We are proud to announce that our Charity SEDSConnective, working at the intersection of symptomatic hypermobility and neurodivergence, has become a member of the WHO Disability Health Equity Network hosted by the World Health Organization! #hypermobility #neurodivergence #SEDSConnective

Something out of the ordinary... We know something We can't explain, not yet.... Tuesday.... #SEDSConnective #Hypermobility #Neurodivergence

Something out of the ordinary is coming … Tuesday .. #sedsconnective #hypermobility #neurodivergence

Are you hypermobile , flexible or have chronic pain? NO formal diagnosis needed Email researcher Shy (Shyamalie Satkunanandan), ss06276@surrey.ac.uk, for info or to take part

🎉 8 years of SEDSConnective! Thank you to everyone who has been part of the journey. Our Trustees, volunteers, members, supporters and patrons, you are the heart of it all. Here is to 8 more. You are not alone! #Hypermobility #Neurodivergence #SEDSConnective

We are delighted that SEDSConnective has joined as a member of the NCD Alliance Network @ncdalliance #sedsconnective #health

Today, we’re celebrating 8 incredible years of SEDSconnective!🎂 8 years ago SEDSConnective started with one simple goal: to get people with symptomatic hypermobility and neurodivergence seen and heard. #hypermobility #neurodivergence #sedsconnective #chronicpain #eds

You're not alone www.sedsconnective.org #Hypermobility #Neurodivergence #sedsconnective

Participants 7–16 years with DCD / Dyspraxia for (VR) balance training Fun VR games/activities at home, either 2 - 3 lab visits across 6 - 11 weeks Up to £125 in shopping vouchers email (Samantha.Chye@brunel.ac.uk) or https://forms.cloud.microsoft/e/cMwK66WNhf

Participants 7–16 years with DCD / Dyspraxia for (VR) balance training Fun VR games/activities at home, either 2 - 3 lab visits across 6 - 11 weeks Up to £125 in shopping vouchers email (Samantha.Chye@brunel.ac.uk) or https://forms.cloud.microsoft/e/cMwK66WNhf

July 11th 2025 Anniversary of the rsom invisible impact of covid19 symptoms on hypermobility and neurodivergence Thanks to our chair Jane Green MBE planning organising and giving our volunteers the chance to shine at the event and

For many years, the connection between #hypermobility and #neurodivergence was misunderstood or dismissed. Today, we are working to change that - helping individuals, families, professionals, and services better understand the strong links between physical and mental wellbeing! #SEDSConnective

For parents carers of autistic children with intellectual disabilities

SEDSConnective@sedsconnective.org · 4w ago

The ‘BEOND’ survey is now open! The survey will run for the next 20 years. Families are welcome to take part every couple of years to see how their answers have changed with time. 👉 https://www.cerebranetwork.com/beond

Some of the amazing SEDSConnective stands we've hosted, covering topics such as Autism, ADHD, Musculoskeletal events, therapies and interventions in physical health, sleep, diet, education and peer to peer support. Thank you to our amazing volunteers! www.sedsconnective.org

The ‘BEOND’ survey is now open! The survey will run for the next 20 years. Families are welcome to take part every couple of years to see how their answers have changed with time. 👉 https://www.cerebranetwork.com/beond

We're delighted Jane Green MBE has been appointed as a SHCRP Public & Community Adviser. For SEDSConnective, meaningful research is shaped not only by researchers and clinicians, but by the lived experiences of the communities it aims to serve.

Volunteer Facilitators Wanted – Join Our Team! We'd love to hear from you! We are looking for Volunteer Facilitators who can support our charity by helping to host online webinar sessions at regular times throughout the month. Please email recruitment@sedsconnective.org if you're interested 🙏

Please take a moment to watch Episode 3: Jane Green MBE – Founder of SEDSConnective on her Remarkable Journey. Our charity is mentioned in the episode and it’s a really inspiring conversation about Jane’s work and the growth of SEDSConnective. 👉 https://youtu.be/Pr2ZFJOYPYw?si=vrclZrZAcbi9A

@theguardian.com on neurodivergence + a connection to neurodivergent parents by children @sedsconnective.org pioneered this + with our world researchers 8yrs on (Autism, ADHD +++++)and symptomatic hypermobility (EDS/HSD DYS GI ++++) as one body/brain #somethingmissing ⬇️

We’re proud to be a small charity making a big difference in our community 📢 Every day we support people with hypermobility, neurodivergence and more. Every donation helps and every hour of support we can provide matters - https://www.sedsconnective.org/donation #SmallCharityWeek

✳️Do you have a formal dx of Autism/ADHD ? ✳️A formal dx of hEDS, HSD (GJH) OR ✳️Told it is likely you have hypermobility by a professional health medical practitioner? ✳️In mainstream education secondary school for at least 1 year? ✳️No learning disability ✳️18-25 of age now ⬇️links in comments

📢PhD research. We are delighted to say 😃 the parent/carer part is completed. Now only looking for a few more young adults aged 18-25 Can you help? Are you Autistic or ADHD and formally diagnosed? Scan QR code Email l.r.tostevin@surrey.ac.uk

Heat-induced neurological dysregulation When it's really hot, your body and brain are working harder just to keep your temperature stable (homeostasis) which means less capacity for everything else It's what happens when your whole system is running hot, literally Name it. Heat rage is real!

New research out & it matters. “Beyond bendy joints: number of variant connective tissue features predicts neurodivergent characteristics in hypermobile individuals with anxiety” 👉 www.nature.com/articles/s44... @bendybrain.bsky.social @lisaquadt.bsky.social #BSMS #ArthritisUK #MQ

CANCELLED Due to severe heat weather warning and health and safety we have decided to cancel tomorrow evenings support meeting in Crawley. Please take care of yourselves. We apologise for any inconvenience. We look forward to seeing everyone our next one www.sedsconnective.org/upcomingevents

Events | SEDSConnective

Join SEDSConnective events to connect with the EDS and HSD community, gain valuable insights, and participate in workshops, support groups, and awareness activities. Discover empowering resources and ...

sedsconnective.org

SEDSConnective@sedsconnective.org · last mo.

Our next free monthly support meeting! Date: Thursday 25th June Time: 7pm - 8:30pm Place: Heathy Farm, Crawley RH10 3NQ. Join us you do not have to be a member for your first meeting either. You can email general@sedsconnective.org for more info. www.sedsconnective.org

Our next free monthly support meeting! Date: Thursday 25th June Time: 7pm - 8:30pm Place: Heathy Farm, Crawley RH10 3NQ. Join us you do not have to be a member for your first meeting either. You can email general@sedsconnective.org for more info. www.sedsconnective.org

SEDSConnective | Hypermobility, EDS & Neurodivergence Charity

SEDSConnective is a user-led charity supporting people with hypermobility, EDS/HSD and neurodivergent conditions through community, resources and advocacy.

sedsconnective.org

We’re proud to be a small charity making a big difference in our community 📢 Every day we support people with hypermobility, neurodivergence and more. Every donation helps and every hour of support we can provide matters - https://www.sedsconnective.org/donation #SmallCharityWeek

The new EHRC guidance has sparked controversy. Advocates continue to call for intersectional human rights that protect all marginalised communities. This is why Pride still matters in 2026. #Pride2026

#NeurodivergencePrideDay June 18th. For everyone who spent years being told you were too sensitive, too frail, too clumsy, too much and found out later your body and brain were working harder than anyone knew. Together. Always together. #DisabilityPride #Hypermobility #ND

#MensHealth TheySED it's not possible.... WeSED " No one should feel alone or misunderstood in their experience" Connor #Hypermobility #Neurodivergence www.sedsconnective.org