“It’s not your fault. [Fistulas are] a very unfortunate complication, and incredibly isolating.” —Alicia Aiello (President, Girls With Guts) You didn't make yourself sick, & you don't have to carry it alone. 💜 🎧 Get this episode of About IBD Podcast: bit.ly/AIBD207 #IBD #Crohns #GirlsWithGuts

"I said, 'I'm done.'" ⌛ People with #IBD deserve to be heard and to receive compassionate care. In Episode 207 of #AboutIBDPodcast, Alicia Aiello, president of Girls With Guts, shares why she fired a surgeon and how to advocate for yourself with #IBD. #Fistula Listen or watch: bit.ly/AIBD207

Pain, especially residual pain after the 'target' of endoscopic healing is achieved in #IBD, is difficult for patients and for providers. Dr. Jessica Sheehan addresses this important symptom in IBD School 211 @bottomlineibd.bsky.social @aboutibd.bsky.social www.youtube.com/watch?v=xHtt...

IBD School 211 - Pain in IBD

YouTube video by Peter Higgins

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Moving forward with a dynamic illness means defining your capacity. That sucks, but it can also open up opportunities. Listen to this episode of #AboutIBDPodcast with Andrew Giffen & learn about his anonymous peer-support app, Brown Note, on Apple Podcasts, Spotify, YouTube, or at: bit.ly/AIBD204! 🎧

What if you had an anonymous place to send and receive nuggets of support about #IBD? 📛 It's called Brown Note, and it exists! Learn more about Brown Note on episode 204 of About IBD Podcast, in all podcast apps, on the YouTube for the video, or at bit.ly/AIBD204.%E2%...

🗻 Let's not lose sight of dreams. Let's figure out how to make them realities. On Ep 203 of #AboutIBDPodcast, we talk about travel with IBD or other chronic conditions. We have to do it differently, which sucks. But we can do it! Catch it in any podcast app, on the YouTube, or bit.ly/AIBD203! 🌟

🗺️ How can we travel with #IBD? Like so many things, it doesn't mean giving up. But it does mean doing it differently. Sarah McGovern, certified travel advisor of Halcyon Travel, teaches us how on Episode 203 of #AboutIBDPodcast. Get it in any podcatcher, on the YouTube, or at bit.ly/AIBD203!

Oh no, I'm "running out of time" to complete a survey sent by the health insurance company. Let me get right on that, instead of working to pay the medical bills they refuse to pay.

🧑🏽‍💻 You are not inconsistent. Your IBD is. In episode 202 of About IBD, Katie Neu and I discuss professional challenges and data from the recent IBD Social Circle survey, which show how many patients feel unsupported. We came up with 5 ideas to consider in building a community:

😶‍🌫️ Did you know that in one survey, 84% of adults with IBD said they feel stigma in their lives? I sat down with Katie Neu (Badass With a Bad Ass) to talk about how IBD affects relationships and mental health. 🎧 Get it on Ep 202 of About IBD, in podcast apps, YouTube, or my website: bit.ly/AIBD202

🪤 We have tied human value to productivity. Add in a chronic illness like #IBD, and it becomes a setup for failure. Bari Gratton joins #AboutIBDPodcast to talk about breaking free from the "push through" trap. 🎧 Stream Ep 201 on your favorite #podcast app, YouTube, or at my website: bit.ly/AIBD201

So excited! If you’re in LA, I hope you can make it! 💜

Cedars Sinai IBDI@ibdcedarssinai26.bsky.social · 6mo ago

Join us tomorrow! Dr. @pujakhannamd.bsky.social will be a guest on a live recording of @connectingtocure.bsky.social podcast, "A Body Owner's Guide to IBD." Purchase tickets here: e.givesmart.com/events/Odp/ #IBD #CrohnsDisease #UlerativeColitis #GIHealth @aboutibd.bsky.social

🙄 Yes. Even your eyes. On Ep 200 of #AboutIBDPodcast, I go over some eye problems connected to IBD. They range from annoying to potentially sight-destroying. It's good to be aware, but remember everyone has a different risk level. Ask your healthcare providers to put your situation into context.

It's the last day of voting in the Women Podcasters Awards! About IBD is nominated in the "Wellness" category. I'd be grateful if you'd consider voting here: www.womenpodcasters.com/awards-voting #IBD #Crohns #UlcerativeColitis #Podcast

Voting for the Women Podcasters Awards

Open from April 1 - 30,2026 at 6PM:

womenpodcasters.com

Did you know #IBD can attack your vision? #Crohns & #UlcerativeColitis are immune-mediated, which means inflammation doesn't always stay in the gut. Even in remission, it can attack other parts of the body. I break down 3 eye conditions on #AboutIBDPodcast episode 200! Get it here: bit.ly/AIBD200

"Toughing it out" can be common in endurance sports, but it almost cost T.L. Wright her life. After years of undiagnosed Crohn's, she had to completely pivot her diet and athletic goals to heal. Hear to her journey on the latest #AboutIBDPodcast: bit.ly/AIBD199 #CrohnsDisease #IBD #SCDDiet

#IBD patients are living longer — are our care models keeping up? Explore #geriatric-focused longevity clinics and real-world pharmacist innovations at the 2026 IBD #Pharmacist Virtual Symposium. Join us May 30: https://bit.ly/4kYXE2C

🎯 What are your goals? Remission isn't the only one. I sat with Drs Sonia Grandi and Cristina Longo to discuss the BIONIC Study on #AboutIBDPodcast, which uses data to learn how immune-mediated conditions affect pregnancy & babies. We have 5 tips for navigating health conditions & family planning.

You’re more than a diagnosis. You’re an expert. 🧬 In #AboutIBDPodcast Ep 198, Dr. Longo explains how the BIONIC Study is using data to keep mothers in remission & babies safe—by listening to experts: YOU. 👩🏼‍🍼✅ 🎧 Listen on Apple, Spotify, YouTube, or AboutIBD.com: bit.ly/AIBD198 #IBD #MaternalHealth

"What do I do now?" 🤰🏾 IBD pregnancy planning brings up questions because trials exclude pregnant people. Dr. Sonia Grandi’s team is using data to give patients the confidence to stay in remission while keeping babies safe. 🚼 Get the whole story on Ep 198 of About IBD: bit.ly/AIBD198 #IBD #Science

Prevention & screening are key when it comes to ulcerative colitis & its association w/#colon cancer risk. Tune in "The Woman's Doctor" tonite Mon., March 30th, 5:25pm as Mercy gastroenterologist Dr. Raymond Cross appears on #WBAL-TV11 to discuss. @wbaltv11.bsky.social www.wbaltv.com/article/heal...

Doctors emphasize UC screening amid higher risk for cancer

Prevention and screening are key when it comes to ulcerative colitis and its association with a slightly higher risk for colon cancer.

wbaltv.com

❌🤰 Pregnancy is often excluded from drug development, leaving moms in a "data vacuum." In Ep. 198, Dr. Sonia Grandi & Dr. Christina Longo share how the BIONIC Study uses 30 years of data to help #moms stay healthy & keep babies safe. 👩🏼‍🍼✅ Listen: bit.ly/AIBD198 #IBD #MedicalResearch

Epidemiology, Big Data, and Biologics in Pregnancy — About IBD Podcast Episode 198 - About IBD

What does a pregnant woman do when they need a biologic medication, but pregnancy isn't included in drug trials? Dr. Sonia Grandi and Dr. Christina Longo talk to Amber Tresca about the BIONIC study, a...

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Struggling to build up a better feed here with content focused on health, especially digestive health. I'm not sure whether discovery is more difficult or is a function of my not yet knowing how to use the platform well, but I appreciate any leads on who to follow!

a man wearing a yellow shirt with the letter a on the front

ALT: a man wearing a yellow shirt with the letter a on the front

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🤖 Everyone likes to use AI to make cartoons. But there are ways that AI can actually help you with your health! Here are 5 Tips to Safely Use AI to Manage Your Health Information from About IBD Podcast episode 196.

😒 Have you heard of artificial intelligence (AI) "hallucinations"? It says what you want to hear rather than the truth. ✅ Learn more about AI & how it could benefit patients on About IBD, especially if you aren't using AI. Get About IBD Ep 196 in your podcast app, on YouTube, or at bit.ly/AIBD196

Should we use AI to manage #IBD? The answer: Maybe. For #AboutIBDPodcast, I asked my husband, Mike, to explain how AI works, how to use it responsibly, and where it may not be ready for prime time. Get Episode 196 in your podcast app, on YouTube, or on my website: bit.ly/AIBD196

🚦Pressure and expectations get in the way of connection and pleasure for people living w/ #IBD. Intimacy is about communication, closeness, and finding what works for you & your partner. Learn more on About IBD Podcast Ep 195 w/intimacy coach @drstacyfriedman.bsky.social at: bit.ly/AIBD195

🪞Body image issues are common in #IBD. Symptoms change our bodies & stigma doesn’t help with dating and intimacy. On #AboutIBDPodcast Ep 195, sex coach Dr Stacy Friedman shares how to build a better relationship with your body & your partner. Listen, watch, or read on my website: bit.ly/AIBD195

💟 63% of women, 34% of men & 75% of LGBTQ+ people with IBD struggle w/ intimacy. If you are dissatisfied with your intimate life, please know help is available! Learn from #intimacy coach @drstacyfriedman.bsky.social how you can bring sexy back on #AboutIBDPodcast ep. 195: bit.ly/AIBD195

💭 I’m inspired by the idea of leaving people better than we find them. On Episode 193 of #AboutIBDPodcast, Lisa Zawrotny of Positively Productive Systems shares her philosophy: improve the things and people she touches. Find this episode in any podcast app, on the YouTubes, or here: bit.ly/AIBD193