What is it really like to participate in FTD research? 🔎 AFTD Ambassador Julia Pierrat shares why research participation can be meaningful, despite the emotional ups and downs. Every study helps us better understand FTD and move closer to future treatments. Learn more: https://bit.ly/4xfUEUj

California advocates and lawmakers gathered at the State Capitol to urge passage of SB 1047, a bill adding FTD to the state’s Neurodegenerative Disease Registry. FTD advocate Emma Heming Willis joined advocates to show how better data advances research and helps to #endFTD. 👉https://bit.ly/4581UFT

📢 The 2027 AFTD Holloway Postdoctoral Fellowships funding call is open! Generously supported by the Holloway Family Fund and the George Schimenti Memorial Fund, these fellowships support the next generation of FTD researchers. 🗓️ Letters of intent are due September 2. 🔗 https://bit.ly/44XeZld

An FTD diagnosis changes so much, but it can also reveal the depth of love through life’s hardest moments. ❤️ In this heartfelt video, Lauren shares how her husband’s FTD diagnosis revealed a deeper appreciation for the love they share. ❤️ Watch the full session on YouTube: https://bit.ly/4yGnAGA

Primary Progressive Apraxia of Speech (PPAOS) is an FTD disorder where speech difficulty is often the first sign. People with PPAOS know what they want to say but have difficulty coordinating speech movements. Recognizing the signs can help people seek support. Learn more: https://bit.ly/4wnNtJV

Making an impact! ❤️ John Kuhr’s Elissa Kuhr Golf Tournament raised $15,287 in his wife’s honor. Meredith Byrd raised $10,935 at the Flying Pig Marathon for her mom. Josh Shearer raised $4,188 running across Cape Cod in memory of his mother, Roxanne. Start a fundraiser: https://bit.ly/3TzCxdo

An FTD diagnosis can leave individuals and families searching for answers, guidance, and support. AFTD’s HelpLine helps families navigate a new diagnosis, learn about FTD subtypes, connect with resources and support, and find guidance. 📞 💌 Give today: https://bit.ly/4vsgumZ

🧬 Today is Genetic Testing Action Day. Genetic testing looks for variants in genes associated with FTD. A genetic counselor can help you understand the benefits, risks, limitations, and considerations involved so you can make an informed choice for you and your family. 🔗 https://bit.ly/4xy1zck

When Shirley's husband was diagnosed with FTD, AFTD helped her feel less alone through resources, support, and regular check-ins. Learn about the resources available for individuals and families affected by FTD: https://bit.ly/4f3CvTu

🧠 Today is World Brain Day. FTD is a group of brain disorders caused by degeneration of the frontal and/or temporal lobes of the brain. It is also the most common form of dementia for people under age 60. 🔗 Learn more: https://bit.ly/4uGpgNb

Behavioral variant FTD (bvFTD) is the most common form of frontotemporal degeneration, yet it is often misunderstood. 🧠 Recognizing the signs of bvFTD can help families, care partners, and healthcare professionals support those affected. 🔗 Learn more about bvFTD: https://bit.ly/4vGJ03F

Progressive supranuclear palsy (PSP) is a rare neurodegenerative disease that's often misdiagnosed, delaying the care and support families need. The BBC recently shared the stories of two families, highlighting why greater awareness of PSP matters. Read more here: https://bit.ly/4pv1brB

Corticobasal syndrome (CBS) is a form of FTD that primarily affects movement and can be difficult to recognize. AFTD's new CBS Diagnostic Checklist highlights key signs and symptoms to support conversations with healthcare professionals. 📋 Download the checklist here: https://bit.ly/4w6UCxY

One reason to walk can bring a whole community together. ❤️ Jaden is walking for his dad, Mike, and invites you to join him at Walk for FTD. Gather your family, friends, coworkers, and neighbors to help raise awareness for FTD. 🚶 Learn more and register here: https://bit.ly/4vZiuDG

Meet the Researcher: Mark Forman, MD, PhD 💡 From advancing gene therapy and biomarkers for FTD-GRN to guiding AFTD research initiatives, Dr. Mark Forman is helping shape the future of FTD research. Thank you, Dr. Forman, for your commitment to FTD research and AFTD! 🔗 https://bit.ly/4picmUh

After Guy's FTD diagnosis, he and his wife searched for information and support. AFTD's HelpLine connected Guy with resources, like help finding a doctor and referrals to social workers. 💌 Give today to help people like Guy access trusted support, education, and connection: https://bit.ly/4vsgumZ

Join us at AAIC 2026! We look forward to connecting with the global dementia and FTD community and sharing AFTD’s commitment to advancing research and support. We invite attendees to join us at the AFTD Social for an evening of conversation and community.❤️ Learn more: https://bit.ly/3pLO7no

Every person who joins AFTD’s 2026 Driving Hope Golf Tournament has a reason for showing up. ⛳ Join us in Colorado on August 23 or in New York on September 28. Register today: https://bit.ly/3SPYrsH

📢 Join us next week! AFTD advocacy momentum has never been stronger. Learn about FTD legislation, hear from Melissa Fisher, AFTD Ambassador, and Senator Andy Kim’s Health Policy Advisor, and get tips for meeting members of Congress during the August recess. 🔗 Register: https://bit.ly/4xVSomo

Receiving an FTD diagnosis is life-changing. ❤️ Dr. Seth Stern, a member of AFTD's Persons with FTD Advisory Council, reflects on the moment he learned he had FTD. Watch the full interview to hear more about his experience and why compassionate communication matters: https://bit.ly/448rl9U

Roughly 20% of people diagnosed with FTD have an underlying genetic cause. The most common genes linked to FTD are C9orf72, GRN, and MAPT. 🧬 Learn more about genetic FTD: https://bit.ly/4dn0T1J

Join AFTD for our advocacy webinar to learn about three key federal bills before Congress, hear from Melissa Fisher, an AFTD Ambassador, and Senator Andy Kim’s Health Policy Advisor, and learn how to meet with lawmakers during the August recess. 🔗 Register today: https://bit.ly/4xVSomo

❔ Did you know corticobasal syndrome (CBS) is a form of FTD that primarily affects movement? Symptoms often begin on one side of the body and, over time, can affect both sides. CBS is rarely inherited and often develops sporadically. 🧠 Learn more: https://bit.ly/4wksqbx

FTD can affect more than just memory. Changes in behavior, personality, language, and movement are also common symptoms of FTD, and experiences can vary from person to person. 🧠 Learn more about FTD: https://bit.ly/3RQexSm

AFTD is seeking individuals with lived experience of genetic FTD to serve on the AFTD Genetic Advisory Council and help shape our mission, advocacy, and policy priorities. ➡️ Apply by July 10, 2026: https://bit.ly/4vrCNsX

While there is currently no cure for FTD, treatment can help manage symptoms and improve quality of life. Swipe through to learn more about treatment approaches and support options for people living with FTD. 🔗 Learn more about treating FTD: https://bit.ly/4uxiwB8

In a recent blog post, AFTD addresses some of the questions raised by a recent New Yorker article about #geneticFTD, from potential stigma to the lack of biomarkers for diagnosis. There are many lessons to be learned about #FTD from Ray Howell’s experience. Learn more: https://bit.ly/4xKbziN

Connection can make a powerful difference. AFTD Ambassador Liz Zadnik shares how the Walk for FTD brings people together, raises awareness of FTD, and builds community. Join us to support all those affected by FTD and help move research forward. ▶️ Learn more and register: https://bit.ly/4esxvX1

This Father’s Day, we honor the resiliency and compassion of fathers & care partners. AFTD volunteer Marjorie Batschauer shares why she speaks out in honor of her dad and raises awareness of FTD. ❤️ Make a gift to honor a loved one & inspire progress for families: https://bit.ly/4ullpVq

FTD is the most common form of dementia for people under age 60. Subtypes of FTD include behavioral variant FTD(bvFTD), primary progressive aphasia (PPA), FTD-ALS, progressive supranuclear palsy (PSP), and corticobasal syndrome (CBS). 🧠 Learn more: https://bit.ly/3RSoe2H