We've had lots of new followers, so it's probably a good time to introduce ourselves again & let you know how you can support us. ThereForME was founded back in 2024 by Karen Hargrave and Emma Gore-Lloyd, whose partners both live with very severe ME.

We don't normally post twice in one day, but Beth has given another strong interview, speaking so clearly about what it's like to have ME and representing others with the disease. And there's a quote from this new little charity too! www.thetimes.com/uk/healthcar...

The response to @bethdobbin.bsky.social's campaign for ME research funding has been remarkable. Thank you for all your kind comments & words of support for Beth & her family. 🩵 It demonstrates the desperate need for healthcare & wider public services to be truly there for people affected by ME.

ForwardME and @thereforme.bsky.social have put together a template letter which you can use to write to your MP, asking them to support Beth Dobbin's call for greater research funding. Template letter: https://tinyurl.com/vubzcstr #MECFS #MyalgicEncephalomyelitis #BethDobbin

We're pleased to support Jean and Jim, @bethdobbin.bsky.social's mum and dad, in sharing this message:

📣Virtual demo for #cleanair and medical care for #PAIS + #ME/CFS! Beth Dobbin recently gave a very powerful interview. We support her demands. Write to Andy Burnham and your local representative! Despite many promises, ME care remains inadequate! 📣 #CallForPublicHealthAction

ThereForME@thereforme.bsky.social · last wk.

Beth Dobbin has written to Andy Burnham to ask for increased funding for ME research. We are working with her to amplify her message, and you can help (if capacity allows). Write to your MP to back her call - to make things easier, we have a template for you. docs.google.com/document/d/1...

We’re really pleased that our MP email template has been supported by wider ME organisations via Forward ME 🫶 If you have the energy, you can help support @bethdobbin.bsky.social in her call for ME research funding by writing to your MP. More here 👇

ThereForME@thereforme.bsky.social · last wk.

Beth Dobbin has written to Andy Burnham to ask for increased funding for ME research. We are working with her to amplify her message, and you can help (if capacity allows). Write to your MP to back her call - to make things easier, we have a template for you. docs.google.com/document/d/1...

Thank you so much @thereforme.bsky.social ànd @actionforme.bsky.social for producing this useful briefing so quickly - it’s very helpful to have this analysis. And Beth - thank you for promoting all this activity - we can see that you haven’t lost your sprinter’s instincts!

ThereForME@thereforme.bsky.social · last wk.

We're happy to share that we now have an MP briefing live (joint with @actionforme.bsky.social) which you can send to your MP to give them all the info they need to support Beth Dobbin in her campaign for increased ME research funding. The briefing and our template are linked below👇

We're happy to share that we now have an MP briefing live (joint with @actionforme.bsky.social) which you can send to your MP to give them all the info they need to support Beth Dobbin in her campaign for increased ME research funding. The briefing and our template are linked below👇

If you have the spare energy/5 mins of time, here is a template to write to your local MP following Beth Dobbin’s letter to Andy Burnham. Let’s try and keep this momentum going!💙 #thereforME #ME #chronicillness #advocacy

ThereForME@thereforme.bsky.social · last wk.

Beth Dobbin has written to Andy Burnham to ask for increased funding for ME research. We are working with her to amplify her message, and you can help (if capacity allows). Write to your MP to back her call - to make things easier, we have a template for you. docs.google.com/document/d/1...

Beth Dobbin has written to Andy Burnham to ask for increased funding for ME research. We are working with her to amplify her message, and you can help (if capacity allows). Write to your MP to back her call - to make things easier, we have a template for you. docs.google.com/document/d/1...

In a break from our usual routine, this week we're sharing our response to Beth Dobbin's excellent interview with @katiefalkingham.bsky.social of the BBC, along with tidbits from follow-up interviews with ME experts @binitakane.bsky.social and Dr Charles Shepherd.

We need more research. Might you be able to post about our mini ME research conference taking place in Oxford on 7th November and available on Teams? www.eventbrite.co.uk/e/latest-me-...

Latest ME Research from Prof Karl Morten and colleagues

Join Prof Karl Morten and colleagues in person or online to catch the freshest insights on ME research and breakthroughs!

eventbrite.co.uk

1/2 Huge thanks to Olympic athlete Beth Dobbin for using her limited energy to share her story & raise awareness of the severely debilitating effects of ME & the lack of clear NHS pathways. www.bbc.co.uk/sport/athlet... We hear of situations like this all too often.

Beth Dobbin: British Olympic sprinter in bed for 22 hours a day after ME diagnosis

Beth Dobbin ran for Great Britain at the Tokyo Olympics in 2021. Five years on, she is largely bedbound after being diagnosed with ME, a devastating illness for which there is no cure.

bbc.co.uk

Inside ThereForME Update No. 36: George Monbiot's Guardian piece about what has changed for people with ME since the 2021 NICE guideline, and our letter in response Policy watch: Scotland's implementation gap, and Burnham’s national care service plans PLUS...

Thanks @thereforme.bsky.social! There must be serious review of the government’s inadequate response to #ME, with its cost to us all. Still considering best options to call for including @georgemonbiot.bsky.social proposed public inquiry, Select Committee Inquiry, a Czar or even referral to HSSIB.

ThereForME@thereforme.bsky.social · last mo.

The Guardian has published our letter responding to George Monbiot's article about how people with ME are abandoned, dismissed and gaslighted. We point out the inadequate political attention, and call for action from the Health & Social Care Select Committee. www.theguardian.com/society/2026...

The Guardian has published our letter responding to George Monbiot's article about how people with ME are abandoned, dismissed and gaslighted. We point out the inadequate political attention, and call for action from the Health & Social Care Select Committee. www.theguardian.com/society/2026...

Planning a charity challenge, event or birthday fundraiser? It just got easier to support us! 🎉 You can now select ThereForME as your chosen cause when setting up your fundraising page on JustGiving.

Are you keen to share your experiences of adult social care? If you’d be interested to write for us (500 words max), let us know 👇

We wanted to say a big thank you for all of your support since our charity announcement yesterday! We've had so many kind messages, and we're so grateful for all of the donations we've received so far. A big, big thank you from the team - this community is the best 🫶

George Monbiot was nominated for last year’s ThereForME Advent Calendar for using journalism to shine a light on failings faced by pwME. Today, he writes that too often people with ME are abandoned, while discredited treatments continue to be prescribed. He’s right.

George Monbiot@georgemonbiot.bsky.social · last mo.

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

After two years of amazing work, we’re only just getting started!! Please reshare and donate if you can (link in thread)

ThereForME@thereforme.bsky.social · last mo.

We're excited to share something we've been working on for a while. ThereForME is now a registered charity! 🥳 1/4

We're excited to share something we've been working on for a while. ThereForME is now a registered charity! 🥳 1/4

Last weekend, alongside representatives from @thereforme.bsky.social, @actionforme.bsky.social and the ME Association, our trustee Jo Dainow had the opportunity to visit the Royal Opera House and experience The Mirrorbox on behalf of Long Covid UK.

In today's update, we share a round-up of what was published to mark Severe ME Day, some of the creative ways people are keeping ME and Long Covid visible year round, and, as ever, a few rays of light. www.thereforme.uk/p/thereforme...

#ThereForME Update 35: awareness, art and action

Hello to our subscribers old and new.

thereforme.uk

In our work with #ThereForME, we come across many people with ME and Long Covid who face challenges accessing social care support. Today's guest post shares stories from three authors from across the UK. Thank you to Cass, Marianne and our anonymous contributor for sharing your experiences 💙

"What does the future hold for people with ME — and crucially, where must ME advocacy go next? The political landscape has changed, and if we want different outcomes, our advocacy has to evolve with it." - Karen Hargrave @thereforme.bsky.social www.thereforme.uk/p/the-missio...

The mission hasn’t changed — but our advocacy must

Looking ahead to year three of #ThereForME

thereforme.uk

"The political landscape has changed, and if we want different outcomes, our advocacy has to evolve with it." In today's update our co-founder @KarenLHargrave shares her reflections going into year 3 of #ThereForME. Link in next post 👇

📣 We’re looking for someone with ME/a carer to a PwME who would be interested to write a short piece (500 words) for our @thereforme.bsky.social blog about their experiences of/challenges with social care. Ideally looking for someone in Wales or NI - but can be flexible!

Karen is a founding member of the #ThereForME initiative @thereforme.bsky.social www.thereforme.uk Full video (10 mins) youtu.be/10hCNt6ajSE?...

#ThereForME | Karen Hargrave | Substack

#ThereForME is an initiative founded by Karen & Emma, two carers for partners with very severe ME. We work to improve support, understanding & quality of life for people affected by ME & related condi...

thereforme.uk