Chronic Illness Resource Library

@spoonieresources.bsky.social

Sharing fact sheets, how-to guides, online tools, worksheets, research, and other helpful info for people living with chronic illness(es). Not a health professional. Requests/suggestions welcome. 🚫 No AI linktr.ee/chronicillnessresourcelibrary

The Top 14 Reasons Why An Endometriosis Diagnosis Gets Delayed "When [the patient]… • Think their symptoms are normal • Feel too embarrassed to seek help • Delay seeking doctors’ advice • Encounter barriers accessing the services they need ⬇️ more (link at end of 🧵) ⬇️

Behind-the-scenes update: I've come to the sad realization that I've overstretched myself by trying to post twice a week on Substack as well as daily on here and Tumblr. As a chronically ill and disabled person myself, my energy is limited and I need to be careful with how much commitment I ...

What meds can your doctor prescribe for #POTS? It might be slightly different depending on your location, but here's a quick overview of the 5 most common from The Australian POTS Foundation – ivabradine, propranolol, fludrocortisone, midodrine, & phenylephrine

Treating POTS - Australian POTS Foundation

Lifestyle modifications should be the first line therapy for POTS and require attention to education to fully effect the benefits

potsfoundation.org.au

Did you know physiotherapists can help with POTS? Physiopedia says physios can help with understanding of your body with POTS, the mind—body link ("how external factors such as anxiety, stress and lifestyle influences breathing patterns"), & breathing re-training

Postural Tachycardia Syndrome (POTS)

Original Editors - Brian Blevins and Allison Lesousky from Bellarmine University's Pathophysiology of Complex Patient Problems...

physio-pedia.com