Wheelie Out There
@wheelieoutthere.bsky.social
MS support at https://themighty.com/topic/multiple-sclerosis/ Writer/reporter on disability issues. Look ma, no hands!
What It’s Like To Live With Pediatric #MultipleSclerosis: A Program for Families – 10/22/26 Learn & connect w other kids, teens & young adults who know what you’re going through. Bring family or anyone else cheering you on! Meet experts for your questions. Signup, Resources: tinyurl.com/yx8tfkny
Wednesdays at 1-2 PM ET – #Dance for Life is a program for people living with movement and neuromuscular conditions like #MultipleSclerosis, #Parkinson’s, #dystonia and others. Led by experienced instructors from Univ. of Florida Health Shands Hospital Arts in Medicine. 1/2
Does anyone else do this too?: "For the sake of others,…I pretend everything is OK, even when it’s not. Sometimes I find it easier to edit my truth rather than" explain how I am. The writer finds she's gotten good at the art of pretending — even to herself. tinyurl.com/3smkb4xn #MultipleSclerosis
I do a lot of pretending while living with MS
Columnist Desiree Lama says that sometimes it's easier to convince herself that living with MS is all rainbows and butterflies.
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Tomorrow at Noon ET — "Ask an MS Expert: Open Enrollment for #Medicare" Find the best, most affordable drug coverage for you. Featuring Beth Scott of the nonprofit Patient Advocate Foundation, an expert at helping people find the health care they need. Link: tinyurl.com/5f7vpndu #MultipleSclerosis
The people who create #access for us also need our support. Nancy and her #disability rights advocacy group ADAPT are raising funds starting today. Our rights are under attack like never before. #ADAPT fights for us. tinyurl.com/2wdefhwa
They're fighting for us!
Here's a chance to give back to those who create access. For over 45 years, disability rights advocates like Nancy Crowther have changed the...
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Voting by mail is so easy. But it takes prep work. Don't delay. #MultipleSclerosis #caregiving #ChronicIllness #disability
FIGHTING FOR US! Nancy Crowther & ADAPT are raising money to keep their grassroots #disability advocacy alive. Nancy was chaining herself to transit buses 40 yrs ago to get them accessible. Now she's making sure #ADAPT is ready to fight attacks on rights coming from this govt. tinyurl.com/4sttj85c
Every autumn I used to get an enormous burst of energy. Now I just get chilly (but it's still beautiful). #MultipleSclerosis #MightyTogether
There are many similar family #caregiving stories. 50+ million. #MultipleSclerosis
AdventureBee (she/her)@adventurebee.bsky.social · 3w agoI'm in my early 50s and lost healthcare soon after Trunp took office when he didn't extend the subsidies. Now I have untreated Multiple Sclerosis while caring for 2 aging parents and a blind husband. I can feel myself breaking down fast. The body keeps score 😥
TDo you need a computer? The National MS Society, in partnership with Human-I-T, can help! To get more information or get signed up, contact an MS Navigator by calling 1-800-344-4867 or go to www.nationalmssociety.org/resources/ge... #MultipleSclerosis #MightyTogether
If you're a #wheelchair user, have use of 1 hand, or have trouble standing, you can play pinball w everyone else w the Adaptive Flipper Control. Designed by a stroke survivor, it costs only $35, or play #accessiblepinball at The Game Preserve arcades in Houston. #Disability tinyurl.com/3av859h4
Making Pinball Accessible for Everyone
Man, it's hot out here, and a good time to hang out in an air-conditioned arcade. Who doesn't like playing some old-school pinball? The only...
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Tracey W. of Mount Vernon, NY, had never seen people living with #MultipleSclerosis represented onstage. So, she wrote and staged a play doing just that. UNBROKEN VOICES shares authentic stories and people living with MS, raising awareness and helping audiences better understand life with MS.
Thurs. 9/16/26 : Ask an MS Expert: The Importance of Diet and Nutrition for MS (Spanish Program) :12-12:30 PM ET Nutritionist Wanda González talks about impact of diet on #MultipleSclerosis. She discusses recent studies, and improving the health of racial & ethnic minorities. tinyurl.com/3tp7hjxv
"If it were possible, I think I’d tell my past self not to be caught off guard by #depression." #MultipleSclerosis #disability
MS News Today@msnewstoday.bsky.social · 4w agoMS mental health ups and downs: https://bit.ly/3JYADOA #MSAwareness #ThisIsMS #MSLife #MSCommunity #MSSupport #MSFighter #MSNewsToday #Bionews
Bob Wagner is hearing impaired. His wife Kristen has #multiplesclerosis. Their marketing agency Doable is the 1st led by & centering people w #disabilities. “We...help consumers w disabilities have a voice." Doable's work shows businesses the diversity & creativity of the disabled community. 1/2
Diagnosed with #MultipleSclerosis in high school, now Stacy is starting med school on her way to becoming a neurologist. Someday she'll be treating others with MS. Read her powerful article, "Turning a diagnosis in high school into a career." tinyurl.com/mpedj6rs #caregiver 2/2
Empowering people affected by MS to live their best lives
The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
nationalmssociety.org
Kids get MS too — Pediatric MS resources "Once I educated myself about MS, my fears lessened, and I knew I could turn my diagnosis into something positive." Stacy Hirsch, dxed in high school. MS Society offers info, coping resources & connections: tinyurl.com/4xetpbju #MultipleSclerosis 1/2
PRO: Helps me relax and sleep soundly at night with MS. CON: A disaster any other time of day. The tiniest dose sends me to Couchlock Land. #MultipleSclerosis #marijuana #disability
Dolly played caregiver for her husband until his death last year, and admitted she didn't care for herself during that time. The average family caregiver spends 27 hrs a week on care, and some, 40 or more. 1/3 tinyurl.com/bdfrvwr4 #MultipleSclerosis #ChronicIllness #MightyTogether
Dolly Parton’s legacy includes an unfortunate reality of caregiving: Not taking care of oneself | CNN
Like many caregivers, Dolly Parton didn’t take care of her own health while caring for her ailing husband. That’s not unusual, even among people with resources.
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You are not alone. Come find community and support. 8/27/26 @ 8 PM ET Email newtoms at nmss.org for details. Share common experiences and concerns. Get info on ways to live well with #MultipleSclerosis. #Caregivers and friends welcome too.
Women With MS in the Workplace: the next Ask an #MultipleSclerosis Expert, 8/27/26, 12:30 PM ET Dana Foote of KPMG US tells her story & the realities of women navigating career + chronic illness. Also lessons learned on resilience, self-advocacy & more. Connect: tinyurl.com/mhm7bya4 #disability
8/20/26 12p.m. ET Ask a #MultipleSclerosis Expert (in Spanish) — Managing 'Invisible' Symptoms People like my friend Diane, who has worsening icy feeling on her face/hands, get pushback from those around her, healthcare professionals and even others with MS. … 1/2
Empowering people affected by MS to live their best lives
The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
tinyurl.com
Spider-Man: BND & The Odyssey: big movies on big IMAX screens = big summer fun, right? Unless you're a #wheelchair user & the "accessible" seats are more like a big pain in the neck, literally. My experience: tinyurl.com/4zrrf85z #disability
A pain in the neck: The odyssey for decent, comfortable IMAX ADA seats
Last week my friends and I went to the show. When the movie let out, the lobby was swamped with people. They were lined up everywhere. At fi...
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Hispanic MS Summit, 8/19/26 1 PM ET — Diversity in Research: Why It Matters & How to Get Involved #multiplesclerosis research is important to the #Hispanic community. You can make a difference. Program can be viewed later online. Sign up: tinyurl.com/3rf5jxxj Feat. neurologist Alejandra D. Ramirez.
I shambled and got dragged by my girlfriend a half-mile back to the car. Sat in the car air conditioning afterward. Good thing I had my first appointment with a neurologist scheduled back home. Also, married that girl! 2/2 #MultipleSclerosis #disability
#MultipleSclerosis summer meltdown stories — How does summer heat affect you? Got any true-tales or words of caution for others? My girlfriend & I took an easy 1-mile hike in Smoky Mtns. one May. When we started, I felt perfect. Halfway through, my mind grew foggy & my legs wobbly. 1/2 #disability
Learning how to recognize relapses & what to do when they occur can help us feel more prepared. Join Gabriela Karolidis, DO, board-certified neurologist & neuroimmunologist, who discusses the role that relapses play in #MultipleSclerosis & how to navigate them. 2/2 Connect at tinyurl.com/hh9y3d3r
Thurs. 8/13/26, at Noon, ET — Ask an MS Expert: "Understanding MS Relapses" Relapses are one of the biggest wildcards when living with #MultipleSclerosis. Those internal thoughts we have: "Is this a couple bad days in a row — or is it a relapse?" 1/2 Connect at tinyurl.com/hh9y3d3r
Thurs. 8/13 virtual program — New to #MultipleSclerosis: Navigating Your Journey Program 8 PM ET, 75 min. Space is limited, and programs regularly reach capacity. Reserve your place: tinyurl.com/4aja4td2 1/2
