Tavares Speer

@tavaresspeer.bsky.social

Afro Cuban, Husband, Dog Dad, Fmr Business Analyst and FSU Alum. I was diagnosed w/ #als 10/4/18. Still here, still fighting. #lougehrigsdisease #endals. 💙🏳️‍🌈 https://linktr.ee/tavaresspeer

I’m Black, Latino, gay and disabled. I’m very liberal with a blue heart 💙 I was so happy to leave that other app filled with so much toxicity. I’m very happy to be surrounded by like-minded folks. You’re safe in my space. 😀

OMG I am so excited. The agency that sends me home health aides just let me know that they finally have a male on staff they can send to me. I’ve been waiting for this for almost a year. All the women they’ve sent have been great, but I’m a big guy so it’s been difficult doing transfers.

Omw to a funeral and not looking fwd to all the transfers I’ll have to do. Not having a core makes it so difficult. If we had a van transfers to cars would no longer be a problem. Does anyone know a way to get a wheelchair accessible van. It would really make the difference in my well-being. #endals

Because I have not qualified for Medicaid yet, and that’s the only thing that covers in home care, I have been paying for a home health aide out of pocket. Today I was blessed with a grant from The Peter Frates Family Foundation that will help cover the costs for a couple of months. These grants

This is wonderful news for people living with SOD1–ALS (familial), which affects only 5% of the #ALS population. Unfortunately, they haven’t made this type of advancement for the other 95% of us, which is considered sporadic. ALS is still a 100% fatal disease. #endals

This progress is made possible because of people like you—the ALS community. It’s your strength, your voices, and your commitment to advancing research that drive breakthroughs like this.

view.email.als.org