Congrats to 2026 Nancy Cornelius Scholarship recipient Teagan Harris! Diagnosed with a TBD at 14, he earned his associate degree alongside his HS diploma and now studies Robotics Engineering at Miami University to make healthcare safer and more accessible. teamtelomere.org/res...

Congrats to 2026 Nancy Cornelius Scholarship recipient Ali Hagrett! Inspired by her sister Cate's journey with a TBD, Ali organized stem cell drives and switched her major to Public Health Policy to give back to the rare disease community. Learn more: teamtelomere.org/res...

This week, Team Telomere's Case Presentation Meeting brought together global experts to tackle hepatopulmonary syndrome in TBDs, a complication that's often missed. They explored screening, diagnosis, and transplant considerations. More: canva.link/3mj8hukrd...

Join us Sept. 15 with Dr. Mary Beth Scholand, MD, founder of the University of Utah ILD Center, to talk clinical presentation, treatment, and transplant considerations. Bring your questions! 🫁 📅 September 15, 2026 | 7:00 PM ET Register: teamtelomere.org/res...

Tonight's the night! Cocktails & Chromosomes: NYC is HERE! To everyone joining us tonight: thank you for showing up for this community, for this research, and for each other. #TeamTelomere #CocktailsAndChromosomes

Tomorrow night, we raise a glass for a reason that matters. 🥂 Thank you to our incredible sponsors for making Cocktails & Chromosomes: NYC possible. See you at 200 Liberty St!

3 days left! Cocktails & Chromosomes NYC is Sept 1, celebrating community, honoring progress, over cocktails and live music. Last chance → teamtelomere.org/coc... #TBD

Living with a TBD as an adult comes with unique challenges, and sometimes you just need space to talk with people who get it. Adult Open Forum, no agenda, just community. 🩵 📅 September 1, 2026 | 7:00 PM ET Register: teamtelomere.org/res...

Early bird pricing for Cocktails & Chromosomes: NYC ends tonight. Prices rise after midnight, so grab your seat now: teamtelomere.org/coc... #TeamTelomere #CocktailsandChromosomes

One month from tonight, Team Telomere's community gathers in NYC for Cocktails & Chromosomes. Early-bird tickets end soon, register today! → teamtelomere.org/coc... #TBD

The ADA turns 36 this year. For our Telomere Biology Disorders community, it's why doors to care, school, and daily life stay open. Protect it: swipe for 3 ways to act. #ADA36

Raising a child with a TBD means navigating the unknown. Your family's real-world experience can help change that. Join our digital natural history study with @CitizenHealth in just 5 minutes. 👉 teamtelomere.org/cit...

From comprehensive guidelines to quick-reference one-pagers, Team Telomere has resources for every step of the TBD journey. Whether newly diagnosed or a treating physician, these were made for you. 🔗 teamtelomere.org/one...

One week left to apply for the Nancy Cornelius Scholarship Fund! 🩵 $1,000 for TBD patients, caregivers & family members pursuing college or trade school. The Deadline is August 1, 2026. teamtelomere.org/res...

Sponsorship opportunities for Cocktails & Chromosomes NYC are open—support the science and the community behind it. Details → teamtelomere.org/coc... #TBD

"We just need some extra help — and that's exactly what this scholarship did for me." 🩵 -Megan Colter, 2019 NCSF recipient. 2026 applications open through August 1. Learn more: teamtelomere.org/res...

"This disease doesn't always have to hold us back — we just need some extra help." 🩵 Meet Megan Colter, our 2019 NCSF recipient. Applications for 2026 open through August 1. Read Megan's essay & apply: teamtelomere.org/res...

Our One-Pager resources are now available in Italian, German, and Hebrew, joining English & Spanish! Accurate, accessible education for our global TBD community. Download yours: teamtelomere.org/one... #TeamTelomere #TelomereBiologyDisorders #RareDisease

Patients, families, researchers, and clinicians unite this Sept 1 for Cocktails & Chromosomes NYC. Reserve your seat → teamtelomere.org/coc... #TBD

Today's the day! ☀️ The 2026 Summit begins in Missoula — 4 days of research, connection & hope. So grateful for our partners & attendees. Let's make it count! #TeamTelomere

Tomorrow the 2026 Summit begins! Huge thanks to our incredible sponsors & partners for making 4 days of rare disease science + community possible. 🩵 #TeamTelomere #Summit2026

Patients shouldn't just be consulted—they should be heard. Kendall Davis, Patient-Focused Drug Development Consultant & Team Telomere Board Member, is chairing Session 7 at the 2026 Summit. 🙌 teamtelomere.network...

In 2025, Team Telomere served 750+ patients and families, engaged 300+ clinicians, hosted 11 Community Chats, and surpassed $1.3M in total research funding — across 30+ countries. Partner with us to power what comes next. teamtelomere.org/ann...

"Y'all Means All: Rural Advocacy and Rare Disease." Abbey Hauser is bringing health equity, storytelling & policy to Session 7 in Missoula. 🤠 teamtelomere.network... #TeamTelomere #RareDisease #HealthEquity #SpeakerSpotlight

Grateful to welcome Cincinnati Children's Hospital Medical Center as a Summit Sponsor! 🩵 Home to Dr. Kasiani Myers, whose research on an active TBD gene therapy trial has achieved sustained telomere elongation in patients. teamtelomere.org/sci...

Where has TBD research been—and where is it going? Dr. Suneet Agarwal (Harvard Medical School, Dana-Farber/Boston Children's, Harvard Stem Cell Institute) opens Day 1 of the Summit and chairs our Medical Advisory Board. teamtelomere.network... #TeamTelomere #TBD #SpeakerSpotlight

"I have the power to defy what is thought to be my own limits." 🩵 Meet Ewan Laplante, our 2023 NCSF recipient. Applications for 2026 are open through August 1. Read Ewan's essay & apply: teamtelomere.org/res...

Cocktails & Chromosomes NYC returns! Sept 1, 6–9PM, Hogan Lovells. Early bird tickets are $150, grab yours before prices rise → teamtelomere.org/coc... #TBD

Proud to recognize the University of Utah as our 2026 Summit Scholarship Fund Sponsor! Home to a dedicated TBD Center, their support invests in the next generation of researchers & clinicians. 🩵 teamtelomere.org/sci...

Before most clinicians knew what to do with a TBD diagnosis, Janet Talbert was already in the room. The first genetic counselor in the FPF space. 23 years in. Still building. 🌿 teamtelomere.network... #TeamTelomere #GeneticCounseling #PulmonaryFibrosis #TBD #SpeakerSpotlight