Alice Barrett🦋
@alicebarrett.bsky.social
Living life horizontally•Sometimes thinking poetically Very Severe ME•POTS•MCAS•PEG feeding tube• Bedbound 24/7 since 2022 hope+humour=survival💙 https://www.instagram.com/alibarrett97?rpxt=ZnpsZWM4MDF0bnF3&utm_source=qr
A brilliant article
Tony Britton@thewestonmale.bsky.social · yesterdayFormer Olympian sprinter Beth Dobbin, 32, has written to Andy Burnham demanding more research funding for ME after her life was ripped apart by the illness | The Times | 31 October 2026 (cutting below👇) #BethDobbin #Olympian #LettertoAndy #mecfs #m/cfs #MyalgicEncephalomyelitis #LongCovid
More media coverage of @bethdobbin.bsky.social letter to @andyburnham.bsky.social in The Times! www.thetimes.com/uk/healthcar...
I represented Team GB at the Olympics. Now I’m in bed 22 hours a day
The former sprinter Beth Dobbin, 32, has written to Andy Burnham demanding more research funding for ME after her life was ripped apart by the illness
thetimes.com
ForwardME and @thereforme.bsky.social have put together a template letter which you can use to write to your MP, asking them to support Beth Dobbin's call for greater research funding. Template letter: https://tinyurl.com/vubzcstr #MECFS #MyalgicEncephalomyelitis #BethDobbin
One of my poems is going to be featured on @bbcupload TONIGHT!📻💫Tune in from 6 to 8 pm to BBC Sounds or listen to BBC Radio Devon or Cornwall. If you can’t listen live, it will be available on the BBC Sounds app to catch up and repeated on Saturday #poetry #spokenword #bbc #ME #chronicillness
✨biomedical research study into ME and Long Covid✨ all funded by charity… @andyburnham.bsky.social do ya think it’s about time you at leastttt matched the funding?🫠 #cureME #longcovid #ME
ME Association@meassociation.org.uk · 6d agoNow Recruiting: The Rosetta Stone study at Imperial College, London! If you are interested in taking part, please read the full blog for the eligibility criteria and to express your interest: https://meassociation.org.uk/9be1 #MECFS #LongCovid #pwME
A blog about the multiple reasons why I keep fighting. Why I thus far stay alive. "The fight against the injustice done to the patient community is a big driver. I just can't and won't shut up about it!!!” anilvanderzee.com/staying-aliv... #pwme #myalgicE #millionsmissing #severeME #MECFS
Staying Alive Is My Protest - Anil van der Zee
With the sadly increasing number of people with ME passing away, not uncommonly dying due to suicide or euthanasia, sometimes weekly, I often get asked why I keep holding on with severe ME, or if I ev...
anilvanderzee.com
I wrote this poem, ‘Fire in My Belly’, earlier this year about the mental agony of being physically held back by very severe ME. #poetry #ME #chronicillness
So… I just saw the moon for the first time since 2022!!! It was so so bright and wonderful🌝✨
plastic free alternatives? my childhood was cling film, plastic straws and supermarket bags. Now I would never✌️
Michael Druker 🇨🇦@mdruker.app · last wk.Social media loves talking about how everything is getting worse. But what’s something that you’ve seen get _better_ in your lifetime?
If you have the spare energy/5 mins of time, here is a template to write to your local MP following Beth Dobbin’s letter to Andy Burnham. Let’s try and keep this momentum going!💙 #thereforME #ME #chronicillness #advocacy
ThereForME@thereforme.bsky.social · last wk.Beth Dobbin has written to Andy Burnham to ask for increased funding for ME research. We are working with her to amplify her message, and you can help (if capacity allows). Write to your MP to back her call - to make things easier, we have a template for you. docs.google.com/document/d/1...
(1/2) In relation to the letter he was recently sent by Olympian Beth Dobbin, the 3 most important things @andyburnham.bsky.social could do are *immediately* fund #SequenceME, fascilitate implimentation of the NHS guidelines for #MECFS, order an investigation into the systemic negligence of ME/CFS.
Lets hope he listens🙏🏻 It’s not only the Welfare Bill that could be reduced, but the potential workforce of #PwME is a gold mine. The astonishing amount of skills, determination and talent from those with #ME is being wasted.
Carole Bruce@cabruce.bsky.social · 2w agoBeth Dobbin Olympic athlete who is now nearly totally confined to bed with severe #ME has written to Andy Burnham with some details about the illness and a suggestion as to how he might bring the welfare bill down.
www.bbc.co.uk/sport/athlet... #BethDobbin has written to Andy Burnham @primeministeruk.bsky.social to highlight the lack of care, research and support there is for people with #ME, especially severe ME. I so hope that they will listen and lives stop being lost or destroyed. 
Beth Dobbin writes to Andy Burnham calling for increased funding into ME research
Former British sprinter Beth Dobbin calls on Prime Minister Andy Burnham to fund more research into "life-decimating" ME.
bbc.co.uk
Yay!!! Alice, meet @alemmatthees.bsky.social. You have both made #ME history in your different (but infuriatingly identical) ways*. So GLAD to see both of you here, I'm beside myself 😊🪷😘🙌🏼🕯️🥳🎉🎊🪅🎇 TW *by surviving medical ignorance that could have killed each of you on different continents.
Alice Barrett🦋@alicebarrett.bsky.social · 2w agoI haven’t seen the moon in 4.5 years as I am completely #bedbound with Very Severe #ME. My wonderful carer, Ally, bought me this projector so I now have a moon in my bedroom🌝
An amazing and brave article from #BethDobbin (a British Olympian) for BBC Sport. She not only shares her devastating story of how #severeME has decimated her life, but also draws attention to the plight of the entire #MEcommunity
Adam@abrokenbattery.bsky.social · 2w agoBBC article and full video (3 mins) www.bbc.co.uk/sport/athlet...
