New evidence from the @nihr.bsky.social 'No Research About Us, Without Us' project, outlining practical approaches to making research trials inclusive for people with #learningdisabilities @vickylshepherd.bsky.social @vasototsika.bsky.social @debcairns.bsky.social link.springer.com/article/10.1...

Redesigning trials to be inclusive of people with a learning disability—a practical example - Trials

Background People with a learning disability are frequently excluded from clinical trials, with around two thirds of trials either directly or indirectly excluding this group. This contributes to the ...

link.springer.com

Recruiting a post-doc at UCL. Using linked administrative data from health and education, the Research Fellow in Data Science with identify children with intellectual disability and investigate maternal mental health. 15 months, FT Salary £45,103-£ 52,586 Apply by 3rd Feb: tinyurl.com/bffeshp6

Thank you @jidr-wiley.bsky.social ! I have really enjoyed supporting the publication of great research in intellectual disabilities as the EiC over the past 4 years! Best of luck to the new editors. JIDR is in good hands

Journal of Intellectual Disability Research@jidr-wiley.bsky.social · 9mo ago

📣Announcement!📣 Introducing Renata Ticha and Shirli Werner as JIDR's new Co-Editors-in-Chief! onlinelibrary.wiley.com/journal/1365... Thank you @vasototsika.bsky.social for your excellent leadership over the past 4 years. We are now looking forward to working with our new Co-Editors-in-Chief.

A reminder that Wiley is recruiting an Editor-in-Chief for the Journal of Intellectual Disability Research. The deadline for applications is 31st October 2025. onlinelibrary.wiley.com/page/journal...

Journal of Intellectual Disability Research is inviting applications for the role of Editor-in-Chief

onlinelibrary.wiley.com

Harry Roche making a keynote speech at EAMHID 2025 in Ghent. First keynote speaker with an intellectual disability. Harry says below what needs to happen for people with intellectual disabilities to be fully included. Unfair exclusion from basic rights, opportunities & research. @mencap.org.uk

Shocking. Not entirely surprising though. I wonder how many people would continue writing papers if the system stopped counting them as academic ouputs

Leonid Schneider@forbetterscience.bsky.social · last yr.

"Oviedo-García has documented many more examples, nearly all from MDPI journals" That's because MDPI publishes peer review reports. forbetterscience.com/2025/02/12/t...

This is how we moved from academic papers to easy read versions of research evidence. No Research about Us without Us seminar now on how we co-produce health research in intellectual disability @learningdiseng.bsky.social @amymrussell.bsky.social @debcairns.bsky.social

Men's mental health is an increasingly important area - please do consider taking part if you are a man 40-65 years old

Prof Alexandra Pitman@alexandrapitman.bsky.social · last yr.

We are recruiting UK-based men aged 40 to 65 years for our @ucl.ac.uk #suicide research study: Men Talking About Suicide. Closes 30/06/25. Funded by a UCL Grand Challenges award. Do please pass on to this invitation &/or click on this link to read more: redcap.idhs.ucl.ac.uk/surveys/?s=7...

We just published a new paper looking at the experiences of mothers when health professionals told them their baby has Down Syndrome. Mothers were told before, during and after the birth of their baby, sometimes in odd places. bmcpregnancychildbirth.biomedcentral.com/articles/10....

Your baby has down syndrome: a reflexive thematic analysis of breaking the news to parents - BMC Pregnancy and Childbirth

The communication of a Down syndrome diagnosis to mothers is a pivotal moment that can impact their emotional well-being and the subsequent care for their child. This study aimed to explore maternal e...

bmcpregnancychildbirth.biomedcentral.com

A Scoping Review of the Ways Gatekeepers May Hinder or Promote Opportunities for People With Intellectual and/or Developmental Disabilities to Learn About Research Participation #OpenAccess onlinelibrary.wiley.com/doi/10.1111/...

A Scoping Review of the Ways Gatekeepers May Hinder or Promote Opportunities for People With Intellectual and/or Developmental Disabilities to Learn About Research Participation

Background Adults with intellectual and/or developmental disabilities are disproportionately excluded from participation in research, consequently increasing disparities experienced by this group. G...

onlinelibrary.wiley.com

🎉Happy to announce that our #RCT paper about the effectiveness of the #sibling serious game 'Broodles' has been published open access! With this game we offer an accessible, early intervention for siblings (6-9 years) of children with disabilities. See: www.sciencedirect.com/science/arti...

Supporting young siblings of children with intellectual disabilities and/or visual impairments with the serious game ‘Broodles’: A mixed methods randomized controlled trial

Siblings of children with neurodevelopmental conditions experience conflicting emotions and have an increased risk of mental health problems. Several …

sciencedirect.com

Contraceptive and Pregnancy Decision-Making Autonomy and Health Care Experiences Among Women With Intellectual Disabilities onlinelibrary.wiley.com/doi/10.1111/...

The figures haven't changed in the past few years

Mencap@mencap.org.uk · 2y ago

1/3 🚨 The latest NHS data shows there are 2,065 people with a learning disability and/or autism in mental health hospitals.    👉 It’s time for change. Join us in campaigning for a better future. Sign up to become a Mencap campaigner, brnw.ch/21wRhxA   #HomesNotHospitals #MentalHealthActReform

Evaluating the Clinical Applicability of Multifrequency Bioelectrical Impedance Analysis for Nutritional Status Prediction in Hospitalized Persons With Severe Motor and Intellectual Disabilities onlinelibrary.wiley.com/doi/10.1111/...

I Open My Own Front Door, Do You? Week has been fantastic! 💫 Send us stories of people opening their own front door, why they don’t get to and what you’re doing about it. Take a look ⬇️ www.gloriouslyordinarylives.co.uk/i-open-my-ow... @learningdiseng.bsky.social #IOpenMyOwnFrontDoor

Thank you for having us Michael @academichv.bsky.social. I really enjoyed the conversation and meeting the early minds network members

Mental Health in Development@mhid.org.uk · 2y ago

Watch Me Play! @academichv.bsky.social met with Dr Jenifer Wakelyn and @vasototsika.bsky.social to discuss their research around the Watch Me Play! approach mhid.org.uk/watch-me-pla...

As of 📅Monday 3 March 2025, we will only be engaging via LinkedIn, Bluesky and YouTube. Join Us: 🦋Bluesky: bit.ly/3CzVk0j 🤝Linked In: bit.ly/439xQdl 🎥YouTube: bit.ly/3WWTihs 📰Subscribe to our newsletter: bit.ly/3WRt68c

Really enjoyed discussing our research on healthcare and autism with @mengchuanlai.bsky.social as part of the new #ICESOntario podcast #Disability #AutRes

ICES Ontario@icesontario.bsky.social · 2y ago

Autism research is evolving—and so is the conversation. In this episode of In Our VoICES, #ICESOntario scientist Yona Lunsky & CAMH scientist Meng-Chuan Lai explore how the focus has shifted to improving the lives of autistic individuals, especially in health care! 🎧 www.ices.on.ca/podcast/

Please share: new funded PhD opportunity! Navigating the Mental Capacity Act to support Sexual Decision-Making for People with Learning Disabilities To find out more please follow the link below: #AcademicSky #FindAPhD #PhD #LearningDisabilitiesResearch

Navigating the Mental Capacity Act to support Sexual Decision-Making for People with Learning Disabilities at Manchester Metropolitan University on FindAPhD.com

PhD Project - Navigating the Mental Capacity Act to support Sexual Decision-Making for People with Learning Disabilities at Manchester Metropolitan University, listed on FindAPhD.com

findaphd.com

Nice to see you here @jidr-wiley.bsky.social

Journal of Intellectual Disability Research@jidr-wiley.bsky.social · 2y ago

Hi! We will be starting to post content about the Journal of Intellectual Disability Research (JIDR) over the coming weeks. Please follow us for updates about the latest research published in JIDR, calls for Special Issues, and other journal-related news.