Where do you go for information about your condition? NHS England wants to hear from people living with sickle cell or thalassaemia. Complete the short survey to help improve patient information and resources. ๐ฑ Scan the QR code to take part and share with friends and family. #SickleCell
Sickle Cell Society
@sicklecelluk.bsky.social
Official account of the Sickle Cell Society in the UK. We support and represent people affected by sickle cell disorder to improve their overall quality of life.
โณ A huge thank you to everyone involved in the Windrush Trophy Charity Golf Day at Woolston Manor Golf Club, which raised an incredible ยฃ2,000 for the Sickle Cell Society. Special thanks to Charles Sam, Windrush Trophy and Woolston Manor for making it such a success. ๐ #SickleCell #Fundraising
Are you a young person (13-24) living with sickle cell? Or a parent/caregiver of someone who is? We want to hear about your experiences of healthcare transition from children's to adult services. For more information follow the link: buff.ly/SkZ3hRN
๐บโจ Join us for The Ancestral Spine โ Intro to Coil Pottery on 18 July at Bay20 Community Centre, Ladbroke Grove. ๐๏ธ Free to attend, but spaces are limited. ๐ Scan the QR code on the next slide to book your place. #SickleCell #CreativeWorkshop #CoilPottery #ArtAndWellbeing
๐จ๐ฟ Join us for Colours of the Earth โ Pigment to Paint, the next session in our Creative Workshop Series. ๐ 4 July 2026 ๐ Bay20 Community Centre, Ladbroke Grove โจ Free to attend ๐ Scan the QR code on the next slide to book your place. #SickleCell #CreativeWorkshop #ArtAndWellbeing #CommunityArts
โ๏ธA red heat health alert has been issued for parts of England this week. Hot weather can increase the risk of dehydration, which may trigger a #sicklecell crisis. Stay hydrated, keep cool and listen to your body. More information can be on our website buff.ly/gzYV8TH
๐ Happy Father's Day to all the dads, grandads and father figures in our community. Thank you for your love, strength and support. Today, we celebrate everything you do for your families and loved ones. #FathersDay #HappyFathersDay #SickleCellCommunity
๐๐ As part of #WorldSickleCellDay2026, Isabelle Prempeh shares an uplifting message with the sickle cell community about finding an outlet that helps you breathe, feel fulfilled and pursue your passions.๐ buff.ly/mgM8VdC #YoungVoicesRising #OwnYourHealth
What would you say to your younger self? Older members of the sickle cell community have shared powerful Letters to My Younger Self, reflecting on their experiences, challenges and lessons learned over the years. Read the full letters here: www.sicklecellsociety.org/wscd26/ #WorldSickleCellDay2026
As part of #WorldSickleCellDay2026, Marilen shares a powerful spoken-word piece reflecting on her experiences of living with sickle cell. Watch, listen and learn more about the campaign: www.sicklecellsociety.org/wscd26/ #YoungVoicesRising #OwnYourHealth
๐ฉธ Today is #WorldSickleCellDay2026. This year's theme, #YoungVoicesRising, celebrates the strength and experiences of young people living with sickle cell. Around 19,000 people live with sickle cell in the UK. Together, let's ensure every voice is heard. #OwnYourHealth
๐ฃ Reminder: The Sickle Cell Engagement Event has been rescheduled, and the new date has now been confirmed. ๐ 25 July 2026 | โฐ 12โ3pm ๐ Guy's Hospital or join online We hope to see you there as we continue conversations to improve sickle cell care. #SickleCell #PatientVoice
๐ Thank you to Core Sports for another fantastic fundraising match in support of the Sickle Cell Society. Congratulations to DR Congo on their win over Jamaica, and to Core Sports on celebrating their 1-year anniversary. We look forward to future collaborations! #SickleCell
Join us this #WorldSickleCellDay2026 as we celebrate #VoicesOfResilience and amplify the stories of those living with sickle cell. ๐ 19 June | โฐ 10amโ5pm ๐ Camden Town Hall, London โค๏ธ Wear red. Share your story. Be part of the change. #SickleCell #SickleCellAwareness
"Delighted to be presenting at #FSCDR and sharing ideas and developments shaping the future of sickle cell care. It was also a pleasure to connect with colleagues, including Cassandra Trimmell from Sickle Cell 101." โ John James, CEO, Sickle Cell Society. #SickleCell #HealthEquity #PatientAdvocacy
Creative Saturdays for the Sickle Cell Community. Free workshops โข Free lunch โข Free to join โค๏ธFriends and family welcome! Bay20 Community Centre, Ladbroke Grove๐ Saturdays, 1โ5 PM๐ 13 Jun โ 25 Jul | Final showcase 01 Aug ๐ Limited tickets book now buff.ly/JvhD6jn
๐จ Join us for Workshop 1: All About Me โ the first in our Sickle Cell Hope Creative Art Workshop Series. ๐ 13 June | โฐ 1โ5pm ๐ Bay20 Community Centre, Ladbroke Grove ๐๏ธ Free tickets: www.eventbrite.co.uk/e/make-share... #SickleCell #CreativeWorkshop #CommunityArts
Join us for the South East London Sickle Cell Community Picnic! ๐ 20 June 2026 | โฐ 11amโ3pm ๐ Crystal Palace Park Cricket Pitch A free day of food, activities, support and community for people living with sickle cell, their families and the wider community.๐ bit.ly/sickle-cell-picnic #SickleCell
We're proud to launch our World Sickle Cell Day 2026 theme: Young Voices Rising. Young people living with sickle cell are rising to the challenge of their condition, and we're spotlighting their voices. Join us on 19 June. See our website for more. #YoungVoicesRising #WorldSickleCellDay2026
๐ฃ Are you living with both sickle cell & learning disabilities, or support someone who is? Researchers want to hear your experiences to help shape future research and improve healthcare outcomes. ๐ฒ Scan the QR code or contact details on the flyer to get involved. #SickleCell #LearningDisabilities
๐ฃ Our CEO John James will be speaking at the 49th National Sickle Cell Disease Scientific Meeting & Research Symposium. Proud to see the Sickle Cell Society contributing to global conversations shaping the future of sickle cell care and research. ๐ www.fscdr.org #SickleCell #Research #HealthEquity
๐ข Weโre hiring: Fundraising Database Officer Help strengthen supporter engagement and fundraising impact at the Sickle Cell Society. ๐ Apply by 7 June 2026 ๐ www.sicklecellsociety.org/fundraising-... #SickleCell #Hiring #FundraisingJobs
๐โโ๏ธ Great to meet some of our amazing Hackney Half runners on Sunday, including Jordan & Elom, running for the Sickle Cell Society. Shoutout to Emancipated Run Crew for showing out for #GiveBloodSpreadLove too ๐ Thank you to everyone who ran & fundraised! #HackneyHalf #TeamSickleCell #Fundraising
๐ข Weโre hiring: Prison Estate Training & Development Lead (London) Help lead an NHS England pilot project improving care and reducing health inequalities for people living with sickle cell in custody.๐ Apply by 22 June 2026๐ www.sicklecellsociety.org/fundraising/... #Hiring #SickleCell #HealthEquity
๐โโ๏ธ Hackney Half 2026 โ Come cheer with us! Join Team Sickle Cell at Mile 5, then help us cheer runners through to the finish ๐ ๐ 17 May 2026 โฐ 10:30amโ12pm ๐ Hackney Central #HackneyHalf #TeamSickleCell #CheerZone
Men aged 35+ attending KCH Hospital are invited to the final Ageing Well with Sickle Cell focus group. 28 May | โฐ 6โ8pm ๐ ยฃ50 Love2shop voucher for attendees. Canโt attend? Share your thoughts here: www.menti.com/alnt2nxu4bwu ๐ Book now: events.bookitbee.com/kings-colleg... #SickleCell
POV: London Marathon 2026 A huge thank you to everyone who ran for the Sickle Cell Society โ your dedication, energy and commitment means so much ๐ It was incredible to have our team at Mile 16.3, cheering you on every step of the way. Weโre so proud of you all! #LondonMarathon #TeamSickleCell
๐โโ๏ธ London Marathon 2026 Join us & Emancipated Run Crew at Mile 16.3 to cheer on our runners! ๐ New Balance Cheer Zone 2 โฐ 11:30โ12pm ๐ Mudchute (DLR) Bring the energy and support Team Sickle Cell ๐ช #LondonMarathon #TeamSickleCell #CheerZone
๐ญ Crescent Cell, Sickle Moon A powerful and imaginative new play exploring care, pain and trust for people experiencing sickle cell crises โ co-created with the community. ๐ buff.ly/qANBQUn #SickleCell #Theatre #HealthEquity #PatientVoice
๐โโ๏ธ Hackney Half 2026 โ 1 space left! Run with Team Sickle Cell and make every mile count. ๐ฉ fundraising@sicklecellsociety.org โฐ Apply by 17 April, 10am #HackneyHalf #RunForACause #SickleCell