TRANSCEND-XR

@transcend-xr.bsky.social

TRANSCEND-XR: Co-creation and implementation of an intervention to improve the understanding of TesticulaR cANcer late effects and unmet Supportive CarENeeDs of AYA survivors using eXtended Reality. Horizon Europe โ€“ Grant Agreement No. 101214413

๐‚๐จ-๐œ๐ซ๐ž๐š๐ญ๐ข๐จ๐ง ๐ฆ๐ž๐š๐ง๐ฌ ๐๐ž๐ฌ๐ข๐ ๐ง๐ข๐ง๐  ๐ฐ๐ข๐ญ๐ก ๐ฉ๐ž๐จ๐ฉ๐ฅ๐ž, ๐ง๐จ๐ญ ๐Ÿ๐จ๐ซ ๐ญ๐ก๐ž๐ฆ ๐Ÿ’ฌ Have you experienced testicular cancer, or are you a loved one of someone who has? Join our online World Cafรฉ sessions and help inform the development of TRANSCEND-XR Register: ucc.qualtrics.com/jfe/form/SV_... #TesticularCancer #TRANSCENDXR

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Have you experienced testicular cancer? Weโ€™d like your help shaping the TRANSCEND-XR virtual reality tool. ๐Ÿฅฝ ๐‰๐จ๐ข๐ง ๐š๐ง ๐จ๐ง๐ฅ๐ข๐ง๐ž ๐–๐จ๐ซ๐ฅ๐ ๐‚๐š๐Ÿ๐žฬ ๐จ๐ง ๐Ÿ๐Ÿ” ๐จ๐ซ ๐Ÿ๐Ÿ— ๐’๐ž๐ฉ๐ญ๐ž๐ฆ๐›๐ž๐ซ ๐ญ๐จ ๐ฌ๐ž๐ž ๐จ๐ฎ๐ซ ๐ฉ๐ซ๐จ๐ญ๐จ๐ญ๐ฒ๐ฉ๐ž ๐š๐ง๐ ๐ฌ๐ก๐š๐ซ๐ž ๐ฒ๐จ๐ฎ๐ซ ๐ฏ๐ข๐ž๐ฐ๐ฌ. Register: ucc.qualtrics.com/jfe/form/SV_... #TesticularCancer #TRANSCENDXR

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๐’๐จ๐ฆ๐ž๐ญ๐ข๐ฆ๐ž๐ฌ ๐ญ๐ก๐ž ๐ฆ๐จ๐ฌ๐ญ ๐ฎ๐ฌ๐ž๐Ÿ๐ฎ๐ฅ ๐ญ๐ก๐ข๐ง๐  ๐ฐ๐ž ๐œ๐š๐ง ๐๐จ ๐ข๐ฌ ๐ฅ๐ข๐ฌ๐ญ๐ž๐ง... ๐ŸŽง Next TRANSCEND-XR Summer Pick is ๐“๐ก๐ž ๐‡๐ž๐š๐ฅ๐ญ๐ก ๐€๐Ÿ๐ญ๐ž๐ซ ๐‚๐š๐ง๐œ๐ž๐ซ ๐๐จ๐๐œ๐š๐ฌ๐ญ, which brings survivor experiences and clinical expertise into the same conversation. healthaftercancer.stanford.edu #TRANSCENDXR #CancerSurvivorship #PatientEngagement

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๐†๐จ๐จ๐ ๐๐ข๐ ๐ข๐ญ๐š๐ฅ ๐ก๐ž๐š๐ฅ๐ญ๐ก ๐ข๐ฌ๐ง'๐ญ ๐จ๐ง๐ฅ๐ฒ ๐š๐›๐จ๐ฎ๐ญ ๐ญ๐ก๐ž ๐ญ๐ž๐œ๐ก๐ง๐จ๐ฅ๐จ๐ ๐ฒ ๐Ÿ“ฑ The latest Summer Pick looks at co-design in supportive cancer care - and why involving patients and healthcare professionals from the start matters. Design with people, not just for them. humanfactors.jmir.org/2025/1/e73829

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๐Ÿ”ฌ ๐๐ž๐ฐ ๐Ÿ๐ซ๐จ๐ฆ ๐ญ๐ก๐ž ๐“๐‘๐€๐๐’๐‚๐„๐๐ƒ-๐—๐‘ ๐œ๐จ๐ฆ๐ฆ๐ฎ๐ง๐ข๐ญ๐ฒ Consortium member Prof. Davor Jeลพek is among the authors of new European Academy of Andrology clinical guidance on testicular biopsy. ๐Ÿ“– Read the open-access publication: onlinelibrary.wiley.com/doi/full/10.... #TRANSCENDXR #Andrology

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๐Ÿ“š ๐Ž๐ฎ๐ซ ๐Ÿ๐ข๐ซ๐ฌ๐ญ ๐“๐‘๐€๐๐’๐‚๐„๐๐ƒ-๐—๐‘ ๐’๐ฎ๐ฆ๐ฆ๐ž๐ซ ๐๐ข๐œ๐ค ๐œ๐จ๐ฆ๐ž๐ฌ ๐Ÿ๐ซ๐จ๐ฆ ๐‚๐š๐ซ๐ฅ๐š ๐๐š๐ข๐ฌ-๐•๐ข๐ž๐ข๐ซ๐š: ๐๐ž๐ข๐ง๐  ๐Œ๐จ๐ซ๐ญ๐š๐ฅ, ๐›๐ฒ ๐€๐ญ๐ฎ๐ฅ ๐†๐š๐ฐ๐š๐ง๐๐ž. A thoughtful reflection on quality of life, person-centred care and a simple but important question: what matters most to people?

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Weโ€™ve been a little quiet here lately ๐Ÿ‘‹ For the rest of August, weโ€™ll be sharing a few summer picks from the TRANSCEND-XR team - books, podcasts, articles and other recommendations worth passing on. First one coming soon. โ˜€๏ธ๐Ÿ“š

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โšฝ ๐“๐ก๐ž ๐…๐ˆ๐…๐€ ๐‚๐ฅ๐ฎ๐› ๐–๐จ๐ซ๐ฅ๐ ๐‚๐ฎ๐ฉ ๐ก๐š๐ฌ ๐ฌ๐ญ๐š๐ซ๐ญ๐ž๐. ๐…๐š๐ง๐ฌ ๐š๐ซ๐ž ๐Ÿ๐จ๐ฅ๐ฅ๐จ๐ฐ๐ข๐ง๐  ๐š๐ฅ๐ฅ ๐ญ๐ก๐ž ๐ฆ๐š๐ญ๐œ๐ก๐ž๐ฌ, ๐ฌ๐ญ๐š๐ญ๐ข๐ฌ๐ญ๐ข๐œ๐ฌ ๐š๐ง๐ ๐ซ๐ž๐ฌ๐ฎ๐ฅ๐ญ๐ฌ. In football, it's important to know the details. It is also important for our health.

๐…๐ซ๐จ๐ฆ ๐ญ๐ซ๐ž๐š๐ญ๐ฆ๐ž๐ง๐ญ ๐ญ๐จ ๐ฅ๐ข๐Ÿ๐ž ๐š๐Ÿ๐ญ๐ž๐ซ ๐œ๐š๐ง๐œ๐ž๐ซ. For many people, surviving cancer also means learning how to live with everything that comes after it. The long-term effects are not always visible. But they are real.

๐Ž๐ฎ๐ซ ๐Ÿ๐ข๐ซ๐ฌ๐ญ ๐ฉ๐ž๐ž๐ซ-๐ซ๐ž๐ฏ๐ข๐ž๐ฐ๐ž๐ ๐“๐‘๐€๐๐’๐‚๐„๐๐ƒ-๐—๐‘ ๐ฉ๐ฎ๐›๐ฅ๐ข๐œ๐š๐ญ๐ข๐จ๐ง ๐ข๐ฌ ๐ง๐จ๐ฐ ๐จ๐ฎ๐ญ ๐ข๐ง ๐€๐ง๐๐ซ๐จ๐ฅ๐จ๐ ๐ฒ. The paper presents the projectโ€™s vision and methodology for improving survivorship care for adolescent and young adult testicular cancer survivors.

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๐Ÿ’ฌ โ€œ๐ˆ๐ญ ๐ฐ๐š๐ฌ ๐š ๐ญ๐ซ๐ฎ๐ฅ๐ฒ ๐ž๐ง๐ซ๐ข๐œ๐ก๐ข๐ง๐  ๐ž๐ฑ๐ฉ๐ž๐ซ๐ข๐ž๐ง๐œ๐ž. ๐ˆ๐ญ ๐Ÿ๐ž๐ฅ๐ญ ๐ฆ๐ž๐š๐ง๐ข๐ง๐ ๐Ÿ๐ฎ๐ฅ ๐ญ๐จ ๐œ๐จ๐ง๐ญ๐ซ๐ข๐›๐ฎ๐ญ๐ž ๐ญ๐จ ๐ฌ๐จ๐ฆ๐ž๐ญ๐ก๐ข๐ง๐  ๐ญ๐ก๐š๐ญ ๐œ๐จ๐ฎ๐ฅ๐ ๐ก๐ž๐ฅ๐ฉ ๐จ๐ญ๐ก๐ž๐ซ๐ฌ ๐ง๐š๐ฏ๐ข๐ ๐š๐ญ๐ข๐ง๐  ๐ฅ๐ข๐Ÿ๐ž ๐š๐Ÿ๐ญ๐ž๐ซ ๐œ๐š๐ง๐œ๐ž๐ซ.โ€ Weโ€™ve been hearing this from people joining our World Cafรฉ sessions. Thereโ€™s still time to take part: ๐Ÿ“… 30 April ๐Ÿ“… 13 May ๐Ÿ“… 19 May ๐Ÿ“ฉ transcendxr@ucc.ie

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๐Ÿ“ข ๐€๐ฉ๐ซ๐ข๐ฅ ๐ข๐ฌ ๐“๐ž๐ฌ๐ญ๐ข๐œ๐ฎ๐ฅ๐š๐ซ ๐‚๐š๐ง๐œ๐ž๐ซ ๐€๐ฐ๐š๐ซ๐ž๐ง๐ž๐ฌ๐ฌ ๐Œ๐จ๐ง๐ญ๐ก Testicular cancer is the most common cancer in men aged 15โ€“40. And yet, itโ€™s barely talked about. That should probably change.

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๐‡๐ž๐ฅ๐ฉ ๐ฌ๐ก๐š๐ฉ๐ž ๐š๐๐จ๐ฅ๐ž๐ฌ๐œ๐ž๐ง๐ญ ๐š๐ง๐ ๐ฒ๐จ๐ฎ๐ง๐  ๐š๐๐ฎ๐ฅ๐ญ (๐€๐˜๐€) ๐œ๐š๐ง๐œ๐ž๐ซ ๐œ๐š๐ซ๐ž ๐ข๐ง ๐„๐ฎ๐ซ๐จ๐ฉ๐ž! A new stakeholder survey is gathering insights on current AYA cancer care provision, barriers, enabling factors and good practices across countries. Take part here until 12 May: horizons.confirmit.eu/wix/p4422914...

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๐‡๐จ๐ฐ ๐๐จ ๐œ๐š๐ง๐œ๐ž๐ซ ๐œ๐ž๐ง๐ญ๐ซ๐ž๐ฌ ๐š๐œ๐ซ๐จ๐ฌ๐ฌ ๐„๐ฎ๐ซ๐จ๐ฉ๐ž ๐ฌ๐ฎ๐ฉ๐ฉ๐จ๐ซ๐ญ ๐ฒ๐จ๐ฎ๐ง๐  ๐ญ๐ž๐ฌ๐ญ๐ข๐œ๐ฎ๐ฅ๐š๐ซ ๐œ๐š๐ง๐œ๐ž๐ซ ๐ฌ๐ฎ๐ซ๐ฏ๐ข๐ฏ๐จ๐ซ๐ฌ? A TRANSCEND-XR survey across 8 clinical sites mapped current care practices, from patient education to survivorship support, helping guide future research to improve life after cancer for AYA. transcend-xr.eu

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๐Ÿ’ฌ Young cancer survivors have important insights The EU Cancer Mission Dialogue with Adolescents and Young Adults creates a space where survivors, researchers and policymakers can exchange perspectives and help shape future cancer research in Europe.

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๐Ÿ“Š Estimating the cancer burden in the EU An EUHPP Live Webinar on how cancer incidence and mortality are measured across Europe, using ECIS data โ€” including 2024 estimates and projections up to 2040. ๐Ÿ—“ 2 Feb 2026 | โฐ 09:00โ€“10:00 (UTC) ๐Ÿ‘‰ bit.ly/4qq1mE9

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๐ˆ๐ง ๐“๐‘๐€๐๐’๐‚๐„๐๐ƒ-๐—๐‘, ๐–๐จ๐ซ๐ฅ๐ ๐‚๐š๐Ÿ๐žฬ๐ฌ ๐š๐ซ๐ž ๐š ๐ฌ๐ฉ๐š๐œ๐ž ๐ฐ๐ก๐ž๐ซ๐ž ๐ฆ๐ž๐š๐ง๐ข๐ง๐ ๐Ÿ๐ฎ๐ฅ ๐œ๐จ๐ง๐ฏ๐ž๐ซ๐ฌ๐š๐ญ๐ข๐จ๐ง๐ฌ ๐ก๐š๐ฉ๐ฉ๐ž๐ง. ๐ŸŒŸ๐ŸŒŸ If you or someone you know might like to join a future session, weโ€™d be grateful to hear from you. ๐Ÿ‘‰ Register your interest: lnkd.in/eYZYVcfh ๐Ÿ“ง Email: transcendxr@ucc.ie #TRANSCENDXR #cancersurvivor #MissionCancer

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๐ŸŒŸ Help shape life after testicular cancer TRANSCEND-XR is hosting World Cafรฉ sessions - small, interactive online conversations where survivors and loved ones can share what life after treatment feels like. Your insights will help shape a new XR educational intervention for survivorship. ๐Ÿ’ฌ

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๐Ÿ’กโ€œWeโ€™ve seen the clinical need. We recognise thereโ€™s a population with unmet needs, and this project has the potential not only to identify them but also to enable patients to address them โ€” and for us, as healthcare professionals, to support them.โ€ Professor Joanne Reid, Queenโ€™s University Belfast

๐Ÿ’ก โ€œMaybe the intervention is amazing, but if the costs are too high, then how can we ever implement it?โ€ โ€“ Justine Fleur van der Feen, Research Consultant, PredictBy. ๐ŸŽฅ ๐–๐š๐ญ๐œ๐ก ๐‰๐ฎ๐ฌ๐ญ๐ข๐ง๐ž ๐ฌ๐ก๐š๐ซ๐ž ๐ฐ๐ก๐ฒ ๐ญ๐ก๐ข๐ฌ ๐ž๐ฏ๐š๐ฅ๐ฎ๐š๐ญ๐ข๐จ๐ง ๐ข๐ฌ ๐œ๐ซ๐ข๐ญ๐ข๐œ๐š๐ฅ ๐Ÿ๐จ๐ซ ๐ฌ๐ฎ๐ซ๐ฏ๐ข๐ฏ๐จ๐ซ๐ฌ, ๐Ÿ๐š๐ฆ๐ข๐ฅ๐ข๐ž๐ฌ, ๐š๐ง๐ ๐ก๐ž๐š๐ฅ๐ญ๐ก ๐ฌ๐ฒ๐ฌ๐ญ๐ž๐ฆ๐ฌ ๐š๐ฅ๐ข๐ค๐ž.

TRANSCEND-XR Work package 4

YouTube video by TRANSCEND-XR

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As part of TRANSCEND-XR, Dr. Anna Patrikidou, Consultant Medical Oncologist, Institut Gustave Roussy ๐™ž๐™จ ๐™ก๐™š๐™–๐™™๐™ž๐™ฃ๐™œ ๐™– ๐™˜๐™ก๐™ž๐™ฃ๐™ž๐™˜๐™–๐™ก ๐™ฉ๐™ง๐™ž๐™–๐™ก ๐™–๐™˜๐™ง๐™ค๐™จ๐™จ ๐™š๐™ž๐™œ๐™๐™ฉ ๐™˜๐™ก๐™ž๐™ฃ๐™ž๐™˜๐™–๐™ก ๐™จ๐™ž๐™ฉ๐™š๐™จ ๐™ž๐™ฃ ๐™€๐™ช๐™ง๐™ค๐™ฅ๐™š ๐™ฉ๐™ค ๐™ฉ๐™š๐™จ๐™ฉ ๐™ฉ๐™๐™š ๐™š๐™›๐™›๐™š๐™˜๐™ฉ ๐™ค๐™› ๐™ฉ๐™๐™š ๐™๐™๐˜ผ๐™‰๐™Ž๐˜พ๐™€๐™‰๐˜ฟ-๐™“๐™ ๐™ž๐™ฃ๐™ฃ๐™ค๐™ซ๐™–๐™ฉ๐™ž๐™ซ๐™š ๐™™๐™ž๐™œ๐™ž๐™ฉ๐™–๐™ก ๐™ž๐™ฃ๐™ฉ๐™š๐™ง๐™ซ๐™š๐™ฃ๐™ฉ๐™ž๐™ค๐™ฃ ๐™ค๐™ฃ ๐™ฉ๐™š๐™จ๐™ฉ๐™ž๐™˜๐™ช๐™ก๐™–๐™ง ๐™˜๐™–๐™ฃ๐™˜๐™š๐™ง ๐™จ๐™ช๐™ง๐™ซ๐™ž๐™ซ๐™ค๐™ง๐™จ.

TRANSCEND-XR Work package 3

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๐ŸŒ โ€œ๐“๐ก๐ž ๐ซ๐ž๐š๐ฅ๐ข๐ญ๐ฒ ๐ข๐ฌ ๐ญ๐ก๐š๐ญ ๐ญ๐ก๐ž๐ซ๐ž ๐š๐ซ๐ž ๐ข๐ง๐œ๐ซ๐ž๐š๐ฌ๐ข๐ง๐  ๐ง๐ฎ๐ฆ๐›๐ž๐ซ๐ฌ ๐จ๐Ÿ ๐œ๐š๐ง๐œ๐ž๐ซ ๐ฌ๐ฎ๐ซ๐ฏ๐ข๐ฏ๐จ๐ซ๐ฌ ๐ ๐ฅ๐จ๐›๐š๐ฅ๐ฅ๐ฒ, ๐š๐ง๐ ๐ฐ๐ž ๐ก๐š๐ฏ๐ž ๐ญ๐จ ๐ฎ๐ฌ๐ž ๐ข๐ง๐ง๐จ๐ฏ๐š๐ญ๐ข๐ฏ๐ž ๐ง๐ž๐ฐ ๐ฌ๐จ๐ฅ๐ฎ๐ญ๐ข๐จ๐ง๐ฌ ๐Ÿ๐จ๐ซ ๐ฌ๐ฎ๐ฉ๐ฉ๐จ๐ซ๐ญ๐ข๐ง๐  ๐ฉ๐š๐ญ๐ข๐ž๐ง๐ญ๐ฌ.โ€ Prof. Josephine Hegarty, School of Nursing & Midwifery, UCC

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