It's been a busy day today engaging communities in genetics and genomics in Wales! We've been at Day 2 of the Connect CACNA1C Global Network Conference 2026 at Cardiff Uni and also out delivering a community talk on genetic ancestry to Bridgend Probus! #RareDisease #CommunityEngagement
Wales Gene Park
@walesgenepark.bsky.social
Harnessing Genetics to advance Research, Healthcare, Education and Innovation 🧬💡 📩 walesgenepark@cardiff.ac.uk linktr.ee/walesgenepark
We're at the Connect CACNA1C Global Network Conference 2026 at Cardiff Uni alongside our #AWMGS colleagues. Today is all about the latest research it's a great opportunity to connect with researchers, people living with these conditions, and their families! #Genomics #TimothySyndrome #CACNA1C
It was a pleasure to take part in the #UniversitiesWales Civic Mission Symposium today at the #walesmillenniumcentre. It was a great opportunity to discuss the community engagement work we're doing across Wales to help mainstream genomics. #Genomics #Mainstreaming #CivicEngagement
It was fantastic to meet some of the new members of #GenomicsPartnershipWales’ Patient and Public Sounding Board. They heard from our Genomic Consent Manager, Rhys Vaughan, on genomics, and our Patient and Public Involvement Lead, Emma Hughes, on co-production. #Genomics #PatientInvolvement #Cymru
Bookings are open for the first-ever Genomics Showcase in North Wales! 🧬 Join us at Venue Cymru, Llandudno, on 19 November 2026 for a day of: 🧬 Inspiring talks 💬 Expert panel discussions 🏢 Networking opportunities Find out more and book here: bit.ly/4aNLfL9 #GenomicsShowcaseNW2026 #Genomics
Thank you to all who joined us for our Future for Rare workshop and shared their thoughts and experiences. It was great to hear so many perspectives! We’re excited to see what comes next with the Future for Rare Campaign! Sign up for updates - lnkd.in/eX64KBuD. #RareDisease #FutureforRareCampaign
Join us tomorrow for our next Genomics Café 🧬🫖 Hear from Dr John Lewis and PPI representative Jemin Popat, who will be covering some of the advanced therapy highlights from the Genomics Showcase 2026. 🗓️ 11 June 🕚 11:00 Book now - www.ticketsource.com/wales-gene-p... #GenomicsShowcase2026 #Wales
This Thursday is our next Public Genomics Café. Join us to revisit talks from the Genomics Showcase, including Dr Rebecca Simms, from Cardiff Uni, exploring genes in dementia. 🗓️ 11 June 2026 🕚 11:00–12:45 Book now - www.ticketsource.com/wales-gene-p... #GenomicsShowcase2026 #Cymru #Wales
⏳ Less than a week to go until the Public Genomics Café Join us as we revisit some talks from the Genomics Showcase including Dr Maninder Ahluwalia on the genomics of intermittent fasting. 🗓️ 11 June 🕚 11:00am Book now - www.ticketsource.com/wales-gene-p... #GenomicsShowcase2026 #Cymru #Wales
📢 Help shape the future for Rare in Wales! Join the Welsh Future for Rare workshop online on 22.06.226 to discuss priorities for the rare condition community. A range of insights are crucial for recommendations to all four UK governments. Registration open now - loom.ly/ijJTwBs #FutureForRare
We’re working with Genetic Alliance UK to host Future for Rare Workshop 2026 – Your Views Matter. An online workshop giving the rare disease community in Wales a chance to shape the UK Rare Diseases Framework. 📅 22 June 26 📍 Teams ✨Register here✨- lnkd.in/eQcvtEra #FutureForRare #PatientVoice
Applications are open to join Genomic Partnership Wales' Patient and Public Sounding Board in 2026 until 31 May. Find out more about the role of the Sounding Board, who can get involved and how to apply here - lnkd.in/ebHQYqyq #Genomics #PublicEngagement #Cymru #PatientVoice
Missed the Genomics Showcase? 📢 Join us for a special Public Genomics Café 🧬🫖 to revisit showcase talks and explore key themes in an accessible format. 🗓️11 June 2026 🕰️11:00 – 12:45 📍Microsoft Teams Book your place here - www.ticketsource.com/wales-gene-park #GenomicsShowcase2026 #Cymru
A huge thank you to all who joined us at #GenomicsShowcase2026 in Cardiff. It was an inspiring day of talks, posters, networking and collaboration across Wales’ genomics community. Register your interest for our North Wales Genomics Showcase here - forms.office.com/e/wjYUBdMc2j #Genomics #Cymru
What a day at #GenomicsShowcase2026 🧬 From personalised prescribing to cancer advances and rare disease diagnosis, the range of topics was incredible with a strong focus on public & patient involvement. Thank you to all the speakers shaping the future of genomics across Wales. #Genomics #Cymru
It’s been incredible to see so many inspiring speakers at today’s Genomics Showcase. With talks covering a huge range of topics. It’s been really positive to see how far genomics in Wales has come. We’re looking forward to more sessions after lunch! #GenomicsShowcase2026 #Genomics #Cymru
And we’re live at the #GenomicsShowcase2026. Check out the huge range of talks and panels across 4 different spaces, explore 30 posters, take time to network, come find us on floor 4 and and let's celebrate genomics in Wales! #GenomicsShowcase2026 #Genomics #Cymru #Genomicspartnershipwales
We’re delighted to welcome AstraZeneca as a Gold Sponsor of the Genomics Showcase at Cardiff City Stadium. Their support has made the event possible. Visit their stand on the 4th floor to learn more about their work in genomics. #GenomicsShowcase2026 #Cymru
Just over a week to go until the first-of-its-kind Genomics Showcase — and there are a few extra spaces! 🎉 It’s a packed day featuring: 🧬 Inspiring talks 💬 Expert panels 🎯 Interactive activities 🏢 Informative stands Don’t miss out - book your place now: bit.ly/3QbfMuG #GenomicsShowcase2026 #Cymru
Brilliant to be out at #SIHLive talking to year 12s from across South Wales. Thanks to @cumedicengage.bsky.social for putting the event together! Exciting to meet some of the potential health professionals of the future and introduce them to genomics and genetics. #Genomics #Healthcare #engagement
Great to attend the launch of the QuicDNA Max liquid biopsy programme for cancer care, at the #Senedd last night. Wonderful to see the collaboration between those affected by cancer, NHS scientists and clinicians, researchers and industry partners. #Healthcare #Research #Genomics
Ahead of #RareDiseaseDay tomorrow, we are in Swansea raising awareness and shining a spotlight on genomics and rare conditions at the Royal College of Midwifery St David's Day Conference. Great to meet colleagues from across the field of midwifery. #Genomics
Great to see the Welsh rare disease community yesterday at the Rare Disease Day reception in Cardiff. We heard insights on Behçet’s, the Welsh Rare Disease Plan, the 'Equity for Rare' report from @geneticallianceuk.bsky.social, and the new NICE Quality Standards. #RareDiseaseDay #Cymru #Senedd
Join the community in coming together to raise awareness for #RareDiseaseDay2026 at our Joint Nation online event on Thursday 5 March, at 10.00 - 12.00. Register your place now: www.eventbrite.co.uk/e/rare-disea... #RareDiseaseDay #RDD2026 #Rarequity
Some absolutely fantastic talks at the #RareDiseaseDay2026 reception in Cardiff. Hearing from John Griffiths MS, Rachael Humphreys on Behçets Disease, Dr Jamie Duckers on the Welsh Rare Disease Plan, Nick Meade CEO of @geneticallianceuk.bsky.social and Dr Graham Shortland! Thank you all!
We're kicking things off at the #RareDiseaseDay2026 reception with John Griffiths MS speaking on the importance of building rare disease services into the NHS in Wales.
We have some amazing speakers at the #RareDiseaseDay2026 reception in the #NorwegianChurch. Looking forward to hearing from them all. @geneticallianceuk.bsky.social