PomonaKa

@pomonaka.bsky.social

Artist, traveler, living with advanced endometrial cancer, dogs & cat. Proud, Liberal Californian. She/her.

Any artist making work about breast cancer out there? This Southern California gallery (yes, it’s legit) is looking for work from breast cancer patients, survivors & caregivers for an upcoming exhibit. Contact office@dnjgallery.net for more info. And please share!. #cansky #oncosky #breastcancer

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My second day of a one-month break from Lenvima in advance of an overseas trip. I’m hoping I can actually taste & tolerate food while I’m traveling. I’ve been on Lenvima for 10 months & it’s been wreaking havoc on my entire GI system. 🤞🏻#cansky #oncosky

Good news! My oncologist confirmed that the spot on my lung that lit up on my PET scan two weeks ago was probably nothing as the subsequent diagnostic CT scan did not show any nodule in that location. So I’m cleared for my upcoming travel with a one month break from Lenvima! #cansky #oncosky #oncsky

Just got home from the CT scan ordered to try to identify the spot in my right lung that showed up on my latest PET. Not much scanxiety this time, no idea why. I was a basket case waiting for the PET, but not this time. It will be what it will be.

After an anxious 2 days, I got my latest PET scan results yesterday. No evidence of new or residual disease! That makes 8 months since my brachytherapy & the addition of Lenvima along with the Keytruda. One unidentifiable new spot in my right lung. But I won’t worry about it until we have more info.

I had my first appointment with a Supportive Care Medicine doc yesterday. What a relief to have a doc spend an entire hour with me discussing my concerning, but not debilitating, side effects. Those would be the same SEs brushed off by my med onc because they don’t show up on lab tests. #cansky

Cancer treatment is so weird. Due to side effects from Lenvima, I’ve lost almost 30 lbs since Nov. Nutritionist: “You need dense calories. Eat fat. Bacon, butter, cheese, olive oil. Drizzle a tablespoon of olive oil over your bowl of soup - that’s 100 more calories right there.” #cansky #oncosky

Well, my suspicion was correct: I am to stay on the Keytruda & Lenvima until either I have a recurrence or can no longer tolerate the side effects. Bleh. How is chocolate not tasting right a tolerable side effect? I’m not good with open- ended timelines. #cansky #oncosky

Got my scan results just now - no evidence of residual disease! (And nothing new either!) Next is to find out how long I have to stay on this damned lenvatinib. So, back with NED, but now I know it’s a fickle relationship & won’t last. But I will enjoy it while it does!