I could use more of this in my life
The Doctor@drstevenhobbs.bsky.social · yesterdayLet's go for a walk, shall we?
Julia Robertson
@ailujnostrebor.bsky.social
Harbouring brain tumour #2. Raising awareness and funding for brain tumour research. PhD Candidate 6E/GA #BTSM #BrainTumorSocialMedia #MentalHealthMatters
The Doctor@drstevenhobbs.bsky.social · yesterdayLuckily I was attached to a holter monitor for this nonsense to be captured. NDIS meeting - heart rate reasonable Relaxing - heart rate goes nuts
Nurse Lisa has passed the halfway point. 11 hours left in a kiddie pool in my front yard to raise funds for Cancer Council Daffodil Day Dip Donate here www.daffodilday.com.au/fundraisers/... or please share
Wore my happy neuron pants today for MRI #3. There was a chilling moment when I realised that I was in this exact facility in 2003 when they diagnosed my first brain tumour. I've got all the things crossed for a better outcome from today's imaging
I often wonder what it would look like if every chapter of my life showed on my face. The grief. The caregiving. The illness. The resilience. Maybe it would not make me less beautiful. Maybe it would make me more true.
I had a great hike today. Im reminded every day that I made the right decision to move here.
I finished the day with a nice float on the river youtube.com/shorts/hsOKe...
I went #kayaking today. This is what I #saw. #nature #river #water #getoutthere #Oregon
YouTube video by steven hobbs
youtube.com
This girl has been fighting invisible battles most of her life. This coming week, decisions are being made about her life and she has no control over the outcome.
May is Brain Tumour Awareness Month. This photo was taken after I had lifesaving brain surgery in 2011. I share this image to remind people that brain tumour survival is possible, that research matters, and that behind every statistic is a real person.
Our celebration of Yidan and Xinyu, who have both passed their early candidature milestones. These moments matter. Early candidature can be incredibly challenging, taking time to acknowledge progress and celebrate each other is a key part of building a healthy academic culture.
Content note, suicidal ideation. I have lived with suicidal ideation since childhood. It is not a phase or a personality trait, it is a symptom I have learned to notice, name, and ride out. If you are carrying this too, you deserve support and you deserve to stay. Lifeline 13 11 14.
C6 nerve root injections on Friday. I have to go back to have the right side done 😬
Excited to share my latest piece has been published on Voices of Academia. voicesofacademia.com/2026/02/20/m...
My Journey Becoming a Disabled Student and Scholar by Julia Robertson
When I commenced studying at university, I did not yet have the language to call myself “disabled scholar.” I just knew that my life had been split into “before” and “after” a brain tumour, and tha…
voicesofacademia.com
Fifteen years ago, I was a mum of four who was dying of a brain tumour. I was preparing for a future I did not expect to see. And now, somehow, I am in the middle of my PhD. open.substack.com/pub/julesrob... @drstevenhobbs.bsky.social @lissbee.bsky.social @liangrhea.bsky.social
Turning Survival into Purpose: Fifteen Years of Life2.0
From the fracture of before and after, to a life rebuilt with intention and heart
open.substack.com
When Stoicism becomes a liability in the emergency room open.substack.com/pub/julesrob...
When Stoicism Becomes a Liability in the Emergency Room
Now with the numbers behind the disbelief
open.substack.com
We’re looking for a PhD student to join the social-ABI-lity research project in the @abicommlab.bsky.social! 👉 Focus areas: 🧠 Brain injury 📱 Social Media 🤝 Co-design 💡 Interested? Get in touch with me to find out more!
Neurosurgery has rejected my referral. This image was made in 2022. Following my recent trip to the USA, I am now living in a space where I feel like I will vomit from the pain. I have not managed to sleep a whole night in a long time My GP is livid and resubmitted the referral + paperwork
When I was preparing to fly to the USA, I had two friends in hospice. Today I received the news that one passed on December 20. The other I was with when he passed on December 27. While I mourn these losses, I appreciate that both had dignity and received pain management in their final days.
