😴😴 Sleep disorders - affect about 1/3 of us but it's even more common in people with an epilepsy! 👉🏻 youtu.be/plZ0F1uUc8I Common ones include: - sleep apnea - nocturnal bruxism (teeth grinding) - restless leg syndrome - insomnia 1/ #epilepsy #sleepdisorder #bruxism #sleepapnea
Torie Robinson
@torierobinson.bsky.social
🎬 Epilepsy Sparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | PPI Lead | #Epilepsy & #MentalHealth Research fiend | All views my own
‼️ Re-release due to popularity and importance: #Epilepsy & #Suicide: Breaking the Silence - with Drs Milena Gandy 🇦🇺 & Heidi Munger Clary 🇺🇸 - who explain everything - including how clinicians can bring suicide risk up in appointments. 🎬 lnkd.in/ed85Ht9a #mentalhealth #depression #mooddisorder
Our new paper - led by star @vaughanbell.bsky.social "Developing a neuropsychiatry curriculum for clinical psychologists and neuropsychologists: An e-Delphi study" - check it out 👇🏻! #epilepsy #fnd #depression #anxiety #psychiatry #neurology
New from us: We gathered psychologists, psychiatrists, neurologists, and individuals with lived experience to develop... A neuropsychiatry curriculum for clinical psychologists and neuropsychologists: An e-Delphi study bpspsychub.onlinelibrary.wiley.com/doi/10.1111/...
I'm thankful to be part of this paper - led by the brill @vaughanbell.bsky.social and fellow coauthor @fndportal.bsky.social! #neuropsychiatry #neurology #psychiatry #fnd #epilepsy
Congrats Keishema and Vaughan and gang - excited to see what the community thinks of this! A pleasure to be a part of it too 😄
I'd rather seize every day than be depressed. Please check out this incredibly important paper about the clinical care gap between #epilepsy and #depression - and what we need to do to close it. By Reetta Kalviainen et al. www.dovepress.com/bridging-the... www.dovepress.com/bridging-the...
Bridging the Gap Between Depression and Epilepsy: A Call for Integrate | NDT | Dove Medical Press
The intricate and bidirectional relationship between epilepsy and depression presents significant challenges for diagnosis, treatment, and overall patient care.
dovepress.com
🧘 Medication can be just one part of the puzzle in treating #epilepsy! In this week's Epilepsy Sparks Insights podcast 🎬 "Still Having Seizures? Don't Just Accept It", Dr. Manjari Tripathi speaks of how medications are just one part of a complex puzzle! 🧩 🎬 www.epilepsysparks.com/epilepsy-spa...
🤔 Why is it that drugs don't control seizures in 30% of people with #epilepsy? On the Epilepsy Sparks Insights podcast, Graeme Sills, PhD 🇬🇧, shares his work and theories into this problem and how we - pharma, researchers, and clinicians - need to look "outside the box"! 👇🏻 🎬 youtu.be/0xhPeVjJqQA
🧠 🎉 Today is #WorldBrainDay! Hear why you should be involved (hint: over 40% of us all - including your friends and family - shall have a brain disease)! Chair, founder, and neurologist Dr. Tissa Wijeratne 🇦🇺 !! Watch here 👇🏻: youtu.be/ZYOocAtuRkY #neurology #brainhealth
World Brain Day: Brain Health: Access for All - Prof. Tissa Wijeratne
YouTube video by Epilepsy Sparks Insights - with Torie Robinson
youtu.be
For those who don't "believe" in #climatechange - the London Fire Brigade has given a guide on how to minimise risk of losing your home and garden during bushfires. www.london-fire.gov.uk/safety/grass...
Wildfires - protecting your home and garden
Wildfires can destroy homes and gardens, but there are steps you can take to reduce the risk. From cutting your grass to clearing your gutters - simple actions make a difference. Find out what you can...
london-fire.gov.uk
👥 Attending a conference even if only to catch up with an international colleague face to face is 100% worth it!! It's been a few years now that Jennifer Bethell and I have worked together on the iNeuron project - with multiple colleagues from around Canada! 🇨🇦 #basicscience #alzheimers #epilepsy
😀 Who knew one could have such fun talking about immune disorders causing epilepsy! In this week's Epilepsy Sparks Insights podcast 🎬, Prof. Colin Doherty 🇮🇪 shares his theories about refractory epilepsies being immune disorders! Watch here: 🎬 youtu.be/Gxmuot0Is6o 1/ #epilepsy #immunotherapy
We have only three medical ketogenic therapy centres in the UK - that's to cover 660,000 people who could be suitable! It's a fascinating treatment which can treat #epilepsy, #depression, and more. It should be considered at the same time as/before neutostimulation and neurosurgery.
Often seizures are the last thing on peoples minds (when they have an #epilepsy). It can be the utter #depression, #anxiety, feelings of not wanting to be here. These symptoms must be addressed. It's not just breathing that's important; it's wanting to breathe that can be the challenge... #suicide
🐄 The science behind the #ketogenicdiet is simple, right? Well, sorry (for myself as well as others)... not so much. 😆 In this week's podcast 🎬, Dr. Manny Bagary 🤩🇬🇧 explains all about the ketogenic process and the amazing impact of altering one's ketosis 👇🏻! 🎬 youtu.be/aVXUMjfvbJg 1/
People with #Epilepsy experience more than seizures. UCSF researchers discovered how momentary “brain blips” — that happen thousands of times a day and disrupt memory, attention, and language — might be prevented. https://ow.ly/fvqt50YZ7BH
HD Probes Show for the First Time How Epileptic ‘Brain Blips’ Occur
Epilepsy physicians Jon Kleen and Eddie Chang used high-resolution technology to see how cognition is disrupted in people with epilepsy and predict when it will occur. The new view points the way to being able to fend of these disruptions.
ow.ly
It's Reetta Kälviäinen 🇫🇮: "Beyond the Myoclonus: Recognizing the Clinical Face of PMEs (Progressive Myoclonic Epilepsy) EPM1 epilepsy" Reetta shared how the best epilepsy research is done with patients and families. And not just with the usual "awareness" activities it's research collaboration. 1/
Amazing panel discussion and notes: What defines a DEE? How "severe" must symptoms be? Is it a matter of association of clinical and EEG findings above a certain aetiogy? Is it a pathophysiological rather than a clinical concept? Is it not a static but dynamic concept? 1/
😀 Second day of the #DICE2026 epilepsy conference in Denmark! First speakers are: 〰️ Nicola Specchio 🇮🇹: "DEE: Classification and Current Concepts" 〰️ Lieven Lagae 🇧🇪: "Challenges in the Current Classification of DEEs" 1/2
Many people's brain scans look normal - despite them having seizures. 🧠⚡️ Christos Papadelis 🤩 talks about combining MEG with high-density EEG & AI to identify where seizures start!👇🏻 🎬 youtu.be/KQGjwVdYUBs This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH. #epilepsy
In prep for the UCB EpilepSEE conference in Chicago! We start tomorrow, with some incredible global collaborators - the start of a new project to improve the lives of those affected by epilepsy. Global experts inc. Prof. Reetta Kalviainen, Landis Wiedner, Alison Kukla, & Ivana Garcia. #epilepsy
Thank you to the Epilepsy Foundation 🧠🇺🇸 for the Research Ambassador Keynote Speaker award. I'm honoured. Not possible without EF leaders Jacqueline French, Caitlin Grzeskowiak, Renisha Jones, and Eva Childers. More is coming. Stay tuned y'all.... #epilepsy #neurology
Thank you to such a cool audience for being with me for a 55min keynote talk about how they can become involved/leaders in #epilepsy research - using their Epilepsy Experience Expertise. Thank you to Prof. Jacqueline French and Caitlin Grzeskowiak of the Epilepsy Foundation for the invitation.
Tremendous presentation about medtech devices used to help try and control epileptic seizures (they often have other benefits too though) - by star scientist Benjamin H Brinkmann PhD, FACNS FAES - at the Epilepsy Foundation Research Ambassador Program 🇺🇸! #epilepsy #medtech #eeg #neurology
See you soon Epilepsy Foundation of America - in Minneapolis 🇺🇸. I'll be sharing some pics of my talks - and those of others - over the next few days. Beautiful Delta Air Lines A330-900 LHR-MSP. ✈️ #epilepsy
🥳 New, fun podcast episode! Epilepsy; it's just not sexy, is it?! Hear how we need to improve education and marketing for epilepsy so that we can get greater acceptance and funding for research! All with intellectual disability nurse Jay Price 🤩🇬🇧! 👇🏻 🎬 youtu.be/-pMjMXnYKKM #epilepsy #purpleday
Our latest podcast episode - now out!! 🥳 👇🏻 #epilepsy #dataset #AI
MRIs miss brain lesions. 😑 Dr. Konrad Wagstyl 🤩🇬🇧 explains how he and his team are using large, global datasets to detect many of these previously unseen abnormalities! Watch youtu.be/3qj5If0RdqM This episode is presented in partnership with EASEE®Epilepsie®, by PRECISIS GmbH. #epilepsy #neuroimaging
Want to hear something exciting? 🥳 In this week's podcast, @konradwagstyl.bsky.social shares how he is using AI & datasets to identify previously unidentifyable (on MRI) brain lesions!! 🧠 Watch! 👇🏻 youtu.be/3qj5If0RdqM Presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH. #epilepsy #MRI