That brings us to the end of #seattleclub 2025 - huge thank you to the Tizard Centre at the University of Kent for hosting this year's conference! A fantastic range of talks and posters this year - lots of messages to take into our research practice!

The final talk of #seattleclub 2025 is by Dr Alison Spencer on understanding dementia from the perspective of people with an intellectual disability: preferences for the disclosure of dementia and care planning.

Our penultimate talk of #seattleclub is by Dr Daniel Marsden on work conducted at Canterbury Christ Church University on the social return on investment pilot evaluation of Oliver McGowan mandatory learning disability and autism training in higher education.

The session on health, education & training continues with Dr Lorena Beqiraj and her research on the implementation of positive behavioural support (PBS) in special education settings for children and young people with developmental disabilities #seattleclub

The session at #seattleclub continues with Dr Kate Blamires on the experiences of support workers working with people with intellectual disabilities who have moved from inpatient to community settings as part of the Transforming Care Agenda.

We are going into the final session of #seattleclub with research focusing on health, education, and training. The session is being opened by Dr Aimilia Kallitsounaki discussing her research of behavioural profiles of autism in gender-referred youth and their caregivers.

The final talk in the genetic syndromes session is by Dr Kayla Smith on characterising social anxiety in fragile X syndrome. Kayla introduced her multi-method research of social behaviour, physiology, and heart rate-defined sustained attention.

#seattleclub continues with Teresa Padden-Evans on research exploring the perspectives and experiences of education practitioners supporting students with genetic syndromes in school.

The session on genetic syndromes is being started by SHINE Lab's own Bethan Cornick! She is presenting research on caregiver experiences of sleep in children with SATB2-associated syndrome. If you want to see more about this research, check out our website: www.shinelab.org.uk/satb2

#seattleclub continues with a second key note talk from Dr Melina Malli on Tourette’s stigma as it is an understudied issue in autism and intellectual disability communities and services.

The final talk in this session is by @thanosgr.bsky.social on using precision teaching to develop key word sign skills in practitioners in intellectual disability services. #seattleclub

Our session on social issues and staff at #seattleclub continues with a talk from Georgios Mamolis about his PhD looking at care relationships between support staff and adults with a learning disability in residential settings.

Session 2 at #seattleclub continues with Dr Jean Jevons on exploring mothers to first born children with profound intellectual disabilities making decisions about further children.

#seattleclub continues with a talk by Fred Inglis about his PhD research on ongoing career journeys: exploring the in-work trajectories of people with a learning disability in sustained paid employment.

#seattleclub day 2 is being kicked off with a session on social issues and staff. Our first talk is by Dr Alice McKenna from @royalholloway.bsky.social on Travel Buddies. Buddies are people with intellectual disabilities who provide peer support for other people with intellectual disabilities.

We finished our day yesterday with a poster session - with four posters being presented by the SHINE Lab! Follow along today for more updates on the fantastic speakers

Our final talk of the day is from Dr Paula Foscarini-Craggs on engaging in intellectual disability research in secure care and lessons learnt from the SCHEMA trial. Amazing to see so much variety in research at #seattleclub today and looking forward to tomorrow.

Anna Cox discussing ways to improve maternity care. Some wonderful resources for parents with learning disabilities mentioned. #seattleclub

Our penultimate talk from day 1 of #seattleclub is from Jessica Rees and Lizzie Merrill on using inclusive research to understand the barriers and enablers to early cancer diagnosis for learning disabled people.

The fantastic co-design work continues with a talk from Dr Nicki Hewitt on using creative methods to co-design and disseminate research findings with people with intellectual disabilities #seattleclub

Our co-design session continues with a talk from Simon Rice, Matthew Moon and @nikitahayden.bsky.social on reclaiming the human in healthcare manifesto. The manifesto asks healthcare professionals to use clear language and for people with intellectual disabilities to be in the centre of their care.

#seattleclub continues with our second session on co-design & research. Dr Tracey Warren and Kathy McMahon are speaking about their research co-designing and implementing a survey on digital technology use with people with intellectual disabilities and carers.

The final talk at #seattleclub before lunch is from @annaclarecox.bsky.social on the Together Project: Inclusive research to understand and improve maternity care for people with a learning disability. The project has developed 2 tools and developed training for midwives to improve awareness.

Session 2 continues with a talk from Dr Layla Harding from @royalholloway.bsky.social on attachment and caregiving in the context of parental learning disabilities. Most caregivers had experienced domestic violence from a romantic parent and felt watched and judged by professionals. #seattleclub

Today's seminar is from Professor Luke Clements & Dr Ana Laura Aiello @lawatleeds.bsky.social - findings from their book 'Understanding Parent Blame' - research with families on traumatising social care experiences, in policy & legal context, and campaigns for change essl.leeds.ac.uk/law/news/art...

School of Law academics tackle Parent Blame in new edited collection

Professor Luke Clements and Dr Ana Laura Aiello have published a new edited book titled 'Understanding Parent Blame: Institutional Failure and Complex Trauma' with Policy Press.

essl.leeds.ac.uk

#seattleclub continues with a talk from Zoe Starkie and her PhD research on exploring the lived experiences of having a sibling with learning disabilities.

After a chance to network over coffee, we are going into session 2: Families and parents with intellectual disabilities. Dr Charmaine Kohn is starting the session introducing her feasibility trial of Video Interaction Guidance for families of children with intellectual disabilities. #seattleclub

#seattleclub is continuing with a talk from Dr Barry Ingham from @newcastleuni.bsky.social discussing the evaluation of the clinical effectiveness of a primary health check for autistic adults. The health check was made in collaboration between autistic adults, caregivers, and health professionals.

#seattleclub day 1 is being kicked off by a keynote with @peterlangdon.bsky.social on psychological therapies. People with intellectual disabilities are seven times more likely to have a diagnosis of a mental health condition and we need adapted psychological therapies to make them more accessible.

The SHINE Lab are in Kent for the next 2 days at Seattle Club 2025! Follow along for updates on the incredible research in Intellectual Disabilities covering a range of different topics #seattleclub2025