Numbers matter. They guide treatment decisions & shape research. But they don’t capture the full person. Patients & caregivers hold an expertise no dataset can replace. Our work is helping that expertise reach the people who need it, & the people who can act on it. https://www.smartpatients.com/

After surgery, a patient’s recovery reshapes daily life for the whole family. Patients and care partners carry worry, exhaustion, & hope together. It can be a long road to travel together so it’s important to have peer support when you need it after a diagnosis or procedure. #SmartPatients

For #WorldSjogrensDay, we asked what happens when three different sources look at the same disease: a 6,000-patient survey, a clinical records registry, and an open conversation among patients. Read: https://ow.ly/hNE150ZveAB Join: https://ow.ly/Ly0Q50ZveAF #AutoimmuneRegistry #SmartPatients

A cancer diagnosis looks different from a rare disease diagnosis. A caregiver's days look different from a patient's. No 2 conditions carry the same weight, & no t families carry it the same way. But the water is shared when it comes to the uncertainty. That's where #SmartPatients comes in handy.

#WorldLungCancer Day raises awareness about lung cancer, the leading cause of cancer deaths worldwide. Today, we honor those we’ve lost & support those currently fighting. Welcome Free Me from Lung Cancer to #SmartPatients. Join us, and our partners, at: https://ow.ly/EBtx50ZuCBj

Stanford palliative-care specialist Dr. Grant Smith joined #SmartPatients to explain how palliative care is an extra layer of support available at any age or stage, alongside your existing treatment team, for whatever a serious illness is affecting. Read more: https://ow.ly/eZAv50Zuvgv

Smart Patients is proud to be a partner for the 2026 Kidney Cancer Patient and Caregiver Education Symposium, hosted by Fred Hutch Cancer Center alongside KidneyCAN and the Kidney Cancer Association. Sign up today for this free, virtual event: https://ow.ly/MVfs50ZunOE

Hope isn't naive. It's part of tracking every study, asking hard questions, & learning more about a condition. Smart Patients shape our community & shape progress. Hope, backed by knowledge, moves things forward. Join us to help build the space where expertise grows. https://www.smartpatients.com/

Partnership announcement: Smart Patients + the Andy Derr Foundation. Two organizations. One shared belief: patients deserve more than treatment plans. They deserve community, education, and a voice in their care. This is what patient-centered care looks like: https://ow.ly/4msJ50ZrzUP

Join us tomorrow! We will host an Ask the Expert Session in partnership with Pancreatic Cancer Action Network to discuss #KRAS and #PancreaticCancer with Dr. Noelle LoConte of UW Carbone Cancer Center. All are welcome: https://www.smartpatients.com/site/partners/pancan #PanCAN #SmartPatients

This is what it looks like when a patient becomes an expert in their own health, long before a diagnosis arrives. Paying attention to family history, asking questions, & seeking out testing are all forms of expertise that patients build over years. Why not join us? https://www.smartpatients.com/

Last week of Sarcoma Awareness Month! We're grateful to our partners MIB Agents Osteosarcoma Alliance, Northwest Sarcoma Foundation, & the Paula Takacs Foundation for their dedication to raising awareness & improving treatment & care for osteosarcoma & sarcoma patients. https://ow.ly/PHqH50ZrzQq

Smart Patients is teaming up with Free ME from Lung Cancer to bring their community a trusted place to share, ask, and connect with others who get it. You can join us here: https://www.smartpatients.com/site/partners/freemefromlungcancer #LungCancer #FreeMEFromLungCancer #SmartPatients

What do a survey, a registry, & a community have to say about Sjögren's? Turns out, each one has something a little different to add. This #WorldSjögrensDay, read more about it. https://ow.ly/wCXx50ZrzIY

Today is World Brain Day. We hear a lot from patients and care partners about brain health in the conversations they have with each other. We turned some of those recurring moments into a short piece: https://ow.ly/iHPW50ZovzC #WorldBrainDay #PatientVoice #BrainHealth #SmartPatients

We talked with Dr. Grant Smith from Stanford Medicine about what palliative care really is, who it's for, and how to ask for it. If it might help you or someone you love, it's worth a read. https://ow.ly/tK1f50ZqeCM #PalliativeCare #StanfordMedicine #SmartPatients

A new era of treatment is here. Got a question about KRAS mutations, targeted therapy, or what this means for your treatment path? Join us July 28–30, 2026 https://www.smartpatients.com/site/partners/pancan This is your moment to ask. #PancreaticCancer #KRAS #PanCAN #SmartPatients #AskTheExpert

Making room for comfort or choosing joy on a hard day are both part of a life with a serious illness. Figuring out what those things are personally comes from lived experience. #SmartPatients share what genuinely helps them with each other. That knowledge is expertise. #PeerSupport

We asked three sarcoma leaders the same three questions for Sarcoma Awareness Month. Thanks to MIB Agents Osteosarcoma Alliance, Northwest Sarcoma Foundation, & Paula Takacs Foundation for your time, conviction, & candor! Read more here: https://ow.ly/qbA550Zomho #SarcomaAwarenessMonth

July 17 is the very first National #SynovialSarcomaDay. To everyone living with this rare soft-tissue cancer, & the families and friends walking alongside them: we hope you find answers to the questions you have, & find connection to others who share your experiences.

Living with a chronic condition reshapes what counts as a good stretch of time. A good summer isn’t what it used to be. Being able to find ways to show up for the people who matter most are treasured days. #SmartPatients hopes this summer is “one of the better summers” for all!

Words from someone who has walked the same road are often the reassurance needed. This is especially true when they come from survivors who are tracking the research & watching for new therapies. #SmartPatients show up for each other with facts & hope, often in the same sentence. #PeerSupport

#SmartPatients is proud to partner with the https://ow.ly/MFCR50ZmJoL! Andy believed patients should be fully engaged in their own care, asking questions, comparing notes, & shaping decisions. We're honored to bring peer-to-peer community into that mission. https://ow.ly/rIGu50ZmJoK

This is how one member of our community described getting through a diagnosis that changed everything. Because so much can’t be controlled, she shared a short list of things that stay steady. What holds yours steady? #Smart Patients

We hear a version of this all the time. A diagnosis that once felt unmanageable becomes something people learn to live with, track, & explain. Meanwhile, something as small as a clear answer to a simple question can stay just out of reach for months. Which way are you feeling today? #SmartPatients

July is Sarcoma Awareness Month. This year, it coincides with https://www.nwsarcoma.org/ marking 30 years of advocacy, hope, and progress for sarcoma patients and families. Congratulations! #SarcomaAwarenessMonth #30Years #NorthwestSarcomaFoundation #SmartPatients

Some news is too good to share just once. We're thrilled to partner with ABCD: After Breast Cancer Diagnosis, expanding the ways patients & families can connect at every phase of a breast cancer diagnosis. Clarity, connection, & confidence are better together. Read more: https://ow.ly/jJ1e50ZkJ3C

There's no manual for facing a serious diagnosis because there’s no perfect plan. That’s why people show up for each other and share what they've learned. That's what the Smart Patients community does and why we’re here for you when you need us. #SmartPatients #PatientCommunity #YouAreNotAlone

Did you know there's no Pap smear or routine screening test that catches uterine cancer? It's now the most common gynecologic cancer AND cases are still rising. Gynecologic oncologist Dr. Ebony Hoskins shares the warning signs & what to do next: https://ow.ly/jPOZ50ZkJkc #UterineCancerAwareness

Small rituals we carry with us can take on new meaning during different parts of our lives. The gentleness we once offered our children at bedtime, for example, can help years later on a hard night. Our community is here to share what works, one honest moment at a time. https://ow.ly/f6mp50ZjIs1