Research, Deliver Hope For Patients | U.S. Senator Dick Durbin of Illinois
The Official U.S. Senate website of Dick Durbin
durbin.senate.gov
Our 2025 Impact Report is here! Discover the progress we’re driving with the support of our community during one of the most promising times in PKD research. Read the full report ➡️ go.pkdcure.org/IR25Social
Every piece of information shared through the ADPKD Registry helps researchers better understand polycystic kidney disease. By participating, you can shape the future of ADPKD research. Join today ➡️ pkdcure.org/registry.
According to Health Resources and Services Administration, over 2,000 children in the U.S. are currently waiting for a life-saving organ transplant. “Kidney Transplantation in Children,” a 2022 PKDCON session helps explain what this journey can look like for PKD families. youtu.be/59kBU9smVF0
Kidney Transplantion in Children
YouTube video by PKDFoundation
youtu.be
Volunteer Appreciation Week starts today! 💙 The passion, dedication, and commitment of our volunteers continue to move us closer to a future free from PKD. Thank you for all you do.
In our latest podcast episode, Heedeok Han, MD, explores the benefits of pre-emptive kidney transplants, early referrals, and proactive care to help support better kidney health and quality of life. Listen now: pkdcure.org/PKDChronicle...
April is Minority Health Month and an important reminder that equitable care matters. Check out this article by Pranav Garimella, MBBS, MPH, FASN, and Clinic Director at the University of California, San Diego, a PKD Foundation Center of Excellence. www.consultantlive.com/view/rewriti...
How Rewriting Race-Based GFR Equations Changed Kidney Transplant Access, With Pranav Garimella, MBBS, MPH
Garimella discusses the history, clinical impact, and rationale for removing race-based GFR from clinical decision-making.
consultantlive.com
At #ISNWCN, we spoke with Lilian Kaplan Prize winner Prof. Ron Gansevoort. “Be inspired. We are all clinicians. That's our basic task.” He encourages young nephrologists to pursue research while staying grounded in clinical care. 🎥 bit.ly/3PU8aN3 @pkdfoundation.bsky.social
Congratulations, Ron T. Gansevoort, professor of medicine and nephrologist at the University Medical Center Groningen in the Netherlands, on receiving the 2026 Lillian Jean Kaplan International Prize for Advancement in the Understanding of polycystic kidney disease.
Virtual registration is now open for PKDCON 2026! If you can’t join us in Chicago, you don’t have to miss out on all the valuable education. Planning to attend in person? Tickets are still available, but are expected to sell out this April. Register Today go.pkdcure.org/PKDCON26Social
We excited to join the global kidney community at the World Congress of Nephrology 2026, hosted by the International Society of Nephrology. We look forward to convening with researchers from around the world to share the latest advancements in kidney health, research, and education.
For more than a decade, patients, donors, and advocates have pushed for living organ donation reform. In an op-ed published in The Kansas City Star, our CEO shares why this moment matters and why Congress must pass the Living Donor Protection Act. ⬇️ www.kansascity.com/opinion/read...
Donating an organ shouldn’t mean higher insurance bills. Congress, fix this | Opinion
Missouri’s Josh Hawley and Kansas’ Roger Marshall sit on a Senate committee that finally advanced a bill to keep people alive. Get it over the finish line. | Opinion
kansascity.com
⏰ Let us know you’re coming to tomorrow’s webinar! 📣 PKD Advocacy in Action: What it Means and How to Get Involved. ➡️ pkdcure.org/AdvocacyWebinar26
At PKDCON 2026, leading clinicians and researchers will present on topics that matter most to the PKD community, from the latest research advancements to practical guidance on managing the disease. Register today. ➡️ go.pkdcure.org/PKDCON26Social
Behind every breakthrough are dedicated scientists like Brittany Lasseigne, Ph.D. When she began collaborating with the PKD research community at the University of Alabama at Birmingham, she quickly recognized both the complexity of the disease and the opportunity to better understand it.
For World Kidney Day, we’re proud to spotlight the researchers advancing PKD science. Ron Perrone, M.D., has an extensive background in PKD research and currently serves as co-director of the PKD Outcomes Consortium (PKDOC), working in collaboration with us and the Critical Path Institute.
