The Government has published a progress update on the Modern Service Framework for Palliative Care and End-of-Life Care. We'd like to see local commissioning arrangements reflect the full range of services children and families rely on. Read more: www.rainbowtrust.org.uk/latest-news/...

Modern Service Framework should recognise the full range of support families need

Rainbow Trust Children's Charity provides emotional and practical support to families who have a child with life-threatening or terminal illness.

rainbowtrust.org.uk

Rainbow Trust has responded to today’s King’s Speech, welcoming proposals within the NHS Modernisation Bill and Education for All Bill. Families with a child with a life-threatening or terminal illness need joined up support across health, care and education: www.rainbowtrust.org.uk/latest-news/...

Rainbow Trust Respond to Kings Speech May 2026

Rainbow Trust Children's Charity provides emotional and practical support to families who have a child with life-threatening or terminal illness.

rainbowtrust.org.uk

We have selected a team of intrepid explorers to take part in a trip to the Arctic Circle. They’ll train in cross-country skiing, snowshoeing, Arctic survival skills, navigation, and campcraft. All this whilst raising vital funds for seriously ill children and their families.

Following a parliamentary debate about the role of grassroots charities, @zbingley.bsky.social, Chief Executive, said: "Charities must be recognised as partners in policy discussions and funding decisions, rather than treated as an afterthought." Read more: www.rainbowtrust.org.uk/latest-news/...

Response to parliamentary debate this week about the role of grassroots charities

Rainbow Trust Children's Charity provides emotional and practical support to families who have a child with life-threatening or terminal illness.

rainbowtrust.org.uk

Speaking today, Chief Executive, @zbingley.bsky.social said: “The Spring Statement is an important opportunity to influence government spending: it presents an opportunity for Government to take a holistic approach to public spending that supports families." www.rainbowtrust.org.uk/latest-news/...

Rainbow Trust responds to the Spring Statement

The Spring Statement is an important opportunity to influence future government spending.

rainbowtrust.org.uk

Welcome to our Impact Report: A Knock at the Door, so called because much of our support to seriously ill children and their families begins with exactly that. Please watch and share this post to open more doors to Rainbow Trust. Watch here: impactreport25.rainbowtrust.org.uk

"We welcome the Government’s announcement of £10 million to help families with the cost of travelling to cancer treatment. Any recognition of the financial pressure families face is positive," said our Chief Executive @zbingley.bsky.social. Read more: www.rainbowtrust.org.uk/latest-news/...

Rainbow Trust welcomes £10 million travel costs for children with cancer and calls for it to be extended to include other illnesses

Rainbow Trust Children's Charity provides emotional and practical support to families who have a child with life-threatening or terminal illness.

rainbowtrust.org.uk

Rainbow Trust’s Chief Executive, @zbingley.bsky.social, said: “The Budget was an important opportunity to provide stability for families with a seriously ill child, but it does not directly address support for children’s social palliative care.” Read more: www.rainbowtrust.org.uk/latest-news/...

Rainbow Trust responds to the Chancellor's Budget 2025

Rainbow Trust Children's Charity provides emotional and practical support to families who have a child with life-threatening or terminal illness.

rainbowtrust.org.uk

Emily is 14. Her condition is so severe that her family has been told she could stop breathing at any time. Families with a seriously ill child are facing heartbreak, worry and uncertainty alone this Christmas. Please donate today: rainbowtrust.org.uk/donate

Our Chief Executive, @zbingley.bsky.social, said:

"We welcome the £80 million for children's hospices but it does not go far enough.” Read more: rainbowtrust.org.uk/latest-news/rainbow-trust-responds-to-80-million-boost-for-childrens-hospices

Rainbow Trust responds to £80 million boost for children’s hospices

Rainbow Trust response to £80 million boost for children’s hospices.

rainbowtrust.org.uk

Take on Tour du Mont Blanc! A legendary trail running race across three countries. Register by 22 August for 50% off!   events.rainbowtrust.org.uk/tour-du-mont-blanc-alps-adventure/

Tour du Mont Blanc - Trail Running Adventure Challenge

Take on one of the world’s most breathtaking and iconic Alpine trail running challenges, while make a difference for seriously ill children.

events.rainbowtrust.org.uk

Zillah Bingley, Chief Executive comments on Fit for the Future: 10-Year Health Plan for England:    “Rainbow Trust welcomes the ambition in the new plan for the NHS to shift care closer to home, invest in prevention, and personalise support.” Read more: www.rainbowtrust.org.uk/latest-news/...

10-Year Health Plan for England reaction - Rainbow Trust Children's Charity

10-Year Health Plan for England reaction - Rainbow Trust Children's Charity

rainbowtrust.org.uk

Help us win £5000! 🙌   Want to support Rainbow Trust reach more families who need support?    Please take a minute to vote for us by visiting the link, and choosing Rainbow Trust Children's Charity or charity number 1070532 and selecting charity type: Health.    Voting closes 22nd June 2025.

Nominate a charity - Movement for Good

Nominate a charity for a Movement for Good award now.

youth.movementforgood.com

To mark #LonelinessAwarenessWeek, we are sharing two briefings into the loneliness and isolation experienced by families caring for a seriously ill child.   Read what families told us - and see what we’re calling on the government to change: www.rainbowtrust.org.uk/latest-news/...

Rainbow Trust published two briefings highlighting the levels of isolation and loneliness among families who have a seriously ill child

Rainbow Trust published two briefings highlighting the levels of isolation and loneliness among families who have a seriously ill child

rainbowtrust.org.uk

Zillah Bingley, Rainbow Trust’s Chief Executive, said:   “While we welcome the government’s renewed investment in the NHS, for families with a child who has a life-threatening illness, funding must go beyond clinical care."   www.rainbowtrust.org.uk/latest-news/government-spending-review-reaction

Government Spending Review reaction - Rainbow Trust Children's Charity

Parents’ voices supported by Rainbow Trust heard in Parliament.

rainbowtrust.org.uk

Rainbow Trust is proud to be part of the Digital Services Consortium’s (DSC) groundbreaking initiative to break the digital divide giving 20,000+ families the tools and skills to connect with confidence.    rainbowtrust.org.uk/latest-news/rainbow-trust-is-part-of-a-groundbreaking-digital-initiative

Rainbow Trust is part of a groundbreaking digital initiative to help thousands of disabled and seriously ill children

Rainbow Trust is part of a groundbreaking initiative, the Digital Services Consortium (DSC), to help thousands of disabled and seriously ill children.

rainbowtrust.org.uk

We are extremely grateful to Lord Cameron for being a guest speaker at a Rainbow Trust lunch on Monday 12 May. His heartfelt words about the impact of caring for a seriously ill child resonated with guests. Thank you very much Lord Cameron.

Our Chief Executive, Zillah Bingley, responds to new report published by the Commission on Palliative and End-of-Life Care: “I welcome this important report. On behalf of the families we support."   rainbowtrust.org.uk/latest-news/a-new-report-from-the-commission-on-palliative-and-end-of-life-care

A new report from the Commission on Palliative and End of Life Care has been published

Zillah Bingley Chief Executive of Rainbow Trust: Debating the future of palliative and end of life care

rainbowtrust.org.uk

Read two briefings into the loneliness and isolation experienced by families caring for a seriously ill child, for #MentalHealthAwarenessWeek.    See what we’re calling on the government to change: rainbowtrust.org.uk/policy-and-research/reports-and-research/isolation-and-loneliness-briefings

Isolation and loneliness amongst families who have a child with a life-threatening or terminal illness

Families caring for a seriously ill child often feel isolated and emotionally unsupported. Rainbow Trust's two new briefings share our findings.

rainbowtrust.org.uk

Yesterday our Chief Executive @zbingley.bsky.social shared important insights with the Commission on Palliative and End of Life Care. Read more here: www.linkedin.com/posts/zillah...

Yesterday I was delighted to have the opportunity to provide evidence to… | Zillah Bingley

Yesterday I was delighted to have the opportunity to provide evidence to the Commission on Palliative and End-of-Life Care on behalf of Rainbow Trust Children's Charity. It was a crucial opportuni...

linkedin.com

Rainbow Trust’s Chief Executive, Zillah Bingley, said: “Today’s Spring Statement was a missed opportunity to recognise the daily pressures faced by families caring for a child with a terminal or life-threatening illness.” www.rainbowtrust.org.uk/latest-news/...

Rainbow Trust's response to the Spring Statement

Rainbow Trust's response to the Spring Statement

rainbowtrust.org.uk

Today is #YoungCarersActionDay We see the challenges faced when a sibling is diagnosed with a serious illness. Our Family Support Workers provide practical and emotional support which can help these young carers cope. 💙    rainbowtrust.org.uk/support-for-families/ask-for-support #GiveMeABreak

Make a referral

Rainbow Trust Children's Charity provides emotional and practical support to families who have a child with life-threatening or terminal illness.

rainbowtrust.org.uk

Rainbow Trust is in the running to win approx £30k in the online fundraiser: Project 4 Awesome. We need your votes! All you need to do is click the link below and press vote! projectforawesome.com/watch?v=tPuGP8… Voting closes on 19 February. #project4awesome #P4A #project4awesome2025

Parents supported by Rainbow Trust were heard in Parliament yesterday! Too many parents of children with a serious illness face an impossible choice between work and care. Find out more here: rainbowtrust.org.uk/latest-news/parents-voices-supported-by-rainbow-trust-heard-in-parliament

Parents’ voices supported by Rainbow Trust heard in Parliament

Parents’ voices supported by Rainbow Trust heard in Parliament.

rainbowtrust.org.uk

Luke was diagnosed with leukaemia. Rainbow Trust supports the family with respite and helping with Luke’s anxiety. Together we can make sure families like Luke’s do not have to struggle alone this Christmas. Please donate today: rainbowtrust.org.uk/Luke

Alexander had an incurable life-threatening neurological disorder. Family Support Worker Jaimie is now providing essential support to them through bereavement, for as long as they need it. Please donate today: www.rainbowtrust.org.uk/Alexander