The Children's Cancer Data Initiative symposium, scheduled for next week at the NCI, has been cancelled because of the shutdown. This is unfortunate. I was looking forward to hearing all the amazing progress made by so many working to leverage data for pediatric cancer research.

Wow - this is awful and will affect a lot of project and studies. Please spread the word. smartirb.org/stop-work-or...

I want to get this amplified. One of my data engineers @hhickman.bsky.social y.social part of my @d4cg.bsky.social team created this amazing tool to show the potential losses due to the change in indirect costs proposed by the current administration. It's shocking - please share. sam.am/IDC

huberthickman.shinyapps.io

Hubert Hickman@hhickman.bsky.social · 2y ago

I have created an application that uses the NIH RePORTER data to show the potential loss of funding due the 15% cap on indirect costs proposed by the current administration. You can filter by many different fields (state, org, etc). huberthickman.shinyapps.io/grant_indire...

@d4cg.bsky.social is excited to be running a workshop with peds oncologists from all over India to democratize access to rare disease data through community building and data aggregation and harmonization. Thanks to the UChicago Delhi Ctr, Tata Mem. Hosp, Wadia Children's, Rajiv Ghandi Cancer Ctr

It is so exciting to be at the NCI today at the BSA committee meeting. While it wasn't "business as usual," it was very heartening to see most everyone excited about a solid future, where we can continue to improve cancer prevention, morbidity, and mortality.

I am super excited about this new leadership role in my research group, @d4cg.bsky.social. Help build novel methods for getting patient data directly from the EHR. Please apply! sam.am/PD2024 This will help our cancer survivorship work as well as other projects like our monogenic epilepsy commons.

So much for the "crown jewel" status for the NIH. Putting these clowns in charge is not going to help anyone. www.nytimes.com/2024/12/01/h... Could anyone ever imagine a vaccine denier in charge of US healthcare? I can't think of a worse outcome.

Long a ‘Crown Jewel’ of Government, N.I.H. Is Now a Target

The agency long benefited from broad bipartisan support. But Republican criticism has intensified, and new choices for top health posts hope to upend the organization.

nytimes.com

Tough bring the lone vegan on Thanksgiving.... #vegan

We need to leverage new and innovative ways to get better clinical data. Check out this review by Kirk Wyatt and me. @d4cg.bsky.social

Data for the Common Good@d4cg.bsky.social · 2y ago

A new editorial from D4CG’s Kirk Wyatt, Brian Furner, and @volcs0.bsky.social suggests it’s time to rethink the “gold standard” of manual data extraction and entry in #ClinicalResearch. ascopubs.org/doi/10.1200/...

Check out our Masters program offerings at University of Chicago - programs.bsd.uchicago.edu . Reach out if you want information on any of our programs. We are looking to train the next generation of leaders, and we offer concentrations in science communications, data science, and other fields.

When you get a piano from your landscaper, don't be surprised at the delivery mechanism. #concordelandscaping

I love waking up and seeing our overnight visitors. #Indiana #trailcam

Even when I was 8 years old, people were telling me to slow down. Side note: incredible to find out that Julian Solway and I had the same #Skokie piano teacher! Thanks Jane Hallenstein. #piano

Nacho wants up see what his big brother is eating. Thankfully, Rocco is very patient and gentle. #greatdane #kitten

Pro tip: Don't go to Costco on the Saturday before Thanksgiving. The checkout line stretched to the back of the store. The staff was amazing, but it was a madhouse. #costco

We at @d4cg.bsky.social had a wonderful webinar yesterday discussing our data commons work in rare diseases and our @chanzuckerberg.bsky.social monogenic epilepsy commons. @fda.gov commissioner Dr. Califf joined us for a fun discussion. Watch below and reach out if you want to get involved!

Data for the Common Good@d4cg.bsky.social · 2y ago

Thrilled to share yesterday's #Epilepsy #RareDisease webinar! Our speakers were FDA commissioner Dr. Robert Califf, parent & advocate Dr. Justin West, epilepsy expert Dr. Doug Nordli, data scientist @proflhunter.bsky.social, and our D4CG director @volcs0.bsky.social. www.youtube.com/watch?v=XVWt...

Rocco is not sure of his new bed mate...

Look who was hiding in the wood pile. #salamander

Rocco and Rhoda - lazing around. #greatdane #australianshepherd