From all of us: We’d like to wish everyone to have a RARE Valentine’s Day! 💌 XOXO, Salem Oaks, LLC 🧡

Just a quick reminder to check out our Season 5 Premiere episode before the new episode drops. 🎧🧬 www.raisingrare.fm/episodes/ane...

We are happy to share, the NEW SEASON is now out!!! Listen to wherever you find podcasts! ♥️

Happy New Years from all of us at Salem Oaks & on the Raising Rare podcast! 🎆

Good Morning & Happy New Year’s Eve. Our final Top #mostlistened to episode was: Our Season 4 Premiere. Even though we didn’t have a guest on this episode, we still got updates from our Co-Hosts. From changes in their lives, to the holidays, struggles and hopes for the new year; 2023. 💛

Coming in at No. 2, we highlight the story of Kacy & Tim Wyman. Kacy is a 21 year old college student who was diagnosed with Cystinosis at age the age of 4 years old. Tim & Kacy have a truly Rare Disease story. 💛

No. 3, We have Jamas LaFreniere’s story of being a GSD/Rare parent. Jamas’ daughter Sophie has Glycogen Storage Disease 1B. Jamas discusses how their diagnosis journey has been for him, his wife & Sophie. 💛

At No. 4, we have Megan Loden’s story, Megan has three kiddos. 2 of her 3 kiddos are Twin Daughters, who both have a genetic rare disease: Familial Cerebral Cavernous Malformation aka FCCM. Megan’s daughters were diagnosed during Covid. 💛

Now let’s countdown the Top 5 Most Listened to episodes… Coming in at No. 5, Meet Dillon Loomis-Head. Dillon is a 28 year old, FARA ambassador, a Mental Health Advocate & a Rare Disease patient. 💛

In this special episode, we had to absolute pleasure speaking to Rare Mama: Susan Geoghegan. Susan has two kiddos w/Mitochondrial Disease & her story is empowering and embracing. However difficult & grief filled Susan’s story is, she has found light. 💛

Our Raising Rare Co-Hosts have a discussion that lets the audiences in on all the costs that come with Raising Rare. Caregiving is not easy & it comes w/some harsh truths. 💛

Episode 11 is next, we checked in with one of our first guests to join us on the podcast. Terry Pirovolakis is a parent. Terry’s son Michael has a disorder called: Spastic Paraplegia aka SPG50. 🧬

We’re gonna change it up a little… Now, We have, Episode 12 of Raising Rare. Which is an update from Dillon Loomis-Head about his journey with Friedreich’s Ataxia over the summer, into the early fall. ❄️

After our own Christmas Break… We’re back with our Episode Review. Join us on out catch-up before the New Year! ☃️

From all of us at Salem Oaks LLC, We’d like to wish you & yours Happy Holidays ⛄️

No. 20: Patrick Girondi is an author, songwriter, singer, founder of a gene-therapy company & most importantly a parent. Patrick's son has a rare disease called: Beta Thalassemia. 💛

Coming in at No. 19, We have the story of Vik Sharma. Vik is a father of two wonderful children, Lily & Mira. Mira was born non-verbal and non-ambulatory due to Cerebral Palsy. Vik is a seasoned caregiver who has created an app: MiraKare And we can't wait to see the important impact of the app. 💛

Coming in at No. 18: We have the story of Julia Taravella. Julia is a mother with 2 sons who both have a Lysosomal Storage Disorder; AGU, Aspartylglucosaminuria. Julia's story is one marked with hope, perseverance & 💛.

We got something exciting to share... 🤗 Over the next 2 weeks, We will be sharing the Most Listened to Podcast episodes from Season 4. 🎧 🎙️ So stayed posted. Remember Raising Rare can be found wherever you like to listen to podcasts.

The Raising Rare podcast team is so thankful for all of you! Thank You for tuning in to every episode, sharing your stories & giving us the energy that we have needed to keep this going. Tune in to Season 5 when we return w/more stories in 2024. You can catch-up on the Podcast wherever you listen. 🎧

Thank you all for the support this year. Listening and subscribing helps a lot, now you can also share Raising Rare by wearing apparel from our merch store. apparel4zebras.etsy.com?coupon=CYBER...

A new episode of Raising Rare is available now. www.raisingrare.fm/episodes/nev...

Never Give Up.  Mistakes will lead you to discoveries — Raising Rare

At 2 years old, her boys first showed signs of speech delays which triggered a long journey to a diagnosis. After visiting multiple doctors and hospitals all over the country it turned out to be an ...

raisingrare.fm

We just published a new episode of our podcast Raising Rare. www.raisingrare.fm/episodes/mir... This one might be especially interesting for some of you in the Health Tech space.