THANK YOU! Throughout July, our global sarcoma community shared knowledge, elevated patient voices, and reached people across six continents in dozens of languages. Thank you to our nearly 80 member groups and all who stood with us during Sarcoma Awareness Month. We are stronger together. 💛

What does it mean to be a part of the SPAGN community? Our co-chair Denise Reinke discusses.

Karin Arndt of Deutsche Sarkom-Stiftung John and Elly Showler of the The Edward Showler Foundation Lennie Woods of Clear Cell Sarcoma Foundation 3 families, 3 different countries, each impacted by clear cell sarcoma in different ways, speak about the surprising commonalities of their experience.

Philip Leider of the Sarcoma Alliance talks about the challenges of carrying on his sister's legacy.

Joe McNeal represents the oldest sarcoma foundation in the world. Listen to her thoughts on the long-standing challenges of sarcoma.

Throughout Sarcoma Awareness Month, we've celebrated the voices of people living with sarcoma around the world. That is strengthened when industry chooses to listen, engage with patient advocates, and work alongside the community. Thank you to our valued partners for supporting that vision.

As we approach the end of #SarcomaAwarenessMonth2026, our thanks to SARC for welcoming our Executive Director Kathrin Schuster on to the recent episode of SARC Talk. We always appreciate these opportunities for thoughtful engagement with our advocacy partners. Link to the full episode below!

As we approach the end of #SarcomaAwarenessMonth2026, our thanks to SARC for welcoming our Executive Director Kathrin Schuster on to the recent episode of SARC Talk. We always appreciate these opportunities for thoughtful engagement with our advocacy partners. Link to the full episode below!

One of the most inspiring parts of #SarcomaAwarenessMonth was our member organizations created across our shared global advocacy campaign. Thank you to every SPAGN member who made this campaign truly global. 💛🌍

Lidiya Vitanova, who lost her son to osteosarcoma, of Together Fighting Sarcoma, speaks about how her family responded to the challenges of sarcoma with advocacy.

Lidiya Vitanova, who lost her son to osteosarcoma, of Together Fighting Sarcoma, speaks about how her family responded to the challenges of sarcoma with advocacy.

Lidiya Vitanova, who lost her son to osteosarcoma, of Together Fighting Sarcoma, speaks about how her family responded to the challenges of sarcoma with advocacy.

Lidiya Vitanova, who lost her son to osteosarcoma, of Together Fighting Sarcoma, speaks about how her family responded to the challenges of sarcoma with advocacy.

Lidiya Vitanova, who lost her son to osteosarcoma, of Together Fighting Sarcoma, speaks about how her family responded to the challenges of sarcoma with advocacy.

Sami Sandakly of Info Sarcomes reflects on his experience as an adolescent sarcoma patient.

Survivorship can bring long-term physical and emotional challenges that continue long after active treatment ends. As Synovial Sarcoma survivor Julie Kramer shares one of the most valuable forms of support was connecting with someone who had lived through a similar experience. #SarcomaAwarenessMonth

Georgia and Wilker of Brasil's Associação Brasileira do Tumor Desmoide, and volunteers with the Sarcomunicándonos Latin América initiative express their thanks to SPAGN and all the member groups for the support they have received advocating for sarcoma patients in Latin America.

Today we're celebrating the nearly 80 patient advocacy organizations that make up SPAGN, working together across borders to support patients, families, caregivers, and survivors. Learn more about our global community: bit.ly/SPAGNmembers #SarcomaAwarenessMonth #YouAreNotAlone

Julie Kramer of the Synovial Sarcoma Foundation shares the challenges she faced as a young stage 4 Synovial Sarcoma Patient. www.youtube.com/watch?v=wFWd...

Sarcoma Challenges: The lack of aftercare and support

Julie talks about her experience having synovial sarcoma as a young adult, and the challenges of not having enough support after her active treatment ended.

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Fritz, a Swiss GIST patient, shares his thoughts about the challenges he faced after being diagnosed with sarcoma.

Wilker Franco of Brazil speaks about his experience as both a sarcoma patient and an oncology pharmacist.

Every statistic begins with someone's experience. Our latest YouTube discussion takes a closer look at the published findings from SPAGN's Global Sarcoma Diagnosis Pathway Survey and the questions they raise for the future of sarcoma care. Listen here: www.youtube.com/watch?v=lKKm...

Deep Dive: Why Medical Systems Delay Sarcoma Diagnosis

This podcast examined findings from SPAGN’s global survey on diagnostic delays in sarcoma, drawing on responses from patients and caregivers worldwide. The discussion highlighted the impact of…

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Tonight we Light Up for Sarcoma. Turn your lights yellow, share your photos, and help us make sarcoma visible around the world. Together with our friends at @curesarcoma.bsky.social, we're building a global tradition to show everyone affected by sarcoma: You are not alone. #SarcomaAwarenessMonth

Many people have never heard of sarcoma until it becomes part of their lives. The first challenge is often simply understanding what it is, where to find reliable information, and how to navigate a healthcare systems. Joost's story reminds us why patient-focused information and support matter.

Roger Wilson, SPAGN's honorary president, speaks about the challenges of sarcoma research.

One of the biggest challenges after a sarcoma diagnosis is where to find trustworthy information. SPAGN's Study Directory helps patients, caregivers, and families discover studies and research opportunities from around the world. www.sarcoma-patients.org/study-direct... #SarcomaAwarenessMonth

Study Directory - SPAGN - Sarcoma Patient Advocacy Global Network

Taking part in a clinical trial can be a good choice but it is often hard to find a clinical trial that is right for you. Many patient organizations and websites maintain lists of clinical trials.…

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Research doesn't move forward on breakthroughs alone. It moves forward because patients and families choose to be part of something bigger than themselves. ICYMI, catch our latest blog for more: bit.ly/SPAGNblog_AI...

Kai Pilgerman of both SPAGN and Deutsche Sarkom-Stiftung talks about the importance of accessing the right expert for your specific sarcoma.