Funding Opportunity for Research: @PSCSupportUK 2026 Research Grant Round is OPEN! We're offering Seed Awards (up to £15k) & Project Grants (up to £50k) for innovative research into #primarysclerosingcholangitis (#PSC). LOI Deadline: 31 Aug 2026 🔗 pscsupport.org.uk/apply-for-fu...

New research explained: A study on long-term add-on fibrate therapy in PSC showed reduced itch and lowered ALP levels in early-stage disease. While not a cure, it adds valuable evidence as we await Phase 3 trial results. Read our full summary: pscsupport.org.uk/find-a-cure/... #LetsBeatPSC

⏰ REMINDER: Don't miss our next Ask the Expert webinar! Join Prof. Palak Trivedi, Prof. Michael Trauner & Prof. Andreas Kremer as they unpack the latest PSC clinical trial results & the path to new treatments. 📅 Wed 12 Aug | 19:00 UK time 📍 Zoom buff.ly/Cb0TEHa #LetsBeatPSC

Secure your spot on #TeamPSCSupport for the Great South Run! 🏃‍♂️ Reg Fee: Just £25 Fundraising Target: £300 Reg deadline: 27th Aug Race Day: 18th Oct 2026 Grab your place before they're gone: runforcharity.com/charity-regi... #GreatSouthRun #PSCSupport #LastChance #RunForCharity #LetsBeatPSC

Oh we do like to be beside the seaside! 🏃‍♂️🌊 Join #TeamPSCSupport at Brighton Marathon. 26.2 mile scenic coastal course, lively crowd cheer points and epic seaside finish line! ➡️ buff.ly/xqWixhg #BrightonMarathon #PSCSupport #RunForCharity

Why research aspirin for #PSC? Dr Rushbrook explains! The #AspPSC study is exploring if daily aspirin lowers the risk of PSC-related cancer & liver transplants for those with PSC + IBD. 🏥 45+ UK sites 💊 1 pill/day for 5 yrs ℹ️ buff.ly/1bJnR2T#AskA... #LetsBeatPSC

At 30, a sudden diagnosis turned Matt's life upside down, leading to a battle with PSC and UC. Today, he's sharing his journey to bring a voice to this misunderstood disease and inspire others. #ChronicIllness #RareDisease #PatientStory #PSCSupport #LetsBeatPSC #ThankYouThursday

🥳 We're back! Our website is now back online. Thank you for your patience today. www.pscsupport.org.uk

⛑️ The PSC Support website will be offline for maintenance for a while this afternoon. We're sorry for any inconvenience. We'll be back soon! 👋🏻

There’s no such thing as a “PSC diet”! ❌ No evidence shows diet slows PSC progression, but many patients alter how they eat to feel better day-to-day and manage symptoms. NOTE: Disease progression is NOT a reflection of diet choice. Info ➡️ buff.ly/iyWfvAg #LetsBeatPSC

How can we better predict disease progression in PSC? New research highlights active vitamin B6 as a potential prognostic biomarker. Studies suggest measuring B6 could help assess risk & improve monitoring for people living with #PSC. ➡️ buff.ly/dqOmSUj #LetsBeatPSC #PSCResearch

4 days cycling. 2 cities. 2 bikes. Gillian and John are taking on a big challenge: Cycling from London to Paris over the course of 4 days for #PSCSupport! Donate or share her Enthuse page here: buff.ly/us4sTSm #LetsBeatPSC #TeamPSCSupport #RareDiseaseCommunity

When your brain has 50 tabs open but none of them are loading... 🌀👀 PSC fatigue isn't just "being tired", and when brain fog joins the party, even the simplest tasks can feel like climbing a mountain. Be gentle with yourself today. #PSCSupport #BrainFog #ChronicFatigue

Whether you want to walk, jog, or run - make every step count for people living with PSC. From the Jurassic Coast to the Peak District, the Ultra Challenge Series offers events across the UK. You choose the pace and distance that suits you. ➡️ buff.ly/qKyGOlc #LetsBeatPSC

100,000 steps a week for #PSCSuport! 👟 A huge thank you to Marianne, who is taking on a massive walking challenge this month in honour of her niece, Melanie, who lives with ulcerative colitis and PSC. 👉 Read Melanie’s story, follow Marianne's progress, or donate here: buff.ly/h6BeiHr #LetsBeatPSC

Ever wondered what PSC looks like inside the body? Think of your bile ducts like a tree. In a healthy liver (left), bile flows smoothly down the branches and out the trunk to help you digest food. But in PSC (right), an autoimmune attack causes chronic inflammation, leading to scarring and narrowing

Living with or supporting someone with PSC can be exhausting, physically and emotionally. Taking time for yourself isn't selfish, it's essential. How are your squares looking? #SelfCareDay2026 #LetsBeatPSC #PSCSupport #PSC #LiverHealth #SelfCareBingo #ChronicIllnessSupport

Thank you everyone in our global community who shared their experiences. The results are live and highlight a truth many of us know all too well: the heavy, life-altering burden that chronic itching (pruritus) and fatigue place on daily life with PSC. ➡️ pscsupport.org.uk/internationa... #LetsBeatPSC

Imagine trying to explain a medical emergency while in the middle of it. An acute cholangitis attack is scary, communicating symptoms to A&E staff shouldn't be another hurdle. Our free PSC Alert Card does the talking for you. Order yours today buff.ly/CTU84ta #LetsBeatPSC

Because #PSC progresses differently for everyone, predicting how it will develop is a massive challenge for doctors. A new study has developed a simplified '3-biomarker' blood test that measures scarring, inflammation & #guthealth simultaneously. ➡️ pscsupport.org.uk/predicting-p...

PSC is a complex and difficult condition. Fundraising heroes like Oliver are vital in helping us provide support and hope to everyone affected. Thank you Oliver and to everyone who has donated so far. Have an amazing jump and enjoy the view. 👇️ www.justgiving.com/fundraising/...

"I'm doing this triathlon, mainly because I can." Four years ago, James had a #livertransplant following 3yrs of terrible symptoms, cirrhosis and worry. Last month, he took on Blenheim Palace Sprint Triathlon, raising £1,316 for #PSCSupport! 🏊‍♂️🚴‍♂️🏃‍♂️ #LetsBeatPSC #TeamPSCSupport

NHSBT is reviewing how it listens to and works with patients, donors, and donor families. ✔ Takes just 5–10 mins ✔ Anonymous ✔ Won't affect care or support 👉 Patient Survey: forms.office.com/pages/respon... 👉 Donor & Donor Family Survey: forms.office.com/pages/respon... #OrganDonation #LetsBeatPSC

On 1st May 2026, we lost Gary Taylor, a kind, resilient man who transformed PSC Support. As a patient, Trustee (2018-21), and volunteer, he helped build our website, supported us through Covid, and helped secure critical trial funding. He will be deeply missed by all.

🎉 Big news! We’ve officially passed the @AMRC Expert Review Audit! This ensures we always fund the best peer-reviewed research to drive better health outcomes for the PSC community. 👉 Learn more about our research: buff.ly/T51elq6 #LetsBeatPSC #PSCResearch

Missed the London Marathon? 💔 We’ve got the perfect backup! Join Team PSC Support for the London Landmarks Half Marathon! Charity places for this iconic race are nearly full, so act fast. Raise vital funds & help beat PSC. 🏃‍♂️ Secure your spot: buff.ly/YVbkfiv #TeamPSCSupport #LetsBeatPSC

We hosted an expert round table on 19th June, chaired by Becki Carter, to map out an ideal end-to-end #PSC care pathway in the #NHS. This work aimed to ensure high-quality, consistent care across the UK, preparing us for future treatments. Full summary: buff.ly/gOqPJbS

Join us 12 Aug 12 at 7pm (UK) for a special webinar on the changing landscape of PSC research. Prof's Palak Trivedi, Michael Trauner & Andreas Kremer will map out the road to effective treatments and explain what recent clinical trial results mean for patients. buff.ly/xjB1Z3B

The liver is the ultimate multi-tasker, managing hundreds of essential functions every single day, from filtering toxins to processing nutrients. Understanding what the liver does makes it easier to understand what PSC patients go through. #PSCSupport #LiverDisease #LiverHealth

The ballot results are OUT! If you were lucky enough to score a place in the 2027 London Marathon: CONGRATULATIONS! 🎉 We'd love for you to bring your ballot place to #TeamPSCSupport! Join the team today! 👉 buff.ly/vvDWj0Y #LondonMarathon #PSCSupport #BallotPlace